Community Involvement in Recovery with Schizophrenia

Hope is a crucial element that can significantly influence recovery for people with schizophrenia. It offers a pathway to resilience, empowerment, and a fulfilling life. However, schizophrenia is a disabling psychiatric condition that impacts 1% of people worldwide and ranks among the top ten global causes of disability. It can be difficult to remain hopeful with statistics like that. Host Rachel Star Withers, a diagnosed schizophrenic, and co-host Gabe Howard explore how to find hope with a schizophrenia diagnosis in this episode of Inside Schizophrenia.  Our guest, Christopher Grant, a Mi'gmaw filmmaker and artist who lives with schizophrenia, joins. His work has been exhibited in galleries, museums, and film festivals internationally. He is also known on TikTok as XO Rad Magical, where he has over 1.5 million followers. There, he has created schizophrenia simulators of what he experiences. To learn more -- or read the transcript -- please visit the official episode page. This episode is sponsored, in part, by Cornbread Hemp. They produced the first-ever USDA-certified organic CBD and THC gummies in America. Save 30% on your first order using code "Inside30." Christopher Grant is a Mi’gmaw filmmaker from Pabineau First Nation, New Brunswick. Inspired by the intense absurdity of life and death, Chris animates to express the humor and terror of existence. He has worked with the NFB’s Hothouse project, and his work has been exhibited at galleries, museums, and film festivals internationally. He is also known for his role on TikTok as XORADMAGICAL, where he creates art and answers questions relating to his experiences with schizophrenia in daily life. https://linktr.ee/xoradmagical Our host, Rachel Star Withers, creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators. To learn more about Rachel, please visit her website, RachelStarLive.com. Our co-host, Gabe Howard, is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author. Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

A common symptom of schizophrenia is anosognosia. Anosognosia is when a person is unaware that they have mental health condition or cannot perceive their condition accurately. It is believed that between 50% to 98% of people with schizophrenia have some form of anosognosia. Is anosognosia that common? Could it be confused with denial? And how can caregivers, family, and loved ones of people with schizophrenia help them gain awareness into the disorder? Host Rachel Star Withers, a diagnosed schizophrenic, and co-host Gabe Howard discuss the symptom of anosognosia and the popular way of treating it, the LEAP method, in this episode of Inside Schizophrenia.  Dr. Xavier Amador, creator of the LEAP method, world renowned clinical psychologist, and forensic expert joins in a conversation with Rachel on how caregivers and loved ones can use the LEAP method to help those in their lives struggling with schizophrenia symptoms. To learn more -- or read the transcript -- please visit the official episode page. This episode is sponsored, in part, by Cornbread Hemp. They produced the first-ever USDA-certified organic CBD and THC gummies in America. Save 30% on your first order using code "Inside30." Our guest, Dr. Xavier Amador, Founder and President of the LEAP Institute, is a world-renowned clinical psychologist, forensic expert, and author of 9 books, including the bestseller “I Am Not Sick I Don’t Need Help!” His extensive work, books, and clinical research in schizophrenia, bipolar disorder, and other mental illnesses have been translated into 30 languages. Additionally, he has authored over 130 peer-reviewed scientific papers and has contributed his expertise to over 80 death penalty cases. He is also a family caregiver of two close relatives with schizophrenia and another with bipolar disorder. Dr. Amador has trained tens of thousands of professionals and families on LEAP® (Listen-Empathize-Agree-Partner), a communication approach that creates trusting relationships with people who have serious mental illness and anosognosia. Our host, Rachel Star Withers, creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators. To learn more about Rachel, please visit her website, RachelStarLive.com. Our cohost, Gabe Howard, is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author. Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

Since the 1950s, the go-to treatment for schizophrenia has been oral antipsychotics. However, the landscape of schizophrenia treatment is changing and evolving, from advancements in antipsychotic long-acting injections to promising new treatments targeting muscarinic receptors to different types of neuromodulation stimuli of the brain, and even new theories connecting schizophrenia to other diseases like chronic traumatic encephalopathy (CTE). Host Rachel Star Withers, a diagnosed schizophrenic, and co-host Gabe Howard explore the innovations in schizophrenia treatment in this episode of “Inside Schizophrenia.” Psychiatric Mental Health Nurse Practitioner Desiree Matthews, who is at the forefront of helping people with treatment-resistant depression and schizophrenia, joins as a guest to discuss some of the current and upcoming treatments. To learn more -- or read the transcript -- please visit the official episode page. Our guest, Desiree Matthews, PMHNP-BC, is a board certified psychiatric nurse practitioner with over a decade of experience in mental health treatment, providing top-tier care for those living with severe and persistent mental illness. Desiree is the founder and clinical director of Different Mental Health Program (MHP), which provides a virtual, personalized, and holistic approach to mental health care for patients in North Carolina. In addition to clinical practice, she serves as a member of the steering committee for US Psych Congress and has served faculty appointments with US Psych Congress, Psych Elevate, NP Institute, and with NEI. She is passionate about bringing practical future-focused healthcare education to healthcare providers to improve their patient outcomes. Rachel Star Withers creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators. To learn more about Rachel, please visit her website, RachelStarLive.com. Our cohost, Gabe Howard, is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author. Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

