"You Only Get one Life...Find Joy" Finding Light in the Darkness of Living with HD with Kevin Bailey

*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.Follow Champions/External links:linktr.ee/championsforhdWebsiteFollow Shelby:https://www.shelbylentz.com/linktr.ee/shelby_lentzIn their discussion about Huntington's disease (HD) and personal experiences, Shelby and Charlotte touch on various topics, including their connection through social media and shared advocacy. They discuss managing anxiety, finding support, and coping mechanisms. The conversation covers HD testing, genetic diagnosis, and its impact on family dynamics. Balancing life choices and finances amidst uncertainty is also explored. They emphasize living in the present, gratitude, and the therapeutic value of music and exercise. Shelby and Charlotte highlight the significance of community, self-care, and supportive partners in navigating life with HD. Additionally, they address challenges like infertility, adoption, and the emotional toll of building a family in the context of HD. Overall, their dialogue underscores the importance of connection, resilience, and shared experiences in facing the complexities of HD.Support the show

*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you.In this conversation, Jenna Woodard shares her experience with Huntington's disease (HD) in her family. She discusses her first memory of HD and how she found out about her own diagnosis. Jenna also talks about the negative testing process she went through and the lack of support and information she received. She shares the challenges of living with a parent who has HD and the difficulties in convincing them to seek help. Lastly, she discusses the importance of sharing personal experiences and dealing with negativity. In this conversation, Shelby and Jenna discuss various topics related to living with Huntington's disease. They talk about dealing with insensitive comments and the importance of not engaging with negativity. They also share their experiences of being open about their condition and the support they have received from the HD community. The conversation touches on the challenges of starting a family when living with HD and the process of applying for in vitro fertilization. They also discuss mental health and coping strategies, emphasizing the importance of finding support and community.Follow Champions/External links:linktr.ee/championsforhdWebsiteFollow Shelby:https://www.shelbylentz.com/linktr.ee/shelby_lentzSupport the showSupport the show

*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.If you are interested in participating or would like to know more about this study, click here: https://www.championsforhd.org/research to schedule a time with Paige or email her at ([email protected])  Spotify Podcast Link: https://open.spotify.com/show/0UsVV0F...Apple Podcast Link: https://podcasts.apple.com/us/podcast...Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsfo...https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/Support the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I sit down Amy Abbott. Amy lost her husband, Jody, to Huntington's Disease. Jody was a musician and had a true love for music. Amy shares the dark moments her and her children had to go through behind the scenes as Jody's HD unfortunately progressed. She is sharing the good, the bad, and the ugly of caregiving. Amy is also our Champion for HD Caregiver for 2022. She was nominated and received the award last year.I hope you enjoy our conversation!Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Subscribe to Kevin's YouTube Channel:https://www.youtube.com/user/backonmyishFollow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the show Support the showSupport the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I sit down Kevin Bailey. Kevin is living with Huntington's Disease and lost his mother to it in a tragic way. Kevin was one of our first donations in 2018 when we became an official 501c3 nonprofit. It was an honor to be able to share his story on our show.I hope you enjoy our conversation!Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Subscribe to Kevin's YouTube Channel:https://www.youtube.com/user/backonmyishFollow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the show Support the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I sit down with Sarah and Brandon, a couple who are battling HD. Brandon was diagnosed with HD a few years back. They talk about the highs, the lows, and the importance of a strong foundation and partner in a relationship with HD.I hope you enjoy our conversation!Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the show (https://www.championsforhd.org/donate)Support the showSupport the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease.  Before editing, this was a 3 hour conversation! We had so much fun. We laughed, we cried, but most of all they were so open and vulnerable. JHD is an even rarer form of Huntington's--an already incredible rare disease. Any way that they can find to spread awareness: they do. They never stop fighting.  Londen and Autumn have an impressive 75,000+ viewers on their joint TikTok account where they speak about life with JHD and work to both educate and reform thought on JHD.I hope you enjoy our conversation. Follow Londen and Autumn:https://www.instagram.com/londenandautumn/ https://www.tiktok.com/@londenandautumn?lang=enFollow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/https://www.facebook.com/shelbylentzmusic/?ref=bookmarksSupport the show (https://www.championsforhd.org/donate)Support the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Samantha Peterson joins me to share living her life gene positive with Huntington's Disease: the highs and the lows. She shares how she fights everyday not only for herself, but her children. Listen to the episode to hear more about how Samantha is a Champion for HD!Order Brave Breanna:https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1Follow Samantha:https://www.instagram.com/samantha_juliannaa/Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/Support the show (https://www.championsforhd.org/donate)Support the show

Order Brave Breanna:https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1Brave Breanna Dutch: https://www.huntington.nl/webwinkel/voor-kinderen.htmlFollow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Tell Us Your Story: https://www.championsforhd.org/tell-us-your-storySocial Media Ambassador App: https://www.championsforhd.org/social-media-ambassadorAnnual Reports: https://www.championsforhd.org/annual-reportsFollow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/ Support the show (https://www.championsforhd.org/donate)Support the show

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.Today I am joined by Jessica who shares her tramautic childhood living with her mother, who suffered from HD, and how it effects her currently. She also shares her life living gene positive. Listen to Jessica's full episode to hear more about how she is a Champion for HD!Order Brave Breanna:https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1Follow Domonique:https://www.instagram.com/niqueclaire2/Follow Champions:https://www.championsforhd.org/https://www.instagram.com/championsforhd/https://www.facebook.com/championsforhd/Follow Shelby:https://www.instagram.com/shelby_lentz/https://www.shelbylentz.com/Support the show (https://www.championsforhd.org/donate)Support the show