The Art of Storytelling: Medical Ethics and the Stories We Don't Tell with Katie Engelhart
Katie Engelhart, a Pulitzer Prize-winning journalist and contributing writer at The New York Times Magazine, does something similar. She finds the stories medicine doesn't tell. The ethical dilemmas playing out in ICUs and hospital rooms that the public never hears about. Medical aid in dying for eating disorders. Covert consciousness in patients diagnosed as vegetative. Dementia patients timing their own deaths before losing capacity to consent.
Her work challenges the way medicine operates. Not the science. But the values, the judgments, the institutional culture that shapes standards of care without public input. She spends months, sometimes years, with patients and families navigating impossible decisions. And she lets the stories stay messy because real life doesn't fit tidy narratives.
Mark and Katie talk about how she finds the people whose stories need to be told, how she earns trust over months of conversations, and why she has respect for doctors and medical science but not deference to the way things are in medicine.
If you've ever wondered how medical journalism actually works, why certain stories get told and others don't, or what happens when families navigate end-of-life decisions without the ethical support they need, this conversation will give you a behind-the-scenes look at one of the best medical writers working today.
1. Standards of medical care are shaped by value judgments, ethics, institutional culture, and history — not just science and mathematics. The public is often unaware of why policies exist or how they came to be.
2. Katie's reporting process involves months (sometimes years) of conversations, thousands of pages of medical records, and cross-referencing with family members and experts to verify every detail.
3. Covert consciousness research shows that about 25 percent of patients presumed to be in vegetative states are actually aware and can perform tasks like imagining playing tennis, but families making decisions rarely have access to these tests.
4. What "better" or "recovery" means to an ICU physician is often very different from what it means to a family member — even medical terms are shaped by values, not just facts.
5. Katie finds people to profile by spending months building trust with providers, writing letters they can share with patients, and navigating institutional barriers that either support or block her work.
6. The healthcare system lacks ethical support for patients making major moral decisions, leaving millions of people to face these choices alone even though their neighbors are going through the same thing.
7. Patients will do their own research, and clinicians need to accept that and expand conversations to include it rather than dismissing skepticism as uninformed or pseudoscience.
8. Choices that seem unfathomable from the outside become completely understandable when you spend time with the people making them and walk through their reasoning step by step.
04:48 – Why Katie Is Drawn to Medical Writing
08:24 – Telling Robert Munch's Dementia Story Without Making It About Dementia
15:22 – Covert Consciousness: A Quarter of Vegetative Patients Are Actually Aware
19:32 – The Ego and Humility Problem in Medicine
22:56 – What "Better" Means to Doctors vs. Families
28:17 – Finding the People Whose Stories Need to Be Told
32:05 – How Katie Vets Sources and Verifies Information
37:38 – The Existential Crisis of Our Own Mortality
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