S3 Ep3: Navigating the System with IBD

The physical challenges of living with IBD are well documented, but this episode of GutCast shines a light on the hidden psychological impact. Crohn’s & Colitis Ireland (CCI) board member and host, Victoria Spillane is joined by senior psychologist Dr. Lisa Harpur and Sarah O’Connor, who lives with Crohn’s, to discuss the often invisible psychological impact of IBD, and discuss why a clinical psychologist is needed in every IBD clinic in Ireland.The views, information or opinions expressed during the GutCast podcast series are solely those of the individuals involved and do not represent those of Crohn's and Colitis Ireland or Johnson & Johnson. Payment was made to CCI for its employees and board members' time recording the podcast. Payment was made directly to other contributors for their time recording the podcast. The primary purpose of this podcast series is to educate and inform and is not a substitute for professional diagnosis or treatment.This podcast is supported by Johnson & Johnson

In this live episode of Gutcast, recorded at the Kingsley Hotel in Cork on World IBD Day, host Amy Kelly is joined by panellists Victoria Spillane and Ciarán Davis, who live with IBD and serve as board members of Crohn’s and Colitis Ireland (CCI) and Angela Mullen, IBD Clinical Nurse Specialist, Cork University Hospital.  The episode was recorded at CCI’s ‘It Takes Guts’ conference, which also marked the 40th anniversary of the charity.Together they delve into their respective experiences living with IBD and recount their diagnoses, how they now manage their condition and advice that they would give to others going through their journey of diagnosis. They recall how the work of CCI has evolved over the past forty years, and how each of the panellists got involved with the organisation.   Episode disclaimerThe views, information or opinions expressed during the Gutcast podcast series are solely those of the individuals involved and do not represent those of Crohn's and Colitis Ireland or Johnson & Johnson. Payment was made to CCI for its employees and board members' time recording the podcast. Payment was made directly to other contributors for their time recording the podcast. The primary purpose of this podcast series is to educate and inform and is not a substitute for professional diagnosis or treatment.This podcast is funded by Johnson and Johnson

In this live episode of Gutcast recorded at University College Dublin, host Amy Kelly is joined by panellists Prof. Glen Doherty, Consultant Gastroenterologist at the Centre for Colorectal Disease at St Vincent's University Hospital, UCD and Seb Tucknott, Founder of IBD Relief, a for-purpose company empowering people living with inflammatory bowel disease. Together they delve into the future of IBD care by discussing the latest updates in medical research plus the latest advancements in digital health which have the potential to positively impact the patient experience, allowing patients to better manage and understand their condition. They also share their own individual journeys living and working with IBD.

The challenges of living with IBD are well known but accessing key information and supports is often not an easy journey. In this episode, we will answer the questions those recently diagnosed and living with IBD want to know. From disability benefits and entitlements to the cost of medicine, it will also detail the key information and support services available to those living with IBD.NOTE: As of the 1st of March 2022, the drug payment scheme threshold has been reduced to €80 per month

People with Crohn’s and colitis can be faced with a much higher degree of stress and sickness when it comes to planning and attending life events. Weddings, parties, even a mid-week meal with friends can become a difficult and often flare inducing scenario. In this episode we will hear real-life experience of the stress and anxiety and how best to manage these moments, managing expectations from yourself and others and the supports that are available to patients from a nutrition and wellbeing perspective.

In this opening episode of Gutcast 3, we will delve into the difficulties of having a child diagnosed with IBD as well as the transition from childhood to adulthood while dealing with this long term and debilitating condition. Living with IBD during childhood and teenaged years has its own distinct challenges and stresses at times and it is a topic often not discussed. Transition from paediatric to adult care can also be daunting and appropriate support is needed.In this episode we will hear Amy Kelly in conversation with a healthcare professional as well as those with real-life experience of supporting a child living with IBD as well as an adult diagnosed as a child. Topics for discussion include when a family receives a diagnosis, dealing with flares, mental health including parental guilt, dealing with a change in your condition as you age, asking the right questions to your HCP and living well as well as transitioning from paediatric to adult care.

