S3 E5 – Going above and beyond

On this episode of My Child has Disabilities Now What, Sherrean and I continue our discuss some of the ongoing issues that arise in the later years. With Taylor now being 32 years old we talk about caregiver issues have happened to us. Juggling schedules between multiple caregivers, as well as training that is required for her 24 hours a day care.  While still managing the day to day medical and health issues, maintaining 2 household’s day to day requirements. We hope you get something from this episode that will help you with some of your challenges as your loved ones with disabilities get older.

On this episode of My Child has Disabilities Now What, Sherrean and I discuss some of the ongoing issues that arise in the later years. With Taylor now being 32 years old we talk about caregiver issues have happened to us. Juggling schedules between multiple caregivers, as well as training that is required for her 24 hours a day care.  While still managing the day to day medical and health issues, maintaining 2 household’s day to day requirements. We hope you get something from this episode that will help you with some of your challenges as your loved ones with disabilities get older.

On this episode we are talking with Christina Lovaas of TUCCI Learning Solutions. Where the agency provides the right solutions for the individual’s learning environment. For over 3 decades, TUCCI LEARNING SOLUTIONS, has been providing ABA direct service and coaching for educators and parents of birth to 3, school age children and adults with a diagnosis of autism and challenging behavioral difficulties in academic, home and community settings.  

On this episode we are talking with Jonathan Cobb, father of Sage, an 18 year old with cerebral palsy, depression, anxiety and related mental illnesses. Sage’s journey from almost dying at birth to being accepted at university is anything but a straight line and is a story of family, therapists, schools, friends and other organizations all going above and beyond. 

Meet Sarah Thomas, Nolan’s mother. Unique signs, new mom and meeting milestones, this mom leaned in and listened to the experts. A story of parental strength and perseverance that is absolute.

On this episode we are talking with Ken Prodger and Scott Gill from Special Needs Planning Group, a fiduciary, fee-based financial planning team. Their professional and compassionate team understands the unique challenges that families who have children with special needs face, and they are committed to helping their clients achieve their financial goals while ensuring the long-term financial security of their children.

Here is the conclusion of “The Siblings Perspective”. With Mayah Gallego younger sister to twin Autistic brothers and our son Graydon Carr, 3 years older than our daughter Taylor. We hope you get some great information and new perspectives listening to both our guest.

When we were planning this episode we both felt strongly this would be a lot of great information regarding a siblings perspectives for a family with a member having a disability. Our first guest is Mayah Gallego younger sister to twin Autistic brothers. Our second is Graydon Carr our son, 3 years older than our daughter Taylor. We hope you get some great information and new perspectives listening to both our guest.

Melissa Gagne is an attorney specializing in special education and has been helping parents navigate the special education system for decades.  She shares her expertise, knowledge and experience as a mom to a son with profound autism. Melissa talks about the launch of “IEP Slay”, an exciting online affordable subscription-based service for parents to access resources, guidance and help preparing for those inevitable IEP(Individualized Education Program) meetings.

On this episode we are talking with Molly Turner founder of Skills of Life Café, a mobile café in Santa Cruz, California, that provides employment opportunities for teens with special needs and offers teens and young adults with intellectual disabilities the opportunity to gain experience as well as employment by serving in the community.