Bob B.

This week, we sit with Amy as she shares the quiet, enduring love she built with Jeff—before, during, and beyond his diagnosis of Frontotemporal Dementia (FTD). It’s a story of tenderness and patience, of navigating subtle changes, and the long, often winding road to understanding what was really happening.Amy brings us into a life rooted in intention—a partnership marked by gentleness, humor, and deep presence—even as FTD slowly reshaped their world. This episode is a reflection on caregiving, early symptoms of FTD, the diagnostic journey, and what it means to hold onto love as everything shifts.Thank you, Amy, for trusting us with your story.—Support the show + unlock bonus content (including a bonus episode with Amy):Patreon → www.patreon.com/remembermecommunityToday’s Sponsor — Progranulin Information NavigatorLearn more about genetic testing, clinical trials, and FTD resources → www.progranulinnavigator.orgFollow along:Instagram → @remembermepodcastWebsite → www.remembermeftd.comOur Non-Profit — The Remember Me Foundationwww.remembermefoundation.org—Remember Me Podcast + Community exists to offer hope, connection, and support for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).Always, always accept the good.

We're back from our mid-season break with a story of a young couple - Erin and Bob. Erin shares the journey to an FTD diagnosis after many misdiagnosis including young-onset Parkinsons. Thank you Erin, for sharing your story with us. Support the show + get more bonus content including a bonus episode with Erin on PATREON: www.patreon.com/remembermecommunityToday's SPONSOR - PROGRANULIN INFORMATION NAVIGATOR: Learn more about genetic testing, clinical trials + more at www.progranulinnavigator.org⁠⁠⁠⁠⁠⁠⁠⁠INSTAGRAM: @remembermepodcastWEBSITE: www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠OUR NON-PROFIT: www.remembermefoundation.org⁠⁠------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

In our last episode before the mid-season break, Shane, takes to the mic , and both of us were eager to hear his story with his late wife, Faye. This episode was extremely powerful to listen to as the love and the pain are both present. It’s a beautiful love story of self preservation, of letting go, of listening to your gut and leaning in to that love… that sweet, sweet love. Thanks for being so vulnerable, Shane. Yours and Faye's story will stay with us forever. We'll be back April 14th to kick off the second half of Season 12. Be well. xx-R+MA big thank you to our listeners, our supporters, our Patreons and our guests. Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers: ⁠www.remembermefoundation.org⁠------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).Always, always accept the good.

Today you'll meet Susan and her late wife, Barbara. Susan joined us all the way from Mexico, where we saw her beautiful Milagro wall as she spoke so vulnerably about her love story with Barbara. Susan has a way of telling her story with so much tenderness and adoration that we could feel the beauty of their relationship across the miles. This story also so delicately discusses genetic FTD, and the incredible dedication Barbara and Susan had to research and clinical trials. Oh, and Ms. Susan has written a book about her experience and we HIGHLY recommend you sign up for her e-mail list + keep an eye out for the book in June here: https://www.susankoen.comThank you, Susan, for sharing your love story with all of us.----A big thank you to our listeners, our supporters, our Patreons and our guests. A special thank you to ⁠⁠⁠Psilera⁠⁠⁠ for supporting this season of Remember Me.Ways to connect, get more resources + support RM:Patreon: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram: www.instagram.com/remembermepodcast Website: www.remembermeftd.comOur non-profit created to support caregivers before and after their journey: www.remembermefoundation.org⁠⁠⁠------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).Always, always accept the good.#spouse #dementia #grieving #grief #caregiving #frontotemporaldementia #ftd #podcast #marriage

Karen sits down with us for this week's episode and the conversation took right off. Karen spoke openly, albeit delicately, about the changes she noted in her husband, Doug and how the family roles have shifted and morphed alongside Doug’s disease. A beautiful love story that highlights love, resilience and strength. ---A big thank you to our listeners, our supporters, our Patreons and our guests. A special thank you to ⁠⁠⁠Psilera⁠⁠⁠ for supporting this season of Remember Me.Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers: ⁠⁠⁠www.remembermefoundation.org⁠⁠⁠------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).Always, always accept the good.

