BONUS | Grief & Genetic Testing with Erynn Gordon, MS, CGC, Progranulin Information Navigator

Today's episode feels like a conversation between 3 old friends. New friend, Genessee, openly shares her unique experience with her mother's complex mental health issues and her eventual diagnosis of frontotemporal dementia (FTD). For the first time we really dive into the topic of infertility -- and what it's like to navigate a fertility journey alongside the grief and challenges having a loved one with FTD. We loved this conversation - and the special peice of Holly at the end. Thank you, Genessee for sharing your story with us!An extended version of this episode is available now on Patreon - join us www.patreon.com/remembermecommunity - you get exclusive content and it's a great way to support the show!If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠Instagram, and visit ⁠our website at⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

Continuing on our theme of family dynamics - a long-time listener and friend of the podcast, CJ, comes forward to share her story. We talk a lot about navigating motherhood alongside her father Russ' FTD journey, with all the family dynamics and challenges that come along the way. CJ tells her story with so much love and honesty, it is sure to touch your heart. Thank you, CJ, for sharing your story with us.If you're curious about anything RM, we'd love to connect with you on ⁠⁠PATREON⁠⁠, our website at⁠⁠ www.remembermeftd.com⁠⁠, or on Instagram for all the latest updates!Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

A young son and family member from NYT Magazine's “The Vanishing Family” speaks with us on today's episode. In what may be one of our most powerful interviews, Ansel shares the origins of his mother Peggy's journey with FTD and their family's discovery of the MAPT FTD mutation through their incredible efforts to contribute to FTD research. You can read Ansel's recent piece A Hand of Poker and Our Family Curse published in Medium here. Learn more about Ansel's advocacy at CureMAPTFTD ⁠here⁠.Thank you, Ansel for sharing your story with us.------If you're curious about anything RM, we'd love to connect with you on ⁠PATREON⁠, our website at⁠ www.remembermeftd.com⁠, or on Instagram for all the latest updates!Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

A beautiful blended family-- Janet's husband Mike was diagnosed with FTD during the pandemic -- and she shares with us how she navigates the heartache and grief through the beautiful blended family her and Mike formed together. Janet thought it was important this season featured a story of how families can come together too -- and we're so glad. Thank you, Janet for sharing your story with us and the whole RM community.If you're curious about anything RM, we'd love to connect with you on ⁠PATREON⁠, our website at⁠ www.remembermeftd.com⁠, or on Instagram for all the latest updates!Thinking about joining our Family Dynamics class in May? We'd be happy to chat—just drop us an email at [email protected] for more details.Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

We plunge head first into family dynamics with our extraordinary guest, Niki. Niki shares the story of her father, Dominic, detailing his journey with FTD - including the difficulties of balancing the reality and gravity of the diagnosis alongside the overwhelming decisions for his care. All while navigating family conflicts, and of course, the emotional and psychological toll it takes. Niki talks all about her journey as a new mom and new entrepreneur while navigating it all. We bond over the survival mode of it all - and learning how to trust your gut, establish boundaries, and find your "people". Thank you to Niki for sharing your story with us and the whole RM community.If you're curious about anything RM, we'd love to connect with you on PATREON, our website at www.remembermeftd.com, or on Instagram for all the latest updates!Thinking about joining our Family Dynamics class in May? We'd be happy to chat—just drop us an email at [email protected] for more details.Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

SEASON 10! WHAT? 10 seasons in and we're finally ready to dive into the topic of Family Dynamics. Before diving into our guests stories, our first episode has some personal updates (Rachael's puppy golden retriever BENNY!), our hopes + dreams for the new season, some hearty laughs + more. -------------------For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram! Interested in our Family Dynamics class in May? Shoot us an email at [email protected] Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia.

Surprise... another BONUS ep! The grief convo in Season 9, we felt, really needed to include the genetic piece of this disease, and so we are HONORED to have Erynn Gordon - a board certified genetic counselor with 20 years of clinical, research, and industry experience with us to dive into this topic. Erynn SO thoughtfully breaks down genetics and testing and chats with us all about a new resource the Progranulin Information Navigator. Let us know what you think of this bonus episode and please check out our sponsor ⁠⁠⁠⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. For all things Remember Me, visit remembermeftd.com For bonus content + connection, join us on Patreon www.patreon.com/remembermecommunity --- Remember Me is a podcast that shares stories of people with Frontotemporal Dementia (FTD) and their loved ones. The podcast's goal is to help people accept the good in life and to remember the people they love for who they were before the disease. 

Surprise! We're back with a Season 9 Bonus Episode, and if you are so inclined, you can now WATCH this episode on Youtube. We sat down with our friends Esther Kane, MSN, RN-CDP, Support & Education Director and Sarah Lopata, Support Services Manager at the Association for Frontotemporal Degeneration to discuss the unique grief experience of FTD and many of its layers. Let us know on instagram what you think of this episode + the topics covered. Please share this episode with someone you think needs to hear it! SPECIAL THANK YOU TO THIS EPISODE SPONSOR The Association for Frontotemporal Degeneration Check out their grief resource, Walking with Grief: Loss and the FTD Journey here.

In our Season 9 finale we hear from our friend Anna, wife to the incredible, confident, loving girl-Dad, Craig. Anna's strength and her love is so inspiring, we hope it fills you with hope and comfort as you navigate the holidays. ------- An extended version of this amazing episode is available now on our Re-Members only Patreon. A special thank you to all of our guests, sponsors + listeners this season. We are so deeply thankful + grateful for you. Hope this season you can find some time to #acceptthegood. We are here for you. xx - R+M ------ Please check out some of our amazing sponsors: ⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. ⁠⁠MAKE TIME WELLNESS⁠⁠ (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Anticipatory Grief, Complicated Grief, Disenfranchised Grief... we cover it all + Rachael's explanation for her fascination with grief and all things *bittersweet* We're nearing the end of season 9! Thank you for all of your support this season + beyond! Please don't forget to check out our Patreon for bonus episodes + more! And follow us on Instagram. Please check out the amazing sponsors mentioned in this episode: ⁠⁠⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. ⁠⁠⁠⁠MAKE TIME WELLNESS⁠⁠⁠⁠ (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!