Coeliac Disease Diagnosis: What They Don't Tell You

Send us Fan MailA Gluten Free Podcast Episode 228 My guest on today’s episode is the creator of The Macro Celiac, Kevin G. We’ll talk about life as a coeliac dad, being a father of two kids with coeliac disease and how Kevin has used his journey to help others in the community through his social media platforms. What we’ll cover: * How Kevin and I connected through TikTok * Kevin’s coeliac disease symptoms and eventual diagnosis * Both of Kevin’s son’s coeliac disease symptoms and diagnoses * Transition to gluten free life for Kevin and his kids * Impact on Kevin’s partner and her ongoing support since his coeliac disease diagnosis * How Kevin’s wife advocates for him * Anxiety around dining out * The importance of advocating for yourself in your own coeliac disease and gluten free journey * The mental load of dealing with coeliac disease for both Kevin and his kids * How and why Kevin started the Macro Celiac on TikTok and Instagram * Kevin’s approach to fitness and health while following a gluten free diet * Healing process varying amongst every individual with coeliac disease * Kevin’s favourite gluten free treats right now * Experience filming Gluten Is A Joke documentary * The male roundtable discussion on Gluten Is A Joke * Kevin’s son’s empathy coming out of a coeliac disease diagnosis * Where Kevin would like to see the biggest changes happen in the coeliac disease and gluten free space LinksFollow The Macro Celiac on Tiktok & Instagram Gluten Is A Joke documentary Join A Gluten Free Podcast Facebook GroupSign up to our newsletter ✉️ 📬 Stay connected:Instagram: @a.gffamilyEmail: [email protected] This podcast reflects personal experiences and is not medical advice. Please consult a qualified healthcare professional for individual guidance. Brazilian Tapioca Gluten Free Pancake Mix is here and they make awesome gluten free pancakes & waffles! Buy yours here 🥞Support the show

Send us Fan MailA Gluten Free Podcast Episode 228In today's episode I discuss what I wish all the health professionals told me when I was diagnosed with coeliac disease. I'll share my own coeliac disease journey, discuss what I've learned since my diagnosis in 2020 and expand on a recent Instagram post around this topic. What we'll cover: * My coeliac disease symptoms pre-diagnosis * All the testing I got done before testing for coeliac disease * How my coeliac disease diagnosis came about * Keeping a food journal of my symptoms * The lack of information and resources given upon my diagnosis * Why I created my Instagram carousel around what I wished they told me when I was diagnosed with coeliac disease * Why you shouldn't feel alone in your own coeliac disease and gluten free journey * Teaser of next week's guest episode LinksEpisode with Dr Kim Faulkner Hogg - When Gluten Isn't To Blame For Symptoms Join A Gluten Free Podcast Facebook Group📬 Stay connected:Instagram: @a.gffamilyEmail: [email protected] This podcast reflects personal experiences and is not medical advice. Please consult a qualified healthcare professional for individual guidance. Brazilian Tapioca Gluten Free Pancake Mix is here and they make awesome gluten free pancakes & waffles! Buy yours here 🥞Support the show

