How to Find Peace and Comfort in the Face of Death, with Dr. Jim deMaine
On this episode of WE Have Cancer, author and veteran physician Jim deMaine chats with Lee about facing death with peace and comfort. Dr. deMaine shares his knowledge on hospice and palliative care and the rights every patient should be informed on in regards to medical care at the end of their life. He also provides thoughtful advice for how patients and their family members can best prepare for their final days.
Guest Biography:
Dr. Jim deMaine is a pulmonary and critical care specialist passionate about educating folks about the options they face towards the end of their lives. He is the author of Facing Death: Finding Dignity, Hope and Healing at the End, in which he shares his wisdom and field experience to explore common questions and anxieties his patients have experienced in their final days. He does not shy away from conversations about the role of spirituality, leaving a moral legacy, cultural traditions, and even conflicts between patients and their doctors.
Table of Contents:
- Saying the Words "Death" and "Cancer"
At the start of the show, Lee asks why a pulmonary care doctor decided to write a book on death. When Dr. deMaine was training as a physician in the 1960’s, he says they were trained to avoid talking about death or even using the word “cancer,” and he knew he wanted to change that.
- A Patient's Rights at the End
How do practitioners let their patients know that they have the right to make determinations about the kind of care they’d like to have at the end of their lives, and how can their doctors inform them about technologies available to them? Dr. deMaine discusses the many rights and conversations patients can, and should, be having with their doctors about end-of-life care.
- How to Put Families More at Ease
Families feel better about conferences when the doctor listens more, allowing them to feel more understood, explains Dr. deMaine. He also talks about some touching notes and feedback he’s received over the years from patients and their families that have helped to teach him how best to comfort and inform loved ones.
- Leading the Conversation to Discuss Death
Lee asks, why is what Dr. deMaine does “out of the ordinary” compared to standard practices of physicians in general? He shares about an app created for doctors called Vital Talk that coaches doctors on how to listen and approach these kinds of discussions, rather than sweeping them under the rug. There’s even a COVID-specific part.
- Learn about Hospice Before Needing Hospice
Dr. deMaine says patients should be informed about hospice options prior to needing hospice care themselves. Often, he says, people wait too long to consider hospice. How can patients begin to think about that level of special care earlier on?
- Benefits of Hospice Care
More than 50% of cancer patients receive hospice care at the end of their lives, and the data shows that people that enter hospice care have longer lives. Dr. deMaine admits that entering into hospice care is “quite a shift,” and is a decision that should be carefully considered.
- Palliative Care vs. Hospice
What’s the difference between palliative care and
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