S6E2 - ”There isn’t even a Quality Outcome Framework for Endometriosis!” with Dr. Anita Sharma & Courtney Omrod

Hello and welcome to this first episode of 'Endo University,'. This is a short lightening podcast season where I'll be sharing a lot of information on all things Endometriosis.  Today, we're delving into the fundamentals with a focus on 'What does Endometriosis look like?'    Articles & References: Kennedy S, Bergqvist A, Chapron C, D'Hooghe T, Dunselman G, Greb R, et al. ESHRE guideline for the diagnosis and treatment of endometriosis. Hum Reprod. 2005;20:2698–704. [PubMed] [Google Scholar] Stratton P, Winkel CA, Sinaii N, Merino MJ, Zimmer C, Nieman LK. Location, color, size, depth, and volume may predict endometriosis in lesions resected at surgery. Fertil Steril. 2002;78:743–9. [PubMed] [Google Scholar] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2505050/#:~:text=The%20typical%20appearance%20of%20endometriosis,also%20be%20endometriosis%20(1). Disclaimer: Remember that I am not a medical professional. So whatever I share on this podcast is to enlighten and inspire. Please always speak to your healthcare professional before making any changes to your diet or lifestyle. Music: Sunrise - Mehul Choudhary https://soundcloud.com/mehulchoudhary Creative Commons — Attribution 3.0 Unported — CC BY 3.0 Free Download / Stream: https://bit.ly/3RYLj0k Music promoted by Audio Library https://bit.ly/48AUtab  

Welcome to our 'Endo Research Unveiled: Seeking Answers' series on Not Defined by Endo Podcast. Today’s conversation is with Dr Anita Sharma and Courtney Omrod. Dr. Anita is a General Practitioner based in Manchester, United Kingdom and a national campaigner on women’s health. Courtney is an endometriosis warrior and advocate making a difference in this space. We hear a lot about the work they have both been doing and how Courtney's personal experiences with Endo have impacted every aspect of her life.  Don't forget to share, rate, and subscribe to this podcast. If you’d like to share any research studies you are involved in or interested in, please reach out on Instagram or Facebook, or send an email to  [email protected]. Till next time, remember, you are not defined by endo!   Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.  

Welcome to our 'Endo Research Unveiled: Seeking Answers' series on Not Defined by Endo Podcast. Today’s conversation is with Dr Barbara Guinn, a Reader in Biomedical Sciences at the University of Hull. As well as teaching the undergraduate and postgraduate degree courses in the Centre for Biomedicine, Hull York Medical School, Barbara also supervises MSc, MD and PhD students in their research. Barbara read Genetics at Aberystwyth University and received a PhD in Medicine from the University of Wales College of Medicine, Cardiff. Following 4.5 years working at the University of Toronto in the Department of Immunology, Barbara set up her own research group in the Department of Haematological Medicine at King’s College London to identify new targets for the treatment of acute leukaemia. Barbara worked on the development of DNA vaccines to treat leukaemia at the University of Southampton and then started to work on ovarian cancer. In 2016 Barbara joined the University of Hull and began her work on developing new treatments for endometriosis and a urine test for endometriosis called EndoTect. Barbara has three children and two dogs and loves to X. Her X handles are @BarbaraGuinn1 @GuinnLab.   Don't forget to share, rate, and subscribe to this podcast. If you’d like to share any research studies you are involved in or interested in, please reach out on Instagram or Facebook, or send an email to  [email protected]. Till next time, remember, you are not defined by endo!   Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s conversation is with Tihesia Bennet. Tihesia is a 24-year-old incoming Junior Doctor. She was inspired to create her sexual and reproductive health awareness page, She Talks, after she was diagnosed with superficial endometriosis in 2020. Join me as we listen to Tihesia’s story. Don't forget to share, rate, and subscribe to this podcast. If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  [email protected]. Till next time, remember, you are not defined by endo!   Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.  

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s conversation is with Tanya. Tanya is a 30-year-old endometriosis advocate from London. She was suffering from endometriosis for eight years before she was diagnosed and underwent extensive surgery. She now lives life with an ileostomy bag on her stomach because of endometriosis and how much damage it had done to her organs. It was so refreshing speaking all things endo, stoma, and living our best lives with Tanya! So sit back, relax and join us in this conversation! Follow her instagram @tanyalivingfree. Don't forget to share, rate, and subscribe to this podcast. If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  [email protected]. Till next time, remember, you are not defined by endo!   Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.  