“Schizoposting” is a growing internet trend that involves posting violent images, videos, text posts, and memes as if the creator is having a mental breakdown. It has become associated with hate movements, and people are using schizoposting as a medium to desensitize and encourage others to violent impulses and unpredictable behavior. In this episode of Inside Schizophrenia, host Rachel Star Withers, who has been diagnosed with schizophrenia, and co-host Gabe Howard explore the online world of schizoposting and how this affects people diagnosed with schizophrenia.  Guest Dr. Jim Johansson, who has been studying schizoposting and its growth on alt-right internet platforms, joins for a discussion. To learn more -- or read the transcript -- please visit the episode page. Our guest, Dr. Jim Johansson, is a nursing clinical instructor (mental health) and a registered nurse based in Edmonton, Alberta, Canada. His program of research focuses on the intersection of mental health and the criminal justice system. He has presented his work across Canada and internationally. Our host, Rachel Star Withers, creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators. To learn more about Rachel, please visit her website, RachelStarLive.com. Our cohost, Gabe Howard, is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author. Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

How do you refer to a person who has been diagnosed with schizophrenia? “Person with schizophrenia” or “schizophrenic?” What about other words, for example, “crazy, insane, psycho, or schizo?” The words we use carry meaning and stigma but also information and identity. Hosts Rachel Star Withers and Gabe Howard explore person-first language versus condition-first language when discussing people with schizophrenia. NAMI’s (National Alliance on Mental Illness) chief medical officer, Dr. Ken Duckworth, joins to introduce a schizophrenia and psychosis lexicon guide to assist in conversations about schizophrenia. Our guest, Ken Duckworth’s, journey into psychiatry started when he was a boy growing up with a dad who experienced severe bipolar disorder. His father was loving, kind, and periodically quite ill, hospitalized for months at a time. Ken became a psychiatrist, in part, to help his father. He serves as the chief medical officer for NAMI and feels fortunate to be a part of this community. Ken recently authored NAMI’s first book, “You Are Not Alone: The NAMI Guide to Navigating Mental Health ― With Advice from Experts and Wisdom from Real People and Families.” Written with authority and compassion, the book is an essential resource for people and families seeking expert guidance on diagnosis, treatment and recovery. It features inspiring true stories from real people in their own words. Ken is double-board certified in adult and child/adolescent psychiatry and has completed a forensic psychiatry fellowship. Schizophrenia & Psychosis Guide: Care, Advocacy, Engagement: https://www.nami.org/Support-Education/Publications-Reports/Guides/Schizophrenia-Psychosis-Guide-Care-Advocacy-Engagement/ Rachel Star Withers creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators. To learn more about Rachel, please visit her website, RachelStarLive.com. Gabe Howard is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author. Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

People with schizophrenia are at a greater risk of developing type 2 diabetes than the general population. Diabetes is seen in 1 in 5 people with schizophrenia. Metabolic syndrome occurs in 1 in 3 people with schizophrenia. What is causing these physical illnesses in people with schizophrenia? Is this just due to our lifestyle factors? How significant a role does medication for schizophrenia play in developing these illnesses? And how can we manage to stay physically healthy with schizophrenia? Hosts Rachel Star Withers and Gabe Howard share their struggles with weight issues and connections to mental disorders. Guest Fran Hinson, a registered nurse, personal trainer, and behavior modification specialist, joins us. She works with special populations to help create small, sustainable habits inside and outside the gym. To learn more -- or read the transcript -- please visit the official episode page. Fran Hinson is passionate about helping people step into their new lives. She has worked in the health and fitness industry for 15 years as a registered nurse, an ACE-certified personal trainer, and a group fitness instructor. She holds a certification as a Behavior Modification Specialist. Fran uses these tools to help her clients make small, sustainable habits inside and outside the gym. You will not become healthier overnight. It happens one small, sustainable step after another.  “My style is assessment, small changes, execution, and repetition. I will work with you to make small changes to your daily routine, supporting your progress and keeping you accountable along the way.” — Fran Hinson Rachel Star Withers creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators. To learn more about Rachel, please visit her website, RachelStarLive.com. Gabe Howard is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author. Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