Send us Fan MailA Gluten Free Podcast Episode 227 My guest on today’s episode is founder of The Gluten Free Advocate and fellow coeliac podcaster, Ashley Iadanza. We’ll talk about both Ashley’s and my coeliac disease diagnoses, how Ashley works with Celiac Cruise, creating her podcast, her mission with The Gluten Free Advocate and share perspectives of gluten free life. What we’ll cover: * How Ashley started working with Celiac Cruise * Ashley’s relationship with our girls * Connections made on a Celiac Cruise * Ashley’s coeliac disease diagnosis following her brother’s diagnosis * My coeliac disease symptoms * Men and coeliac disease * Being gaslit by health professionals * Issue with men running our medical system and women being dismissed * Ashley’s experience with coeliac disease at school * How coeliac disease impacts my day to day life * How my coeliac disease has impacted my daughters and their empathy levels * Conversations about coeliac disease with friends and family * How my relationship with Bec changed since my coeliac disease diagnosis * How my coeliac disease diagnosis affected Bec * How coeliac disease impacts not only the individual diagnosed but the whole family * Why I started A Gluten Free Family * Ashley’s background and how Ashley started The Gluten Free Advocate * Ashley’s travels in Europe and finding blogs helpful * Ashley creating the blog Eat Explore Love * Ashley’s political campaigning in the US * How a recent Celiac Cruise in The Bahamas inspired Ashley with social media content * What the Celiac Cruise can offer those with coeliac disease and their family and friends Links Follow The Gluten Free Advocate on InstagramListen to The Gluten Free Advocate podcastSign up to The Gluten Free Advocate Substackhttps://celiaccruise.com/ Follow Celiac Cruise on Instagram, Facebook & TikTokJoin A Gluten Free Podcast Facebook Group📬 Stay connected:Instagram: @a.gffamilyEmail: [email protected] This podcast reflects personal experiences and is not medical advice. Please consult a qualified healthcare professional for individual guidance. Brazilian Tapioca Gluten Free Pancake Mix is here and they make awesome gluten free pancakes & waffles! Buy yours here 🥞Support the show

Send us Fan MailA Gluten Free Podcast Episode 226 My guest on today's episode is my wife, Bec. We'll talk about the experience of our recent sailing on Celiac Cruise as a family, the insights we gained and answer your questions about the cruise. Bec will also interview our two daughters about their experience. What we'll cover: * Posting about our experience on the Celiac Cruise and getting many questions * Our working capacity on Celiac Cruise * Answering questions about Celiac Cruise from our social media * Quality and availability of kid's food options on Celiac Cruise and throughout the ship in general * Celiac Cruise and Celiac Disease Foundation training various staff in the 100% gluten free bistro as well as throughout other cafes and restaurants on the ship * Perks of sailing with Celiac Cruise versus sailing with the normal cruise * Sea-sickness and how we managed it* How we prepared for sickness in general onboard - medications, etc * Meeting and chatting with podcast listeners who joined us on the cruise * Other things to do on the cruise ship itself * Celiac Cruise related events and activities * The convenience of being on a cruise versus other forms of travel * Kid's club experience * Quality of the staff on the Royal Caribbean * Celiac Cruise catering to other dietary requirements other than gluten free * The emotions of doing testimonials of the Celiac Cruise with guests* Bec interviewing our daughters about their experience of the Celiac Cruise * How booking with Celiac Cruise helps Celiac Disease Foundation * LinksOur Celiac Cruise Instagram reel https://celiaccruise.com/ Follow Celiac Cruise on Instagram, Facebook & TikTokJoin A Gluten Free Podcast Facebook Group📬 Stay connected:Instagram: @a.gffamilyEmail: [email protected] Brazilian Tapioca Gluten Free Pancake Mix is here and they make awesome gluten free pancakes & waffles! Buy yours here 🥞Support the show

Send us Fan MailA Gluten Free Podcast Episode 225 My guests on today’s episode are Pasta Di Casa Founder, Anthony Dionne & Quokka Pastry Founder, Nadja. We’ll talk to Anthony about his latest monthly event and where he’s focussing his efforts and with Nadja about her coeliac disease diagnosis and the move from Switzerland to Australia where she’s started Quokka Pastry to provide gluten free treats for the gluten free community. What we’ll cover:* Pasta Di Casa’s monthly events for 2026 * Gluten free menu items for the monthly events * Pasta Di Casa’s loyal following within the gluten free community * Collaboration between Pasta Di Casa & Quokka Pastry * How business is travelling for Pasta Di Casa & wholesale + education approach with various cafes and restaurants  * How Nadja & I met* Nadja’s coeliac disease symptoms and being in Switzerland at the time * Moving to Australia & Nadja’s coeliac disease symptoms ramping up * Nadja asking her GP for coeliac disease testing* Switzerland coeliac disease and gluten free awareness* Nadja finally having a coeliac disease diagnosis but struggling to adjust to gluten free life while at culinary school in Australia* Najda finding The Looping Whisk and other gluten free cookbooks to learn how to make gluten free recipes* How Nadja started Quokka Pastry while having a full time job * Working at markets and Quokka Pastry product range * Nadja experimenting with making gluten free bread * Quokka Pastry & Pasta Di Casa collab* Quokka Pastry looking for a shopfront in Sydney* Where Nadja would like to see changes in the coeliac and gluten free space Links https://www.quokkapastry.com/Follow Pasta Di Casa on Instagram & FacebookFollow Quokka Pastry on Instagram & FacebookOur reel of Pasta Di Casa & Quokka Pastry collab Join A Gluten Free Podcast Facebook Group📬 Stay connected: Instagram: @a.gffamilyEmail: [email protected] podcast reflects personal experiences and is not medical advice. Please consult a qualified healthcare professional for individual guidance. Brazilian Tapioca Gluten Free Pancake Mix is here and they make awesome gluten free pancakes & waffles! Buy yours here 🥞Support the show

