Our Childhood Losses

Welcome to the final episode of Spina Bifida Awareness Month!✨In this special Q&A episode, Zara and Faith answer listener questions submitted through Instagram. We cover the real, unfiltered sides of living with a disability, including:• Coping with disability burnout and escaping social media comparison loops• Navigating dating conversations and setting boundaries around personal questions• The chaotic transition from pediatric to adult medical care and fighting for your health• Finding your community online and locally• Family dynamics, sibling balance, and dispelling annoying public assumptions• The extreme costs of car adaptations and hoist grants• Asking for workplace accommodations with confidence• A touching final reflection on what we would tell our younger selvesIf you enjoyed this series, please leave us a review and follow us on Instagram!Follow us for more:📸 Instagram: @sitdownwithuspod @faith_hiles @zaraborji🎵 TikTok: @sitdownwithuspod#DisabilityAwareness #Alopecia #ZaraAndFaith #WheelchairLife #Inclusion #RepresentationMatters #Podcast #ZebedeeModels

Welcome to week three of Spina Bifida Awareness Month!In this episode, Faith and Zara dive deep into the unfiltered day-to-day experiences of living with a disability. From unpacking the stigma of using a wheelchair to navigating corporate office environments; Zara keeps it completely real. If you enjoyed this episode, please leave us a review and follow us on Instagram!Follow us for more:📸 Instagram: @sitdownwithuspod @faith_hiles @zaraborji🎵 TikTok: @sitdownwithuspod#DisabilityAwareness #Alopecia #ZaraAndFaith #WheelchairLife #Inclusion #RepresentationMatters #Podcast #ZebedeeModels

Welcome back to Sit Down With Us! In part two of our Spina Bifida Awareness Month series, Zara shares the unfiltered details of her personal medical journey. Born unexpectedly with Spina Bifida, Zara underwent 10 to 15 surgeries before she was three months old, was given an 18-year life expectancy, and proved medical predictions wrong at every turn.If you enjoyed this episode, please leave us a review and follow us on Instagram!Resources & Charities MentionedShine Charity UKFollow us for more:📸 Instagram: @sitdownwithuspod @faith_hiles @zaraborji🎵 TikTok: @sitdownwithuspod#DisabilityAwareness #Alopecia #ZaraAndFaith #WheelchairLife #Inclusion #RepresentationMatters #Podcast #ZebedeeModels

Welcome to October and the start of Spina Bifida Awareness Month! 🎙️✨In this kickoff episode, Zara takes center stage to explain Spina Bifida in everyday terms. From her diagnosis at birth at the L5 vertebra to living with a VP shunt and driving with hand controls, Zara breaks down what the condition actually means in day-to-day life. If you enjoyed this episode, please leave us a review and follow us on Instagram!Resources & Charities Mentioned:Shine Charity UKFollow us for more:📸 Instagram: @sitdownwithuspod @faith_hiles @zaraborji🎵 TikTok: @sitdownwithuspod#DisabilityAwareness #Alopecia #ZaraAndFaith #WheelchairLife #Inclusion #RepresentationMatters #Podcast #ZebedeeModels

It’s the final day of September, and we are wrapping up our Alopecia Awareness Month series! 🎙️✨In this episode, Faith and Zara reflect on the journey of finding support, navigating wig options, and building community. Faith breaks down how salon experiences have evolved through organizations like Novo Cabello, why Little Lady Locks is every 10-year-old girl's dream, and the surprising sensory reality of living without hair.Stay tuned as we transition into October for Spina Bifida Awareness Month with Zara!---------------------------------------------------🔗 Resources & Charities Mentioned:Alopecia UKLittle Lady LocksLittle Princess TrustNovo CabelloFollow us for more:📸 Instagram: @sitdownwithuspod @faith_hiles @zaraborji🎵 TikTok: @sitdownwithuspod#DisabilityAwareness #Alopecia #ZaraAndFaith #WheelchairLife #Inclusion #RepresentationMatters #Podcast #ZebedeeModels

Welcome to week four of Alopecia Awareness Month! 🎙️✨In this episode, Faith and Zara explore the reality of navigating life fully bald. Faith breaks down why she gave up wigs cold turkey, how she stopped fearing public stares, and why confidence isn't about being 100% happy every day, but about training yourself to set strong boundaries.If you enjoyed this episode, please leave us a review and follow us on Instagram!Resources & Charities Mentioned:Alopecia UKLittle Lady Locks Little Princess TrustFollow us for more:📸 Instagram: @sitdownwithuspod @faith_hiles @zaraborji🎵 TikTok: @sitdownwithuspod#DisabilityAwareness #Alopecia #ZaraAndFaith #WheelchairLife #Inclusion #RepresentationMatters #Podcast #ZebedeeModels

Welcome to week three of Alopecia Awareness Month! In this episode, Faith opens up about her complete shift from hiding her hair loss to shaving her head and learning to love her alopecia. From school uniform headband hacks to handling high school rumours and facing a dancer's worst nightmare during rehearsal, Faith shares the raw, emotional, and empowering moments that led her to take control of her identity. If you have questions or want to share your own story, leave a review or message us on Instagram! Follow us for more:📸 Instagram: @sitdownwithuspod @faith_hiles @zaraborji🎵 TikTok: @sitdownwithuspod#DisabilityAwareness #Alopecia #ZaraAndFaith #WheelchairLife #Inclusion #RepresentationMatters #Podcast #ZebedeeModels

Welcome to week two of Alopecia Awareness Month!This week, Faith is sharing the full story behind her diagnosis—including the shocking way a doctor broke the news to her when she was just 10 years old. We're discussing medical trauma, unhelpful GP appointments, navigating treatments like steroid creams, and the reality of being discharged from NHS dermatology while still living with active hair loss. If you have questions or want to share your own experience, leave us a review or DM us on Instagram!Resources & Charities MentionedAlopecia UKLittle Lady LocksLittle Princess Trust  Follow us for more:📸 Instagram: @sitdownwithuspod @faith_hiles @zaraborji🎵 TikTok: @sitdownwithuspod#DisabilityAwareness #Alopecia #ZaraAndFaith #WheelchairLife #Inclusion #RepresentationMatters #Podcast #ZebedeeModels

Welcome to September, Alopecia Awareness Month! 🎙️✨To kick off our 5-Wednesday theme, Faith is taking us back to the basics with Alopecia 101. We're opening up about what alopecia actually is, debunking big myths (like the idea that hair loss is always down to stress), and sharing the realities of navigating childhood hair loss, wigs, and autoimmune conditions.In this episode, we discuss:• The textbook definition and different types of hair loss (Areata, Totalis, Universalis, Androgenic)• Faith's personal story of discovering her first patch at 10 years old• UK & global hair loss statistics• The impact of social media and finding the online community• Incredible charities doing work for young girls and boys experiencing hair lossIf you have questions or topics you'd like us to cover during September, leave a review or send us a message on Instagram!---------------------------------------------------🔗 Resources & Charities Mentioned:• Alopecia UK • Little Lady Locks• Little Princess TrustFollow us for more:📸 Instagram: @sitdownwithuspod @faith_hiles @zaraborji🎵 TikTok: @sitdownwithuspod#DisabilityAwareness #Alopecia #ZaraAndFaith #WheelchairLife #Inclusion #RepresentationMatters #Podcast #ZebedeeModels

Follow us for more:📸 Instagram: @sitdownwithuspod @faith_hiles @zaraborji🎵 TikTok: @sitdownwithuspod#DisabilityAwareness #Alopecia #ZaraAndFaith #WheelchairLife #Inclusion #RepresentationMatters #Podcast #ZebedeeModels