Today we welcome Michael as he shares his journey with his wife Maureen. Maureen was diagnosed with FTD after a misdiagnosis of psychiatric disorders and Lewy body Dementia due to her symptoms of hallucinations. Michael walks us through his experiences navigating caring for his changing wife - and the grief and love woven throughout. Thank you, Michael for sharing your story with us.---A big thank you to our listeners, our supporters, our Patreons and our guests. A special thank you to ⁠⁠Psilera⁠⁠ for supporting this season of Remember Me.Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers: ⁠⁠www.remembermefoundation.org⁠⁠------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).Always, always accept the good.

We are excited to share this weeks guest, Elin with all of you. During our conversation, Elin openly shared her feelings and her confusion as her husband, Larry’s, FTD began to set in. With a child at home, Elin shares the trials she encountered, the love that persists and the beautiful grief that remains. We loved chatting with Elin and we know you will enjoy hearing her perspective.Mentioned in this episode: ⁠ALS Scribes of Strength⁠---A big thank you to our listeners, our supporters, our Patreons and our guests. A special thank you to ⁠Psilera⁠ for supporting this season of Remember Me.Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers: ⁠www.remembermefoundation.org⁠------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).Always, always accept the good.

Welcome to Season 12. We are so happy you’re back and if you’re joining us for the first time, welcome in. This season, our stories are all being shared from the spouses perspective and we are so honored to welcome our first guest, Catherine. Listening to the story of Al, Catherine's late husband, we were able to explore aspects of aggravation, hard decisions, and vulnerable topics (we discuss what it feels like to grieve “lightly,” - powerful stuff!) This episode was told with a steady undercurrent of love and compassion. Take a listen!A big thank you to our listeners, our supporters, our Patreons and our guests. Want to support the podcast + get more content? Join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Thank you to our friends at Psilera for their support this season!We'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram @remembermepodcast. For more general info about the podcast, please visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. Before you go, we’d love for you to check out our new non profit foundation for the general neurodegenerative community of caregivers: ⁠www.remembermefoundation.org⁠

Our season 11 finale - a chat with just us - reflecting on the season, our journey of building RM + our latest project: The Remember Me Foundation. We talk about the nitty gritty of building Remember Me - while grieving, and healing, and mothering.. and our realization that "this is what it's all about."Thank you to our incredible guests this season - our SPONSORS (!) Psilera, Progranulin Information Navigator & AviadoBio. Our amazing Patreon members that give us so much love + support + JOY. We love you all. Thank you for sticking with us - 2026 is going to great, we promise. And if the holiday season feels heavy - just know you are not alone. You are a part of a community who gets it. And we hope you find ways to let some light in + accept the good. xx-R+MA VERY special thank you to today’s sponsors ⁠⁠Progranulin Information Navigator⁠⁠ and ⁠⁠Psilera⁠⁠. Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! Also checkout our new charity foundation for the FTD Community ⁠www.remembermefoundation.org⁠------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

Get ready—comedian Kelsey Cook joins us for a powerful Real Talk episode all about Frontotemporal Dementia (FTD), caregiving, grief, and finding a way forward when life feels impossibly heavy. Kelsey opens up about her mom’s FTD journey and shares honest, heartfelt insights on love, loss, resilience, and why humor matters even in the hardest moments.We adored connecting with Kelsey and hearing more about her incredible mom. Learn more about Kelsey at www.kelseycook.com or on Instagram @kelseycookcomedy.Let us know your thoughts after listening! xx R+MPS: Our Season 11 finale drops next week!Thank you to our Season 11 Sponsors:Progranulin Information NavigatorPsileraJoin our community on Patreon for exclusive episodes, behind-the-scenes content, and a supportive space for anyone touched by FTD: www.patreon.com/remembermecommunityStay connected with us on Instagram and catch updates, resources, and stories atremembermeftd.comLearn more about our nonprofit supporting families facing FTD at remembermefoundation.orgThe Remember Me Podcast + Community offers hope, resources, and human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD).Always, always accept the good.