Send us Fan MailA Gluten Free Podcast Episode 234My guests on today’s episode are the creators of the documentary Gluten Is A Joke, Robin Hofmann & Lisa Goldman. We’ll chat about the inspiration behind the documentary, the experience of filming and their hopes the film’s impact will have on creating more awareness of coeliac disease and the gluten free diet worldwide. What we’ll cover: * Introducing Robin & Lisa * Robin’s coeliac disease story & Lisa’s daughter’s coeliac diagnosis * Lisa’s daughter’s Behcet Disease diagnosis * Navigating coeliac disease in the US * Wheat starch and coeliac disease * Coeliac disease and the gluten free diet being laughed at and made fun of in society* Shifting coeliac disease and gluten free education from awareness to understanding * How the idea of the documentary came about and what it’s about* The process of working on the documentary - interviews with comedians, doctors, patients, psychologists, and media analysts* Process of having with US-based gluten free influencers together* Insights Robin & LIsa have both gained from creating this film* Different beliefs and approaches to coeliac disease and the gluten free diet * Unexpected occurrences during the making of the documentary * Robin & Lisa’s hopes for the film * Common themes appearing throughout the interviews during the filming of the documentary * How listeners can support the film & estimated release date Links Follow Gluten Is A Joke on Facebook, Instagram & TiktokEmail Gluten Is A Joke: [email protected] Join A Gluten Free Podcast Facebook Group📬 Stay connected:Instagram: @a.gffamilyEmail: [email protected] podcast reflects personal experiences and is not medical advice. Please consult a qualified healthcare professional for individual guidance. Brazilian Tapioca Gluten Free Pancake Mix is here and they make awesome gluten free pancakes & waffles! Buy yours here 🥞Support the show

Send us Fan MailA Gluten Free Podcast Episode 223My guest on today's episode is Celiac Disease Foundation Education & Community Engagement Coordinator, Emma Kowzun. We'll discuss Emma's own coeliac disease diagnosis, her role at the Celiac Disease Foundation and where the foundation is focussing their efforts. What we'll cover: * Emma's coeliac disease diagnosis journey * How Emma's coeliac disease symptoms impacted her teenage life * Medical professionals dismissing Emma's signs and symptoms of coeliac disease * How sports specialist doctor found Emma's coeliac disease * Emma's transition to gluten free life during teenage years * How Emma started working at Celiac Disease Foundation * What Celiac Disease Foundation are currently working on * Emma's views on the potential for national population screening of coeliac disease and a universal diagnosis process * Emma's role at the Celiac Disease Foundation * Educating dietitians, doctors, gastroenterologists, schools, college, university and law-making systems around coeliac disease * How Emma & Celiac Disease Foundation work with Celiac Cruise * Training cruise kitchen and serving staff, bar staff, cafes and restaurants and childcare teams onboard around coeliac disease and gluten free protocols * Celiac Cruise staff's positive response to coeliac disease training and interaction with coeliac guests * Emma's strict and detailed process of double checking all ingredients and products are all 100% gluten free * The emotional and overwhelming experience of the Celiac Cruise * Emma's view on focussing priorities on educating healthcare, schools and education systems and food service workers around coeliac disease Linkshttps://celiac.org/Follow Celiac Disease Foundation on Instagram Follow Celiac Disease Foundation on Facebook Emma Kowzun on InstagramThe Celiac CruiseJoin A Gluten Free Podcast Facebook Group📬 Stay connected: Instagram: @a.gffamilyEmail: [email protected] podcast reflects personal experiences and is not medical advice. Please consult a qualified healthcare professional for individual guidance. Brazilian Tapioca Gluten Free Pancake Mix is here and they make awesome gluten free pancakes & waffles! Buy yours here 🥞Support the show

