101: Creative for a Cure, featuring 12 year old Cassin

May is Celiac Disease Awareness month and joining us on Celiac Straight Talk is Fallon - the CEO and Founder of No Wine Left Behind. No Wine Left Behind is an events based company out of NYC that is hosting a Celiac Safe wine retreat in Santorini, Greece. Tune in to hear Fallon's journey so far with having Celiac disease and how she crafts community, trust, and safety for these events, retreats, and experiences. Listen anywhere you find your podcasts! You can find more information and tickets at www.knowwineleftbehind.com Learn more about Celiac disease and the research Beyond Celiac is funding at BeyondCeliac.org 💚

May is Celiac Disease Awareness month and joining us for an inspiring talk about supporting her younger brother with celiac disease is 12 year old Cassin. Hear how she arms herself with knowledge to help lessen the fears around living with celiac disease. Listen anywhere you find your podcasts! You can support Cassin's art and fundraising here: https://beyondceliac.funraise.org/fundraiser/cassin Learn more about celiac disease and the research Beyond Celiac is funding at BeyondCeliac.org 💚

March is Autoimmune Awareness Month, and we've compiled presentations from a collection of experts on autoimmunity to tie together how celiac disease research can help us unlock all kinds of autoimmune diseases.   Hear from Dr. Arnold Han, Dr. Iain Croall, and Dr. Sónia Gonçalves Pereira on their work studying autoimmune diseases, celiac disease, and the effect had on the body.  Listen anywhere you find your podcasts! Learn more about celiac disease and the research Beyond Celiac is funding at BeyondCeliac.org 💚

We spoke with Julie Kennedy, MPH, MEd, RDN, LDN about falling in love with food again after a celiac diagnosis or other medical diagnoses managed with a dietary restriction. Julie shares her celiac diagnosis story, and how, upon learning how difficult switching to a 100% gluten-free diet can be, she went back to school to pursue dietetics to help others fall in love with food again. Find Julie Kennedy at www.juliekennedynutrition.com/. Beyond Celiac Instagram Facebook TikTok YouTube

In our first Celiac Straight Talk episode of the year, Beyond Celiac Senior Director of Coalition and Patient Engagement Kate Avery chats with President of the International Society for the Study of Celiac Disease Dr. Bob Anderson about a satellite meeting ISSCD did in conjunction with the Tampere Celiac conference in 2025.  Kate and Dr. Anderson discuss progress being made in the field of celiac, and how research has helped us progress our understanding of celiac disease and autoimmunity in general.  Be sure to check us out on social media at @BeyondCeliac. Learn more and donate at BeyondCeliac.org today!

Telling someone you eat gluten-free can elicit a wide variety of responses, from sympathetic and accommodating to curious and confused, or even skeptical and derisive. Some conversations are tough to navigate, especially during the holidays, when many folks are reconnecting with family members or spending time with old and new friends. In this event, we offer tips on handling all these conversations.  So brew your favorite warm drink and settle in for a Town Hall with Beyond Celiac! Thanks to our partners at Takeda Pharmaceuticals for sponsoring this epiosde. You can find all episodes of Celiac Straight Talk anywhere you listen to podcasts and on our website at BeyondCeliac.org. Follow us on Instagram and TikTok at @BeyondCeliac.

Birthday parties, holidays with the family, celebratory team dinners after extracurriculars, or a simple gathering with friends: all can be fraught with tension when you're gluten-free. It's tough to relax and have fun when you're constantly worrying about getting sick or being the odd one out. As patients ourselves, Beyond Celiac staff gives you our top tips for not just managing but enjoying parties when you're gluten-free. This episode is possible because of support from DiGiorno!  You can find all episodes of Celiac Straight Talk anywhere you listen to podcasts and on our website at BeyondCeliac.org. Follow us on Instagram and TikTok at @BeyondCeliac.

In this episode of Celiac Straight Talk, Beyond Celiac Chief Scientific Officer Dr. Debra Silberg fact-checks celiac disease myths and misconceptions. She answers our questions about who can get celiac disease (answer: just about anyone!), as well as some unique symptoms that present in celiac disease, and whether or not you can grow out of it.    Thank you to Dr. Silberg for taking the time to answer our questions! Thank you so much to Takeda Pharmaceuticals for their continued support of our disease awareness campaign and research towards treatments for celiac disease.    Learn more about Beyond Celiac at beyondceliac.org! Find us on social media at @BeyondCeliac on all platforms. 

In this episode of Celiac Straight Talk, we are joined by Beyond Celiac Director of Scientific Affairs Amy Ratner, who kindly agreed to interview our guest, Dr. Ciaran Kelly of Beth Israel Deaconess Medical Center on his experience diagnosing celiac disease.  You can find all episodes of Celiac Straight Talk anywhere you listen to podcasts and on our website at BeyondCeliac.org. Thank you so much to Takeda Pharmaceuticals for sponsoring this episode of Celiac Straight Talk and their commitment to supporting disease awareness and celiac disease patients. 

Did you know that July is Disability Pride Month? One of our amazing Reach Beyond Celiac Ambassadors Ilana C. reached out to host a disability pride roundtable episode with myself and other Reach Beyond Celiac ambassadors Ella S. and Tara P. We had an amazing conversation about what it means to have celiac disease in a world designed for people who can eat gluten, and a bit of history and our thoughts on disability pride. Ilana also shares some stories of legal cases regarding celiac disease and the gluten-free diet. Listen to hear more! You can find all episodes of Celiac Straight Talk anywhere you listen to podcasts and on our website at BeyondCeliac.org. If you want to get involved with the Reach Beyond Celiac Ambassador program, email Valerie Kraft at [email protected]. Thanks so much for listening!