Conquering Food Fears as a Cancer Patient

What does it mean to step into your comfort zone? Chris and Josh discuss how we match our talents and interests with what we do in the world. When we can do this, we find purpose, meaning, and fulfillment. Share your story or drop a line: [email protected] Like, subscribe, and ring our bell (figuratively or otherwise). Let’s AgeGayfully® together, with intention, humor, and each other. A gay senior, Christopher MacLellan, and an ally, Josh Wilson, are podcasting about life, love, liberty and travel. Don’t Say Gay?… Say AgingGayfully®! AgingGayfully® is about living life with dignity in an age-friendly society, regardless of orientation or economic status, because longevity is a justice issue. AgingGayfully® is about finding your voice as we age. We are all part of the aging process and have real connections in diversity. AgingGayfully® is a modern type of activism that supports the concept of belonging. AgingGayfully® is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

End of life option advocate Dan Diaz is sharing the story of his wife Brittany Maynard and her pursuit of a gentle death. Diagnosed at age 29 with a terminal brain tumor, Brittany chose to move 600 miles to a state that allowed for death with dignity, utilizing Medical Aid in Dying. In this powerful interview, Dan describes the impact of her life and death on compassionate death choices and legislation.   Since Brittany’s death in 2014, Medical Aid in Dying laws have expanded to eleven states in the U.S. Dan continues to tell their story, advocating for expansion of death with dignity laws to every state. We continue to learn from her experience and fierce determination to ensure the kind of death she wanted.  Connect with Dan Diaz on Facebook Read more about Brittany Maynard at thebrittanyfund.org Find more information about Medical Aid in Dying (MAID) at compassionandchoices.org You can find the Approaching Death Support Kit at bkbooks.com. Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: [email protected] More podcast episodes: The Heart of Hospice Podcast Book podcast host Helen Bauer to speak at your event or conference by sending an email to [email protected].

“In the marathon that is caregiving, the difference between exhaustion and endurance isn’t willpower, it’s the strength of the support network we build around us.” Sue Ryan Are you feeling overwhelmed by the responsibilities of caregiving? Do you find yourself thinking, “I don’t have time to get everything done.” or “I should be able to do this myself.”? You’re not alone, and there’s a better way forward. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned building a strong personal support network is crucial for sustainable caregiving. Studies show that dementia family caregivers face overwhelming emotional challenges. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comDonate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Full Show Notes: https://thecaregiversjourney.org/40-create-your-personal-support-network-five-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned 27. The Realities of Caregiver Self-Care https://thecaregiversjourney.com/the-realities-of-caregiver-self-care-four-essential-tips-alzheimers-and-other-dementias/32. Navigating the Caregiver Hiring Process https://thecaregiversjourney.com/32-navigating-the-caregiver-hiring-process-five-essential-tips-alzheimers-and-other-dementias/Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Assess Your Needs and Make a List Ask yourself: Do I have time to get everything done that needs to be done?Am I physically strong enough to handle all caregiving tasks?Do I find myself losing patience or empathy?Is my loved one struggling with activities of daily living that I can't manage alone? If you answered yes to any of these questions, it's time to ask for help.  Tip 2: Create a List of Who Can Help and What They Can Do Think about all the people who have offered to help or who might be willing to help. Map your list of potential helpers to your list of needs. If multiple people can help with a particular task, list them all—it's better not to rely on just one person. Tip 3: How to Effectively Ask for Help Recognize that some people want to help your care receiver, while others want to help you. Be specific and direct about what you need and why you need it.Remember that the people on your list have likely already offered to help or have shown willingness to support you.Adapt your approach based on the person you're asking.  Tip 4: When People Offer to Help, Say "Yes" Avoid these common traps: "It would be easier just to do it myself.""No one can care for my loved one like I can.""I should be able to do this myself.""I feel guilty—they have their own busy lives." Tip 5: Maintain Your Support Network and Adjust as Things Change Encouraging open communication with your support team membersBeing proactive about finding new support team members when neededChecking in regularly with your helpers to keep them informed and engagedWatching for signs of burnout in your helpers—they may experience caregiver fatigue tooAddressing inflection points in your loved one's care needs Read More in This Blog https://sueryansolutions.medium.com/36-building-your-personal-caregiving-support-network-9f9639e9ae87

In this heartfelt (and hilariously off-track) episode, Carrie is joined once again by her husband, Gavin, for an honest conversation about marriage, recovery, and the wild ride of caregiving—especially when your spouse has ADD. Despite Gavin’s best attempts to derail the story with his signature tangents, Carrie keeps steering them back to one powerful moment: the day he faced his fear of eating. To start that journey, a speech therapist started him with a little container of applesauce. After surviving head and neck cancer and life with a feeding tube, food became a source of real fear and pain for Gavin. Together, they unpack what it took for him to face that fear—and what it was like for Carrie to witness that breakthrough as his partner and caregiver. It’s funny, raw, and deeply human—just like healing itself. #add #marriagecouple #cancertreatment #cancerrecovery #headandneckcancer #caregiving #caregivertips #lovestory #mentalhealth #burnout #burnoutrecovery

