Entry #105: New Discoveries & Updates

In this week's entry, I am excited to share recently discovered resources for individuals with disabilities. Specifically, I discuss my experience as I continue to learn about programs and grants available for athletes with physical and cognitive impairments. Also, I provide updates about next week's baseline 1 & 2 appointments, surgery/post-op appointments, and my plan for balancing it all other aspects of life along the way! As always, thank you so much for your love and support as I navigate this clinical trial journey. 📧 [email protected]

In this week’s entry, I share the details of my book release, our recent Achilles SV interest meeting, and new community connections for our growing chapter! Most excitingly, however, I have an update regarding the status of treatment for my second eye in the LCA5 clinical trial. The call came last week, and I am ready to share the joyful news with the CTL podcast listeners! As always, thank you all so much for your love and support throughout this journey! 👁️🌈 🙏🏻 Joyfully and Faithfully Fit: Thankful Thirteen link: https://a.co/d/06buH4G9

In this week's entry, I share the details related to the release of my newest book, Joyfully and Faithfully Fit: Thankful Thirteen. Further, I share the exciting announcement of release date this week (October 23rd) available in both paperback and Kindle ebook! All book sale proceeds will directly benefit the Achilles DMV region! Lastly, listeners will learn the struggles and successes we are experiencing as we continue to grow the Achilles Shenandoah Valley chapter in our community. As always, thank you all so much for supporting the CTL podcast journal! We are grateful for you! Questions or comments? Please reach out to [email protected]

In this week's entry, I share my experience as a blind runner in the 2026 Army Ten Miler on 10/11. Listeners will learn about my struggles and successes during the race, and the three motivators which carried me to the finish line. A huge thank you goes to Achilles DC for welcoming Lucas and I during this memorable event! Lastly, I provide a special announcement about the release date for my third book, Joyfully and Faithfully Fit: Thankful Thirteen! As always, thank you all so much for supporting the CTL podcast journal! Email: [email protected]

In this week's entry, I share my recent experiences with managing the stresses of life as a blind mom and wife. Specifically, I focus on the past two weeks of craziness which caused an eye-opening stress outbreak and several low vision related collisions. Additionally, my plan for stablishing a more balanced lifestyle along with strategies I am currently using to decrease the stresses of living with blindness. Listeners will have the opportunity to hear the vulnerabilities and daily struggles that I encounter while trying to navigate motherhood, marriage, and a career while living with a disability. As always, thank you all so much for supporting the CTL Podcast Journal! Questions and/or comments? Please reach out to [email protected]

In this week's entry, we celebrate the 100-entry milestone of the Chasing the Light Podcast Journal! I share my favorite highlights since I began to record back in 2023. Also, I discuss the challenges I have conquered, and those that I continue to experience today. Listeners will learn my greatest highs and lows as a participant in the LCA5 clinical trial, including my feelings about being considered a "trailblazer" in the IRD space. Lastly, I express my joy and gratitude for the support my husband and sons provide every day. As always, thank you so much to our listeners who have been with us since we began the CTL podcast, and thank you to those of you who joined us along the way! We appreciate your support, and we are so glad you are here! Email [email protected] to share your questions and comments! I'd love to hear YOUR vision story!

In this week's entry, I share my experience from recent "routine" medical appointments while independently navigating with my mobility cane. Specifically, I share my process of preparation prior to the appointments, my approach to requesting assistance from medical staff, and my perspective of patient care during the procedures. Also, I am excited to include the link to a new mini documentary from Opus Genetics (sponsor of LCA5 clinical trial) which focuses on the origin story of the company. As always, thank you all so much for supporting the CTL podcast journal! Questions or comments? Email us at [email protected] The History of Opus Genetics Mini Documentary: https://youtu.be/6RSPyi10XaI?si=oeoyNJQ-2lnjumtu

In this week's entry, I share a recap of our recent visit to Philadelphia for my three-year vision assessments in the LCA5 clinical trial. I provide an update of improvements in my daytime vision for my treated eye, and the timeline for treatment of my second eye. Listeners will learn my process when preparing for our trips to UPENN for these visits, and the power of my faith paired with my support system as I continue through this research study. As always, thank you all so much for supporting the CTL podcast journal! Have a beautfiul and blessed week! Email: [email protected]

In this week's entry, I share my final thoughts from the Self Leadership Experience. I am an official graduate of the program, and I am excited for listeners to learn my perspective shift from start to finish. Also, I provide answers to the questions, "What made this experience meaningful to you?" and "Would you recommend the program to others?" Finally, I share my feelings about my upcoming three-year vision assessments for the LCA5 clinical trial. As always, thank you all so much for supporting the podcast journal! Questions or comments? Email us at [email protected] SLE Program Enrollment Information: The Self-Leadership Experience | Disability Reimagined

In this week's entry, I have the honor and privilege to share the recording of the Story Telling Stage from the Bio Convention in June. Listeners will have the opportunity to learn about Dr. Jean Bennett and my perspectives as we share during a fireside conversation. I hope you all enjoy this very special memory from my summer. Thank you so much for your support! 📧 [email protected]