Remember Me

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is #2 of the TWO bonus episodes we produced for Season 8! In this episode we tackle the different types of research with Dr. Irwin and Dr. Massimo, the Co-Directors of the Penn FTD Center. Some of the questions we ask: -What are the different types of research? Pharmacological vs. not? -How does brain donation support research? -How do we make research more accessible? Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info! Check out the companion blog post for this episode which can be read ⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠ full of more resources and info. Special thank you to The AFTD for their collaboration and support of these blogs! -- We want to send big love to the entire ⁠⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠⁠. To sign up for our e-mail visit our website ⁠⁠⁠⁠⁠remembermeftd.com⁠⁠⁠⁠⁠. Remember Me is proud to work with ⁠⁠⁠⁠⁠⁠⁠LearnFTD⁠⁠⁠⁠⁠⁠⁠, by Alector in working to raise awareness of FTD.. For additional information and resources, visit ⁠⁠⁠⁠⁠⁠⁠LearnFTD.com ⁠⁠⁠⁠⁠⁠⁠Thank you for supporting our work and for supporting the FTD community.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is one of TWO bonus episodes we produced for Season 8! In this episode we tackle Clinical Trials with our friend Dahlia Kamel, MS - Clinical Trials Lead at the Penn FTD Center. Some of the questions we ask: -What is a clinical trial? -What do the different phases mean? -What are the considerations for families? Benefit vs. Burden Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info! Check out the companion blog post for this episode which can be read ⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠ full of more resources and info. Special thank you to The AFTD for their collaboration and support of these blogs! -- We want to send big love to the entire ⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠. To sign up for our e-mail visit our website ⁠⁠⁠⁠remembermeftd.com⁠⁠⁠⁠. Remember Me is proud to work with ⁠⁠⁠⁠⁠⁠LearnFTD⁠⁠⁠⁠⁠⁠, by Alector in working to raise awareness of FTD.. For additional information and resources, visit ⁠⁠⁠⁠⁠⁠LearnFTD.com ⁠⁠⁠⁠⁠⁠Thank you for supporting our work and for supporting the FTD community.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

In conclusion...it's our season finale... and we're wrapping up this series with our own little bow. Make sure to listen til the very end. And stay in touch, follow us on IG, and keep up to date on all things RM. You never know when you may get an encore *cough* bonus *cough* episode or two... Thank you all for your support and love. Sincerely, R+M -- We want to thank the entire ⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠ for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.  For more support, resources, events, and all things RM, check out our website www.remembermeftd.com Special thank you to The Association for Frontotemporal Degeneration for their collaboration and support of our blogs this season! You can read up on all the important information + resources we curated together here. Remember Me is proud to work with ⁠⁠⁠⁠⁠⁠LearnFTD⁠⁠⁠⁠⁠⁠, by Alector in working to raise awareness of FTD.. For additional information and resources, visit ⁠⁠⁠⁠⁠⁠LearnFTD.com⁠⁠⁠⁠⁠ Thank you for supporting our work and for supporting the FTD community.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

This week we talk all about Guardianship, Power of Attorney, Long Term Care... and other "scary" and confusing terms that can come up when planning care for your loved one. All with the help of Kate, a social worker at the Penn FTD Center. But before that, we dive into our friend Keri's personal experience getting Guardianship for her father, Mark. We recorded this interview last fall, and in February, Mark passed away after a very long journey with FTD. We want to take a minute to acknowledge Keri for the amazing job she did caring for her dad...all while being a wife, raising her little kids and being a fierce FTD advocate. You're a superhero, Keri. -- We want to send big love to the entire ⁠⁠⁠Penn FTD Center Team⁠⁠⁠ for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.  Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website ⁠⁠⁠remembermeftd.com⁠⁠⁠. The companion blog to this episode can be read ⁠⁠⁠here⁠⁠⁠. Special thank you to The AFTD for their collaboration and support of these blogs! Remember Me is proud to work with ⁠⁠⁠⁠⁠LearnFTD⁠⁠⁠⁠⁠, by Alector in working to raise awareness of FTD.. For additional information and resources, visit ⁠⁠⁠⁠⁠LearnFTD.com ⁠⁠⁠⁠⁠ Thank you for supporting our work and for supporting the FTD community.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Are there stages of FTD? What can you "expect"? This week we walk through disease trajectory with Dr. Lauren Massimo (also featured on Episode 2 - Understanding Apathy). Dr. Massimo breaks down what we know, and how she likes to guide families through these discussions. And this week's personal stories come from our friends Lauren and Michelle from the Sister Project. Hear their stories told on Season 1 episodes "June" and "June Pt. 2. This episode is dedicated to June. xx -- We want to send big love to the entire ⁠⁠Penn FTD Center Team⁠⁠ for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.  Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website ⁠⁠remembermeftd.com⁠⁠. The companion blog to this episode can be read ⁠⁠here⁠⁠. Special thank you to The AFTD for their collaboration and support of these blogs! Remember Me is proud to work with ⁠⁠⁠⁠LearnFTD⁠⁠⁠⁠, by Alector in working to raise awareness of FTD.. For additional information and resources, visit ⁠⁠⁠⁠LearnFTD.com ⁠⁠⁠⁠ Thank you for supporting our work and for supporting the FTD community.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

