Special: How Citizen Scientists Are Revolutionizing Health

Interview with Misha Teplitskiy, Assistant Professor of Information at the University of Michigan. Part of Season 4 of Untold Health, all about meta-science. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit untoldhealth.substack.com

In this episode, we hear about how citizen science is changing the research landscape, as well as how it's improving the lives of patients. We also speak to Dana Lewis, creator of OpenAPS (The Open Artificial Pancreas System project), about the process of developing such an initiative from scratch.  This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit untoldhealth.substack.com

In this episode, we speak to Dr. Jennifer Carroll about how drug use and HIV are a core feature of defining citizenship in Ukraine (through the term Narkomania), and how these labels can be politicized and used as a tool to include and exclude certain members of the population in Ukrainian society. She is also the author of the book "Narkomania: Drugs, HIV and Citizenship in Ukraine". This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit untoldhealth.substack.com

Why do NGOs play such a big role in access to HIV care in Ukraine? In this episode, we visit a clinic run by AHF in Kiev, a non-profit organisation spearheading the fight against the disease. We also talk to Andrew from the 'Dialog Hub', a safe space designed to teach youth about sexual education and other taboo topics such as drug use. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit untoldhealth.substack.com

Youth engagement in ensuring access to HIV treatment and reducing stigma in Ukraine is on the rise. In this episode, we speak to Dany Stolbunov from Teenergizer, a Kiev-based youth-led organization working to combat the HIV epidemic, about how Ukraine's youth population is leading the way. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit untoldhealth.substack.com

In the final episode of Season 2, we speak to two associates from Gehl Architects, Louise Kielgast and Julia Day, about how urban design affects our health as well as possible solutions to improving well-being in cities. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit untoldhealth.substack.com

In this episode, we speak to Lucienne Roberts of GraphicDesign&. In 2017, she opened an exhibition at the Wellcome Trust Collection documenting the role of graphic design in healthcare. But can graphic design design actually save your life? This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit untoldhealth.substack.com

In this episode, we discuss how architecture can contribute to the well-being of refugee and other vulnerable populations, and whether architecture is in fact a human right. We hear from Michele Di Marco from Emergency Architecture and Human Rights (EAHR) as well as Olga Popovic Larsen from the The Royal Danish Academy of Fine Arts (KADK). This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit untoldhealth.substack.com

Healthcare professionals and medications are the cornerstone of treatment; but something we don't often think about is how the hospital itself is affecting our health. In this episode, we explore the importance of hospital design, interview a hospital architect in Copenhagen, and reflect on how design principles can be tailored to specific patient sub-populations. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit untoldhealth.substack.com

Forced procedures, violated patient rights and a tricky legal system. In this insightful episode, we talk to Dr. Edward Premdas Pinto of the Center for Health and Social Justice in New Delhi, India, about accountability in the Indian healthcare sector. This is the final episode of Season 1 of the podcast, with the theme of 'Urban Health in India'. This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit untoldhealth.substack.com