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today, we carry on listening to Kailey and Betsy’s stories and how they have overcome all they have been through in their diagnoses of endometriosis and infertility. If you didn’t listen to Part 1, please click on the previous episode to do so. Kailey & Betsy host the Not Cha Momma Podcast where they talk about endometriosis, adenomyosis, infertility, & childlessness in their 30s. I particularly love how they talk about being child-free, and not child LESS. And the very important message that not having a child does not make you less. They regularly share insight into their daily lives with chronic illnesses and their pursuit to redefine worth and enjoyment of their kid-free lives. They are also on Instagram @notchamommapod.  Don't forget to share, rate, and subscribe to this podcast. If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  [email protected]. Till next time, remember, you are not defined by endo!   Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.  

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s episode is with lovely Kailey Lee and Betsy Austin. Kailey & Betsy host the Not Cha Momma Podcast where they talk about endometriosis, adenomyosis, infertility, & childlessness in their 30s. I particularly love how they talk about being child-free, and not child LESS. And the very important message that not having a child does not make you less. They regularly share insight into their daily lives with chronic illnesses and their pursuit to redefine worth and enjoyment of their kid-free lives. They are also on Instagram @notchamommapod.  Don't forget to share, rate, and subscribe to this podcast. If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  [email protected]. Till next time, remember, you are not defined by endo!   Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.  

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s conversation is with Stephanie Moss. Stephanie is an Endometriosis advocate, Infertility warrior, Trauma survivor, and a third-year Medical Student pursuing her Medical Doctorate (M.D.) at Rush Medical College in Chicago. She has a passion for trauma-informed care and advocating for those disenfranchised in society. She loves to share her story through writing, social media, podcasts, and presentations. Her work has been featured across various platforms including The Endometriosis Foundation, KevinMD, American Medical Women’s Association, and Survivor Revive. She has also created a website called medpsycmoss.com which features her blog, links to her work, and a comprehensive selection of trauma-informed resources for both patients and health care providers. Don't forget to share, rate, and subscribe to this podcast. If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  [email protected]. Till next time, remember, you are not defined by endo!   Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.  

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today’s episode is with Amy Corfeli, a powerhouse and amazing advocate in the world of Endometriosis and chronic illness. Amy has endometriosis and has also been diagnosed with IC, fibro, Mast cell activation syndrome, and Small Intestine Bacterial Overgrowth. She was diagnosed with endo at thirty-three, sixteen years after her symptoms began. She’s the content creator of the popular podcast called In Sixteen Years of Endometriosis. With her co-host Brittany, they laugh, cry, and shout about all things endometriosis. Amy is also the author of Finding Peace with a Devastating Disease. It's a beautifully raw and honest collection of seventy-six reflections on acceptance, meaning, and self-compassion. On Amy's website and Instagram, @in16yearsofendo, you can find accurate information and trustworthy resources for endometriosis. Don't forget to share, rate, and subscribe to this podcast. If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  [email protected]. Till next time, remember, you are not defined by endo!   Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.  

Welcome to our 'Chat with a Warrior' series on Not Defined by Endo Podcast. Today's episode is with Nicole Marriott, a warrior who lives with Endometriosis, Adenomyosis, and PCOS. Nicole set up her Instagram account @endo.of.an.era to raise awareness and break the stigmas and taboos surrounding chronic conditions, infertility, and menstruating. After a 20-year journey to diagnosis and a nearly 10-year journey with primary and secondary infertility, her aim is to connect, raise awareness and help others feel seen, heard, and free in their own truths and all aspects of their journey living with these conditions. Nicole believes in an inclusive community that does not exclude the voices and experiences of others. Don't forget to share, rate, and subscribe to this podcast. If you’d like to share your story, please reach out on Instagram or Facebook, or send an email to  [email protected]. Till next time, remember, you are not defined by endo!   Disclaimer: Remember that I am not a healthcare professional, so whatever I share on this podcast is to inspire and empower you to take control of your health and your bodies. Please always speak to your healthcare professional before making any major changes to your diet or lifestyle.