Patty Webster is no stranger to caregiving—she helped care for her mom at the end of her life and now supports her sister, who’s the primary caregiver for their dad. In this episode of the Happy Healthy Caregiver podcast, Patty shares how her personal experience fuels her passion for The Conversation Project, a movement helping families talk openly about end-of-life wishes. We chat about why these conversations matter, how to start them, and how they can bring families closer. It's real, relatable, and something every caregiver should hear. We also talk about how to not be a ‘swooper’ as a remote support caregiver, why it’s important to infuse fun in caregiving visits, and why grace is essential for all members of the care team. Show notes with product and resource links: https://bit.ly/HHCPod209 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW

I'm delighted to welcome back to the podcast Dr. Barry Jacobs, and equally excited to welcome his co author and wife, Dr. Julia Mayer. Dr. Barry Jacobs is a clinical psychologist, family therapist, author and principal at Health Management Associates, a national healthcare consulting firm. He's the author of the emotional Survival Guide for Caregivers, and has been a trusted voice for caregivers through his long running aarp.org advice column. Dr. Julia Mayer is a clinical psychologist with over three decades of experience supporting women in caregiver roles as well as those with troubled marriages and histories of sexual trauma. She's the author of the novel A Fleeting State of Mind, and co-host of the psychology and social justice podcast Shrinks on Third. Together, Barry and Julia have co authored several AARP titles, and now they're back with their latest collaboration, The AARP Caregiver Answer Book. This compassionate and practical guide is a must have for anyone navigating the caregiving journey. Today, we're discussing some of the topics in their book, covering common challenges in caregiving: breaking promises, dealing with guilt and burnout, the emotional realities of caregiving and so much more. TRANSCRIPT For more support and community, find us at Daughterhood

In this heartwarming episode, Jean Lee, AlzAuthors founder and author of Alzheimer’s Daughter, joins us to discuss her personal journey of caring for both of her parents after their simultaneous Alzheimer’s diagnosis. Jean shares how she journaled her family’s dementia journey, the emotional process of turning those notes into a memoir, and the discovery of her parents’ World War II love letters during the difficult process of moving them into memory care. The conversation covers crucial topics facing caregivers—navigating diagnoses, managing moves to different care facilities, supporting siblings at a distance, and confronting the emotions tied to sharing private family stories. Listeners will also hear about the importance of community, storytelling, and connecting with others who understand life on the dementia journey. Plus, don’t miss Jean’s poignant reading of her parents’ correspondence and practical tips for families facing similar challenges. What You’ll Hear In This Episode: Hear Jean’s personal story of caring for both parents, who were diagnosed with Alzheimer’s on the same day. Learn how her experience as a “hometown daughter” shaped her perspective on dementia and caregiving.Jean shares how a simple journal became an essential tool for tracking her parents’ symptoms, achieving an earlier diagnosis, and eventually forming the backbone of her memoir.Discover the emotional and logistical challenges of transitioning parents with dementia into assisted living and secure memory care, and hear practical advice on how to handle repeated moves.An honest discussion about the moment of diagnosis—how doctors communicate difficult news, and what families can do when left with more questions than answers.Jean recounts the touching discovery of her parents’ WWII love letters and how these preserved memories added richness and hope to her storytelling.Explore what keeps couples bonded through the trials of Alzheimer’s, and how caregivers can find strength in family history and shared memories.From note-taking systems to balancing a full-time career with caregiving, Jean offers actionable strategies for dementia caregivers. After the Podcast Purchase “Alzheimer’s Daughter” Read one of Jean’s many blog posts Listen to another podcast featuring Jean Lee Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know. We’ve got merch! Shop our Store

In today’s episode of A Time to Care: The Caregivers Podcast, we speak with Amy Chastain, author of How to Find God in the Caregiver’s Journey. Amy opens her heart and shares how her personal relationship with God was both tested and strengthened through her caregiving experience. She candidly describes a time when she felt unworthy and had to return to the foundations of her faith to rebuild from within. Amy emphasizes the vital importance of community, even when it feels incredibly vulnerable to admit we need help. She reminds us that healing is not a one-time event but a journey—a process filled with highs and lows, including moments of anger, doubt, and even blame toward God. But, as Amy beautifully puts it, “God already knows it all—and still loves us exactly as we are.” She encourages caregivers to begin simply: by praying without filters. Don’t try to tidy up your emotions. God won’t run from your pain, frustration, or sorrow. In fact, it’s in those raw and honest moments that He draws closest, offering strength and reassurance. Amy leaves us with a powerful message: caregiving is not just a role—it’s sacred. It’s holy work. And when we invite God into our caregiving journey, we not only care better for others, we also find the space to be cared for ourselves. Tune in to this deeply moving conversation and discover how spirituality and community can help anchor us in the storm. To contact Amy: Enduring Together: Strength for the Weary Caregiver https://a.co/d/gqtqNDq Caregivers | Encouragement from Amy Chastain

