Being an Active Agent in your Parkinson’s Journey

Dr. Sule Tinaz, Associate Professor of Neurology at the Yale School of Medicine in the Movement Disorders Division and Clinical Neurosciences Imaging Center, joins us to talk, you guessed it, exercise! We can never hear too much information and advocacy on exercise. Why? Because it’s the only known intervention that is known to alleviate the symptoms and slow the progression of the disease. Dr. Tinaz’s research is focused on developing personalized therapies that people can use to cope with their symptoms. She believes we are not passive receivers of our experiences but active agents, as we can actively impact how this disease progresses, particularly through exercise. Support the show

Allie Signorelli, Parkinson’s Advocate and person with young onset Parkinson’s (YOPD), shares her journey to diagnosis and how she’s positively impacting the Parkinson’s community at a national level. Allie is lending her voice through advocacy and harnessing her career experience, particularly in fundraising and event management, to serve our community and aid in research that’s related to both therapeutics as well as the cure that we are all hoping for! Allie is an inspiration to us all and our community is lucky to have her finding her “silver linings” as someone with YOPD. Support the show

Listen as Kristine Meldrum, Author and Founder & President of Parkinson’s Place Iowa, shares her expertise on all things Parkinson’s and exercise. Having paved the way for coaching Parkinson’s patients through evidence-based exercise programs, Kristine is in a league of her own when it comes to understanding precisely how those with the disease should exercise. Having recently published, Parkinson’s: How to Reduce the Symptoms through Exercise,  Kristine proclaims that people with PD “are athletes now” and need to view themselves as such. In her book, she lays out a thorough plan for people to follow as they create their own exercise regimen and, in this interview, she not only shares her candid insight but also the concrete research behind her specific recommendations. Kristine Meldrum is the author of Parkinson’s: How to Reduce Symptoms Through Exercise. She is an exercise professional working with Parkinson’s and other neurological clients. She is the founder and president of Parkinson’s Place, Iowa, and writes and speaks nationally at Parkinson’s Conferences with a presentation titled Parkinson’s: How to Exercise to Reduce Symptoms. Kristine has spent fifteen years in the fitness industry and worked a decade in the medical fitness industry before starting a Neuro Wellness Program in 2020. Kristine engages one-on-one with clients and teaches neuro-classes at Grand Living in West Des Moines, Iowa. She also consults with organizations to help start neuro-wellness programs. Contact her for speaking engagements, consulting and book sales at [email protected]. More information about the book can be found at parkinsonsbook.com. Support the show

Dr. Erin Presant, board-certified neurologist and certified culinary medical specialist, shares tangible insight on what it means to use food as medicine and how people with Parkinson’s should be employing this concept. She also dispels common misconceptions associated with our diet culture and how “getting back to basics” should be the thread that runs through our culinary choices. Support the show

Join us as we sit down with Dr. Catherine Crenshaw, Neuropsychologist and the Director of the Perioperative Cognitive Anesthesia Network (PeCAN) at the University of Florida, for another targeted discussion related to Parkinson’s Disease. Dr. Crenshaw conducts imperative work as it relates to cognitive changes for older adults who have elected surgery with anesthesia. Listen as Dr. Crenshaw clearly describes the gaps in care and ultimately a clear plan for including the brain as a vital organ pre and post surgery by utilizing cognitive assessments to ensure the best surgical outcomes and ultimately mitigate cognitive impairments following surgery. Support the show

Feeling so lucky to have had the chance to share our Power Over Parkinson's mission on NBC12 About Town Today with Candice Smith!Support the show

In this installment of our POP Profile Series we sit down with Dr. Alberto Espay, Professor, Director, and Endowed Chair of James and Joan Gardner Center for Parkinson’s Disease at the University of Cincinnati. Dr. Espay’s exuberance and passion for researching future therapies in Parkinson’s Disease is palpable and his novel approach in deconstructing barriers that accompany disease labels is profoundly impactful.Gardner Center for PD: https://www.uchealth.com/en/neuroscience-institute/parkinsons-disease-and-movement-disorders-centerCCBP: https://ccbpstudy.comSupport the show

Listen as Dr. Woodford Beech, Speech-Language Pathologist at the VCU Parkinson’s and Movement Disorder Center, a Parkinson’s Center of Excellence, shares an overview of speech and swallowing changes in Parkinson’s Disease. Dr. Beech gives practical guidance and advice on managing these potential challenges with a clear understanding of the critical balance between mitigating every symptom and ensuring quality-of-life (i.e. - one’s life outside Parkinson’s).Support the show

Listen as Leslie Davidson, author of Dancing in Small Spaces and person with Parkinson’s Disease, shares her inspiration behind her candid memoir on the life she built with her beloved husband, Lincoln. After receiving two devastating progressive diagnoses - she with Parkinson’s and he with Lewy Body Dementia - Leslie and Lincoln managed to not only utilize the strength in their relationship to process their respective diagnoses, but also harness the determination they needed as they managed the diseases through gratitude, humor, and, yes, a few tears. As you listen, you’ll be struck by Leslie’s calmness and acceptance, particularly around the passing of Lincoln, as well as how she now navigates Parkinson’s every day with grace, honesty, and acceptance. Support the show

Listen as Dr. Christine Esper, Associate Professor within the Department of Neurology at Emory University, shares many advancements within the Parkinson’s Disease space. Dr. Esper elaborates on her work within the Emory Brain Health Center’s 3D Motion Capture Lab and how both gait and tremor in Parkinson’s are being analyzed. Dr. Esper also shares how she’s been on the forefront of examining how DBS tele-programming can be successfully done. Finally, Parkinson’s Disease (along with MS) were the first two diseases selected by the CDC as part of their National Neurological Conditions Surveillance System (NNCSS) and Dr. Esper is on the team helping to track the epidemiology of neurological conditions. The aim of the NNCSS is to derive actionable and timely information to increase understanding of neurological conditions and catalyze research into causes, diagnosis, and treatment.Support the show