Send us Fan MailA Gluten Free Podcast Episode 222Today's episode is a live keynote presentation from Celiac Disease Foundation Education & Community Engagement Coordinator Emma Kowzun live onboard the Australian sailing of the Celiac Cruise. In the talk Emma discusses how we can help chart the course and make a difference in the coeliac disease and gluten free community. Emma shares the latest research and developments at the Celiac Disease Foundation, a brief history of coeliac disease and how the Celiac Disease Foundation works with the Celiac Cruise. Topics covered: * Emma introducing herself and her role at the Celiac Disease Foundation * The difficulties of living with coeliac disease * Interacting with the audience * How coeliac disease and gluten free awareness has changed over time * Brief history of coeliac disease * Policies and law changes in the US for coeliac disease and gluten free labelling * Food labels for gluten in Australia and New Zealand* Current coeliac disease clinical trials and possible treatments for coeliac disease throughout the world * iCureCeliac - Patient Registry Makes Finding A Cure Possible* How people can support and advocate for coeliac disease * Food insecurity in the US and how the Celiac Disease Foundation and Celiac Cruise are helping LinksThe Celiac CruiseCeliac Disease FoundationiCureCeliac - Patient Registry Makes Finding A Cure PossibleJoin A Gluten Free Podcast Facebook GroupPhoto taken by @theglutenfreeadvocate📬 Stay connected: Instagram: @a.gffamilyEmail: [email protected] podcast reflects personal experiences and is not medical advice. Please consult a qualified healthcare professional for individual guidance. Brazilian Tapioca Gluten Free Pancake Mix is here and they make awesome gluten free pancakes & waffles! Buy yours here 🥞Support the show

Send us Fan MailA Gluten Free Podcast Episode 221 Today's episode is live from the Celiac Cruise with a keynote talk from myself and Melanie Persson. We discuss our diagnosis stories, our differing approaches to gluten free life and then we open up into a Q&A with guests. LinksThe Celiac Cruise Follow Mel Persson on Instagram  Join A Gluten Free Podcast Facebook Group Photo taken by @theglutenfreeadvocate📬 Stay connected: Instagram: @a.gffamilyEmail: [email protected] podcast reflects personal experiences and is not medical advice. Please consult a qualified healthcare professional for individual guidance. Brazilian Tapioca Gluten Free Pancake Mix is here and they make awesome gluten free pancakes & waffles! Buy yours here 🥞Support the show

Send us Fan MailA Gluten Free Podcast Episode 220Today's highlight is from my episode with Joanne Wynne, the founder of the Coeliac Connection & Author of the Ebook 'Surviving the First year of Childhood Coeliac Disease'. In the full episode we talk about Jo's daughter's coeliac disease diagnosis, how the diagnosis impacts the family as a whole and tips for parents navigating coeliac disease and gluten free life for their children. In this highlight Jo discusses an excerpt from her book around managing the emotional challenges of a coeliac disease diagnosis for her daughter. Listen to the full episode here Join A Gluten Free Podcast Facebook group here 📬 Stay connected: Instagram: @a.gffamilyEmail: [email protected] podcast reflects personal experiences and is not medical advice. Please consult a qualified healthcare professional for individual guidance. Brazilian Tapioca Gluten Free Pancake Mix is here and they make awesome gluten free pancakes & waffles! Buy yours here 🥞Support the show