Have you ever felt overwhelmed because you don’t know what information you need, can’t find reliable sources, or feel frustrated by too much conflicting advice? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned having a step-by-step roadmap is crucial for navigating the beginning of your caregiving journey. We recently talked with Jenny Gay, licensed clinical social worker with Emory Integrated Memory Care, about the comprehensive 20-step caregiving journey roadmap guide Navigating Dementia Caregiving: Your Resource Roadmap for Every Stage. This podcast is bringing the first six essential steps to take immediately after diagnosis. Connect with us and share your tips: Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Full Show Notes Here In the Beginning - First Steps - Right after the diagnosis 1. Choose a palliative care organization. This will likely also serve as your hospice organization later in your journey. In your search engine, type ‘Palliative Care’ + ‘the name of your country’ or, in the US ‘the name of your state’. Schedule an initial consultation with more than one so you can compare. Educate yourself on what palliative care is: 27 minute The Caregiver’s Journey (TCJ) podcast: 42. When To Call In Palliative Care 2. Create an Advance Care Plan. Get your legal documents in order and do some initial end of life preplanning with your loved ones input: Contact your attorney or an elder law attorney NAELA.org. Listen to this podcast or read this blog on elder law attorneys: 32 minute TCJ podcast: 31. Elder Law Attorneys Alzheimer’s Association legal documents overview: Leverage this End of Life Planning Worksheet. 3. Understand the financial situation. Work with a financial advisor - especially those who focus on seniors. Elder law attorneys can also advise in this area. Alzheimer’s Association resources overview of financial planning 4. Find support groups. First and foremost for you. If possible, find a support group you can attend in person: The Alzheimer's Association support group finder has support groups for a variety of types of dementia. If your loved one is interested a support group: Dementia minds has online groups for people living with dementia. Many local senior centers have support groups for your loved one to increase socialization: In the US, go to your ‘countyname’.gov website and search for a senior center. The Alzheimer’s Association 24/7 helpline in the US: 1.800.272.3900. 5. Educate yourself on early caregiving journey topics. Listen to these two podcasts or read these two blogs. Memory Loss: 29 minute TCJ podcast: 2. Memory Loss Communication: 20 minute TCJ podcast: 3. Communication – in the Beginning 6. Investigate the US Medicare GUIDE program. Listen to this podcast or read this blog: 23 minute TCJ podcast: 39. Is the Medicare GUIDE program for you Understand if your loved one may be eligible: https://www.cms.gov/priorities/innovation/guide/faqs#ben-cgs. If you think you might be eligible, find a US Medicare GUIDE program provider near you. There may be several who cover your zip code so explore options. Go here to find a GUIDE program: Enter your state. Under models select ‘Guiding an Improved Dementia Experience (GUIDE) Model’. Click ‘Display selected’. You can use the plus and minus signs in the upper right corner to zoom in closer to your area. When you find the location you want, click on the blue dot and detailed contact information will show. The Three Stages of the Dementia Caregiving Journey 1. In the Beginning - Your loved one receives a diagnosis. 2. The Messy Middle - You begin asserting control; this is when it gets messy! 3. Later On - You are managing all aspects of their care. Full blog here

In this heartfelt and humorous episode of AgingGayfully®, Chris and Josh dive into one of the most pressing issues facing older adults today: loneliness. From near cardiac scares to surprise mixologist recommendations, they explore how aging bodies and changing social landscapes can quietly isolate us...and what we can do about it. With personal stories, laughter, and a few unexpected confessions (yes, colorblindness and condo paint are involved), they unpack research showing how social isolation increases risks of dementia, heart disease, and even early death—comparable to smoking 15 cigarettes a day. But don't worry, it's not all doom and gloom. If you're feeling a little adrift, or just wondering how to reconnect with purpose, this episode will offer comfort, insights, and probably a hug (eventually). Tune in to explore vulnerability, affection, introversion, and the healing power of being understood. Featuring: CDC-backed stats on isolation and aging Real talk on medical scares and emotional health The difference between solitude and loneliness Why asking for help is an act of strength And how touch, talk, and connection save lives Share your story or drop a line: [email protected] Like, subscribe, and ring our bell (figuratively or otherwise). Let’s AgeGayfully® together, with intention, humor, and each other. A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don’t Say Gay?… Say AgingGayfully®! AgingGayfully® is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue. AgingGayfully® is about finding your voice as we age. We are all part of the aging process and have real connections in diversity. AgingGayfully® is a modern type of activism that supports the concept of belonging. AgingGayfully® is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.