Treatment for schizophrenia is a tough journey for people with the illness but also for caregivers and loved ones. Due to cognitive symptoms, hallucinations, and delusions, a person with schizophrenia may not be able to make decisions on treatment or take care of themselves. When should caregivers step in to legally take control over a person with schizophrenia? What are the types of involuntary treatment? What are the other options available to people with schizophrenia and caregivers? Host Rachel Star Withers, a person with schizophrenia, and co-host Gabe Howard discuss involuntary treatment options in schizophrenia and the moral issues around forcing treatment on a person.  Guest Nicole Drapeau Gillen joins the discussion. Nicole was an IT executive and chief marketing officer turned caregiver and the author of “Schizophrenia & Related Disorders: A Handbook for Caregivers.” Nicole recognized that caregivers like herself often find themselves thrust into this challenging, complex, and stressful situation with little guidance on how to help a loved one with a serious mental illness. In this episode, Rachel speaks about psychiatric advance directives. You can find more information at the National Resource Center on Psychiatric Advance Directives at www.NRC-PAD.org. To learn more -- or read the transcript -- please visit the official episode page. Our guest, Nicole Drapeau Gillen, is a caregiver and the author of “Schizophrenia & Related Disorders: A Handbook for Caregivers.” Nicole began her journey as a caregiver in this world of schizophrenia in 2020 when her daughter became sick. After thrashing about for a few years, finding herself frustrated and desperate for information, she wrote the book on caregiving for someone with a serious mental illness. In her book, “Schizophrenia & Related Disorders: A Handbook for Caregivers,” Nicole addresses a myriad of issues caregivers face, including: • From the Beginning of the Journey: Treatment — medication primer, treatment primer, etc.; hospitals, case managers, and more; and doctors (working with, talking to, finding) • Ongoing: Communication, definitions, family and friends; support groups — for yourself and your loved one; and creating your ongoing paper trail • Could Happen Anytime: Housing/homelessness; navigating jail and police; and crisis — suicidal ideation, arrests, run away, etc. • Getting The Right Support Setup: Legal — advanced directives; legal — power of attorney, conservatorship, guardianship; and financial — SSI, SSDI, other government services • Long-term issues: Budgeting — estate planning, trusts and letter of intent; and transition to self support for your loved one • And so much more! As a caregiver, our journey is ever-evolving and fluid. No sooner do we get our loved one on a good path, then things take another twist and turn. This book aims to give you the fundamentals on how to help your loved one no matter where they are on their road to recovery. With clear steps and compassionate insights, you'll find a lifeline in your caregiving journey. https://schizophrenia-caregiver.com/ Schizophrenia & Related Disorders: A Handbook for Caregivers Rachel Star Withers creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators. To learn more about Rachel, please visit her website, RachelStarLive.comm. Learn more about your ad choices. Visit megaphone.fm/adchoices

People with schizophrenia have a 10% rate of suicide compared with the general population population’s 1.3% rate of suicide. Suicide is the biggest reason for the decreased life expectancy of people with schizophrenia. Around 40–79% of people with schizophrenia have reported having suicidal thoughts. Why is the rate of suicide higher among people with schizophrenia? Are there specific risk factors that have been identified for our population? And most important, how can we prevent suicide and keep going? Host Rachel Star Withers, who has schizophrenia, and co-host Gabe Howard discuss suicide in relation to schizophrenia in this episode of Inside Schizophrenia. Rachel shares her chronic struggles with the desire to end her life and how she has learned to keep going. Guest Tim “The Sack Man” from SackLifeOfficial joins to share his journey of finding an interesting way to cope with his depression and suicidal ideation through punching bag training. He now travels the country in a VW bus, providing free training for communities. A warning about this episode of Inside Schizophrenia. It involves a frank discussion about the topic of suicide. To learn more -- or read the transcript -- visit the official episode page. Today's guest, "Tim “The Sack Man” from www.sacklifeofficial.com: My name is Tim The Sack Man, and punching bag training has allowed me to overcome clinical depression and suicidal ideation, come off medication, and out of therapy with approval from my doctors. I travel the country in a VW Bus with a punching bag attached, providing free training for communities, and I host a free virtual class every day. I donate a portion of the profits to The National Alliance on Mental Illness. I would like to create free public-access punching bags around the world. By following @sacklifeofficial, together we can leverage our numbers to advertising companies so the ads you see will fund free mental health care for all. Our host, Rachel Star Withers, creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators. To learn more about Rachel, please visit her website, RachelStarLive.comm. Our co-host, Gabe Howard, is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author. Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

