Brain Donation

We spoke to Sally Reynolds, PSPA Volunteer Coordinator for the Bereaved Carers Group and Social Worker, all about allowing yourself to grieve. With the nature of these conditions, we spoke about recognising grief, different types of grief, and ways to look after yourself and others as you go through the process.

We spoke to Lead Dietitian for Neurology, Rhiannon Hinstridge all about how diet and eating habits can change with PSP or CBD, information around tube feeding, different types of food to consider and more.

In this latest episode of the PSPA Podcast, we spoke with With Jade Donnelly, Specialist Physiotherapist and Ciara Baker, Clinical Specialist Neurological Practitioner on:Ways to spot changes in balance and coordinationPractical steps to reduce fallsEquipment that could support and more!

We spoke to Zubyda Azzam, who is a Psychotherapist at Rareminds, all about carers resilience. We discussed:Common challenges that families and carers faceWhat signs to look out for when carers resilience is being stretched Lots of practical ways to help your family members and resources you can access

We spoke to Peggy Newton, PSPA Helpline and Support Services Manager, all about the different kinds of financial support that is available for people living with PSP & CBD and how the Helpline can support you.

This podcast features a discussion between Helen Chapman, PSPA Communications Manager and Chloe Cripps, Speech and Language Therapist all about communicating whilst living with PSP & CBD. Chloe shared how she supports people with neurological conditions as their speech changes, the practicalities of attending an appointment, useful tips and more information around Voice Banking.

To help bust the myth around brain donation and explain more about it, and the difference valuable donations can make, we spoke to Rory Turkmen-Smith, who works at the Parkinson’s UK Brain Bank at Imperial College, London.   

Following a diagnosis, people commonly question how their day to day life will be affected. This can include how they might get about and whether they are still able to drive.Helpline Care Navigator, Dionne Ward, talks to us about what people should consider following a diagnosis, and help that maybe available in your community to help with transportation.

Eye problems are common symptoms for people living with PSP & CBD. What are these symptoms and how can you manage them at home and with the support of your local care team. Dominic Burdon, Consultant Orthoptist joins us today to answer some of these questions and give handy hints.

In episode three of the PSPA Podcast, we talk to Laura Douglas from Neuro Heroes. Laura  highlights what you might expect from any physiotherapy appointments you are referred for. And how movement, big and small, can help people who are living with PSP & CBD maintain functions and wellbeing.