Timothy Syndrome Alliance (TSA) - Part 2

In this episode, the charity's Chair, Val Evans, tells Emma Shepherd all about the community they support, and how the Group has evolved since its inception in 1987. Val also shares their plans for the future, and how funding makes a such a positive difference to those they support.chichesterdownsyndrome.org.uk/lander

Hilary Bartle and Jason Halliwell tell Emma Shepherd how tragedy and outrage mobilised a local community, resulting in the formation of the charity Stonepillow. Stonepillow empowers homeless people to transform their lives. Since its inception in 1989, they have helped hundreds of people make positive changes, supporting thousands of people in West Sussex to restart their lives, with independence, dignity and confidence restored. Charity website: www.stonepillow.org.uk

Sophie Muir, Founder, Chair and all-round Super Woman talks to Jo Edwards about Timothy Syndrome; what it is, how it affects the lives of children and their families, and why spreading awareness is crucial to improving diagnosis, treatment and care. TSA's vision is a world where shared knowledge and understanding lead to a cure for everyone with a CACNA1C genetic variant. Their mission is to improve the diagnosis, treatment and care of individuals with CACNA1C-related disorders, including Timothy Syndrome and LongQT8, and to support the families and carers of those diagnosed. Charity website: www.timothysyndrome.org Recommended viewing: Connections video: Here

In part 2, Sophie Muir tells Jo Edwards why funding more research is crucial to improving diagnosis, treatment and care. Charity website: www.timothysyndrome.org Recommended viewing: Connections video: ⁠Here

Jonathan Pascall reads a short and moving extract from Keelan, a young man whose life has been transformed by the Bournemouth Spear Trust. Find out more about the vital work of the Trust in the next episode.

The award-winning Spear Programme, an initiative from Resurgo, helps young people overcome the challenges they face and build vital skills for their career. Jonathan Pascall, Chair of Trustees, tells Jo Edwards how the programme provides life-changing support to young people in Bournemouth, and the long term success they achieve. www.spearbournemouth.org

In this episode, Jo Edwards is joined by Jo Fricker, Director of Clinical Services at Rowans Hospice to learn about the wonderful work of this essential charity which provides free hospice care for patients and their families living with life-limiting illnesses. www.rowanshospice.co.uk

In this episode, Isobel Money from St. James's Place shares her story of volunteering in her local community. She tells Jo Edwards why her particular focus is on Financial Education for young people, and the importance of making this accessible and fun!

Emma Shepherd is joined by Bianca Carr, CEO and co-founder of The Final Straw Foundation. This amazing south-coast based charity works with businesses and communities to improve the health of our oceans. A truly inspiring story! www.finalstrawfoundation.org

In this episode, Brad Ainsworth is joined by his good friend John Price, corporate and community fundraiser for this wonderful charity, My University Hospitals Sussex. The team is dedicated to improving patient care for 7 hospitals across Sussex by helping to fund their projects that fall outside NHS funding. www.myuhsussex.org