There is a huge gap in how people with schizophrenia are expected to recover and then integrate back into society. Many of us are in active treatment and managing symptoms. Now what? How do we function in life? How do we fit into society? We all want friends, to have a purpose, to belong. These desires fall under community involvement. Integration into the community is recognized as an important component of recovery for those with severe mental illness. It is also one of our biggest challenges. Hosts Rachel Star Withers and Gabe Howard explore different programs all over the world that work to assist people with schizophrenia to integrate into their local communities. Faydra Aldridge, CEO of the British Columbia Schizophrenia Society and host of their podcast, “Look Again: Mental Illness Re-Examined,” joins and shares the programs and goals of the BCSS. To learn more -- or read the transcript -- please visit the official episode page. Our guest, Faydra Aldridge’s career has spanned over twenty years in the fields of communications, stakeholder relations, and project management in both the private and public sectors. Before joining the BC Schizophrenia Society (BCSS) as the Chief Executive Officer in 2019, Faydra held a leadership role with one of the largest health research institutes in Canada where she oversaw the Stakeholder Relations portfolio. She has experience as a CBC Morning Show Producer and has held executive positions with national and international community health organizations. Faydra draws on this experience in her role as a host of the BCSS podcast “Look Again: Mental Illness Re-Examined.” She is honored to work with such a dedicated team devoted to increasing awareness about serious mental illness and supporting families across BC. About the “Look Again: Mental Illness Re-Examined" Podcast: Navigating and understanding serious mental illnesses can be complex — both for individuals living with the illness as well as their loved ones and community. Hearing firsthand stories can bring comfort in knowing we aren’t alone.  “Look Again: Mental Illness Re-Examined” is a resource to help expand your understanding of the many dimensions of mental illness — and you can go listen to the latest season right now!  This show covers it all. It dives deep into the 'big questions' that families can face during different stages of the mental illness journey, from recognizing initial symptoms to the pursuit of a diagnosis and the search for effective treatment. It shares personal stories from individuals living ‘close’ to schizophrenia or other serious mental illnesses, as well as insights from experienced researchers and medical professionals across the globe. Recent episodes explore topics like social media's influence on mental illness stigma, first-episode psychosis intervention, using virtual reality to treat psychosis, the untold challenges of mental illness care, and tons more! Learn more about serious mental illness - check out “Look Again: Mental Illness Re-Examined,” an original podcast from the BC Schizophrenia Society, available on your favorite podcast app. Our host, Rachel Star Withers, creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators. To learn more about Rachel, please visit her website, RachelStarLive.com. Learn more about your ad choices. Visit megaphone.fm/adchoices

Impulsive thoughts to harm yourself or others, confusing delusional thoughts, thoughts commanding you to do things — all of these are terrifying to experience. A breakdown in the thought process is a hallmark of schizophrenia. When does an intrusive thought become delusional and something a person might act upon? If a person has disturbing violent thoughts, are they dangerous?  Host Rachel Star Withers, who has schizophrenia, shares her personal struggles with disturbing, intrusive, violent thoughts. Rachel is joined by guest Kassie Love, who is a marriage and family therapist specializing in working with people having unusual thoughts or experiences. To learn more -- or read the transcript -- please visit the official episode page. Guest Bio & Inside Schizophrenia Podcast Hosts Therapist Kassie Love, MMFT/MPH Hi there! My name is Kassie Love. In my line of work as a mental health provider, I’ve come to understand that what most people really want is to be heard and supported. Nobody wants to feel like they’re being judged or criticized, especially when they open up in therapy. My patients often tell me they appreciate my compassionate and relatable approach, which they find both valuable and effective. Learn more at www.kassielove.com. Rachel Star Withers creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators. To learn more about Rachel, please visit her website, RachelStarLive.comm. Gabe Howard is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author. Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com. Learn more about your ad choices. Visit megaphone.fm/adchoices