In this episode, we will delve into the many different ways IBD can impact the lives of those living with it, but also the ways in which lifestyle can impact the treatment journey. We will hear our host Amy Kelly in conversation with healthcare professionals as well as those with real-life experience of living with IBD as they discuss important topics like mental health, self-image, pregnancy, and diet. As with all episodes, Lifestyle caters for everyone living with and affected by Crohn’s or colitis but especially for someone who has had an experience with pregnancy or is planning a pregnancy. If you have been affected by any of the content in the series please contact your healthcare professional or the ISCC helpline on + 353 1 531 2983 available every Monday, Wednesday and Friday between 9.30am – 12.30pm.  Gutcast is a partnership between the Irish Society of Crohn’s and Colitis and Janssen Sciences Ireland UC. For more information please go to ISCC.ie  The views, information or opinions expressed during the Gutcast podcast series are solely those of the individuals involved and do not represent those of the Irish Society for Colitis and Crohn’s Disease or Janssen Sciences Ireland UC. The primary purpose of this podcast series is to educate and inform and is not a substitute for professional diagnosis or treatment. This podcast is supported by funding from Janssen Sciences Ireland UC. 

Stress doesn’t cause ulcerative colitis or Crohn’s disease but left unaddressed, it can make symptoms worse. Mindfulness for those living with IBD is about the importance of attention and awareness. It also helps patients to manage symptoms and their treatment journey. This episode is a 15-minute guided session led by Dr Susan Brannick focusing on breathing and relaxation.  If you have been affected by any of the content in the series please contact your healthcare professional or the ISCC helpline on + 353 1 531 2983 available every Monday, Wednesday and Friday between 9.30am – 12.30pm.  Gutcast is a partnership between the Irish Society of Crohn’s and Colitis and Janssen Sciences Ireland UC. For more information please go to ISCC.ie  The views, information or opinions expressed during the Gutcast podcast series are solely those of the individuals involved and do not represent those of the Irish Society for Colitis and Crohn’s Disease or Janssen Sciences Ireland UC. The primary purpose of this podcast series is to educate and inform and is not a substitute for professional diagnosis or treatment. This podcast is supported by funding from Janssen Sciences Ireland UC.

People with IBD can be faced with the decision between having stoma surgery or continuing to live with symptoms that can significantly impact their daily quality of life. In this episode, we will hear first-hand experience of a stoma surgery journey, the decision process and the supports that are available to patients. Radio presenter, Michaela Hayes who lives with a stoma shares her journey from surgery to recovery and advice for others.  If you have been affected by any of the content in the series please contact your healthcare professional or the ISCC helpline on + 353 1 531 2983 available every Monday, Wednesday and Friday between 9.30am – 12.30pm.  Gutcast is a partnership between the Irish Society of Crohn’s and Colitis and Janssen Sciences Ireland UC. For more information please go to ISCC.ie  The views, information or opinions expressed during the Gutcast podcast series are solely those of the individuals involved and do not represent those of the Irish Society for Colitis and Crohn’s Disease or Janssen Sciences Ireland UC. The primary purpose of this podcast series is to educate and inform and is not a substitute for professional diagnosis or treatment. This podcast is supported by funding from Janssen Sciences Ireland UC. 

Having Crohn’s or ulcerative colitis doesn’t just affect the person living with it, it can hugely impact the lives of their family and loved ones too. In this opening episode of the second season of Gutcast, we focus on the challenges faced by people with IBD and the valuable things family and friends can do to help them. It will also detail the information and support services available. Rachel Drury and her fiancé Des share their emotional story for the first time and how a life changing illness brought them closer together. If you have been affected by any of the content in the series please contact your healthcare professional or the ISCC helpline on + 353 1 531 2983 available every Monday, Wednesday and Friday between 9.30am – 12.30pm.  Gutcast is a partnership between the Irish Society of Crohn’s and Colitis and Janssen Sciences Ireland UC. For more information please go to ISCC.ie  The views, information or opinions expressed during the Gutcast podcast series are solely those of the individuals involved and do not represent those of the Irish Society for Colitis and Crohn’s Disease or Janssen Sciences Ireland UC. The primary purpose of this podcast series is to educate and inform and is not a substitute for professional diagnosis or treatment. This podcast is supported by funding from Janssen Sciences Ireland UC.