This episode revolves around the symptoms of hyperorality -- with a focus on the very common symptom of alcohol use (and abuse). Have a listen as the story meets the science with the lovely Dr. Sara Manning. We want to send big love to the entire ⁠⁠⁠⁠⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠⁠⁠⁠⁠ for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.  Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website ⁠⁠⁠⁠⁠⁠⁠⁠remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠. The companion blog to this episode can be read ⁠⁠⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠⁠⁠. Special thank you to The AFTD for their collaboration and support of these blogs! Remember Me is proud to work with ⁠⁠⁠LearnFTD⁠⁠⁠, by Alector in working to raise awareness of FTD.. For additional information and resources, visit ⁠⁠⁠LearnFTD.com ⁠⁠⁠ Thank you for supporting our work and for supporting the FTD community.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

This week we dive into loss of empathy with Dr. Emma Rhodes. We discuss how this behavior so often reveals itself with birth and death announcements and the episode is filled with personal stories from Rachael, Maria and their friends Lauren and Michelle from the Sister Project (Season 1 - June Pt. 1 & Pt. 2). We want to send big love to the entire ⁠⁠⁠⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠⁠⁠⁠ for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.  Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website ⁠⁠⁠⁠⁠⁠⁠remembermeftd.com⁠⁠⁠⁠⁠⁠⁠. The companion blog to this episode can be read ⁠⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠⁠. Special thank you to The AFTD for their collaboration and support of these blogs! Remember Me is proud to work with ⁠⁠LearnFTD⁠⁠, by Alector in working to raise awareness of FTD.. For additional information and resources, visit ⁠⁠LearnFTD.com ⁠⁠ Thank you for supporting our work and for supporting the FTD community.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

WE'RE BACK! With a very important interview with the brilliant Corey McMillan, Co-Director of the Penn FTD Center. This week we tackle ALS and FTD - the science behind the connection of the diseases, and the work that is being done to understand more. We want to send big love to the entire ⁠⁠⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠⁠⁠ for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.  Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website ⁠⁠⁠⁠⁠⁠remembermeftd.com⁠⁠⁠⁠⁠⁠. The companion blog to this episode can be read ⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠. Special thank you to The AFTD for their collaboration and support of these blogs! Remember Me is proud to work with ⁠LearnFTD⁠, by Alector in working to raise awareness of FTD.. For additional information and resources, visit ⁠LearnFTD.com ⁠ Thank you for supporting our work and for supporting the FTD community.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

In our last episode before our mid-season break, we talk to the incredible Dr. Katya Rascovsky about some of the most heartbreaking behaviors in FTD: disinhibition, impulse control and hypersexuality. Katya is absolutely brilliant, kind, and we learned so much from her. We'll see you back here on March 5th, when we'll start to dive into the second half of Season 8. Take time to digest the first 6 episodes of our season with care. Read the blogs for more info. We want to send big love to the entire ⁠⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠⁠ for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.  Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website ⁠⁠⁠⁠⁠remembermeftd.com⁠⁠⁠⁠⁠. The companion blog to this episode can be read ⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠. Special thank you to The AFTD for their collaboration and support of these blogs! And a special thank you to ⁠⁠⁠⁠⁠Alector⁠⁠⁠⁠⁠ for their boundless work in the neurodegenerative space. Powered by innovation, exquisite science and a determination to make a difference, Alector is working on the discovery and development of potential therapeutic treatments in the hopes of improving the lives of patients, caregivers and families living with neurodegenerative diseases. Remember Me Podcast is appreciative of all your support of our work.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

This week we dive into more of Maria's experience with her mom as we discuss Primary Progressive Aphasia (PPA) with ⁠Naomi Nevler, MD from the Penn FTD Center. We had the chance to spend time with Naomi on our visit to Penn last fall, and her passion for science and her understanding and compassion for our community, we feel, is all felt through the episode. We hope this helps you gain deeper insight into PPA... and we hope you appreciate some raw and unfiltered thoughts on the subject from your favorite duo. We want to send big love to the entire ⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠ for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.  Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website ⁠⁠⁠⁠remembermeftd.com⁠⁠⁠⁠. The companion blog to this episode can be read ⁠⁠⁠⁠here⁠⁠⁠⁠. Special thank you to The AFTD for their collaboration and support of these blogs! And a special thank you to ⁠⁠⁠⁠Alector⁠⁠⁠⁠ for their boundless work in the neurodegenerative space. Powered by innovation, exquisite science and a determination to make a difference, Alector is working on the discovery and development of potential therapeutic treatments in the hopes of improving the lives of patients, caregivers and families living with neurodegenerative diseases. Remember Me Podcast is appreciative of all your support of our work.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support