On The Road with HFC | Reflections On The Caregiving Journey

See what's in store for Remember Me Season 9... Follow us on Instagram for the latest RM news @remembermepodcast or visit us at www.remembermeftd.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

We wrap up our special summer series with a heartfelt conversation on both our time on the road and our time as caregivers. Thank you to HFC for this special opportunity + for supporting our work at Remember Me. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠. And don't forget to follow us ⁠⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠⁠@wearehfc⁠⁠⁠⁠⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more. For all things RM: ⁠⁠⁠www.remembermeftd.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

We stopped at the ICONIC Amoeba Music... and we had the most tender conversation on music and grief with Co-Owner Karen Pearson. We loved hearing about her beloved Ilene. We could have talked for hours. We hope this episode finds the people who need to hear it so please share! And don't forget to follow us ⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠ and ⁠⁠⁠⁠@wearehfc⁠⁠⁠⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠⁠⁠here⁠⁠⁠⁠. Thank you to HFC for supporting our work! For all things RM: ⁠⁠www.remembermeftd.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

A very special sit-down interview with Lauren Miller Rogen, actress, screenwriter, director AND co-founder of ⁠⁠HFC⁠⁠ alongside her husband Seth. This is a raw + honest conversation between 3 daughters of dementia about the decision to donate their parents brain's to research. We hope this episode finds the people who need to hear it so please share + DON'T FORGET to follow us ⁠⁠@remembermepodcast⁠⁠ and ⁠⁠@wearehfc⁠⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠here⁠⁠. Thank you to HFC for supporting our work! For all things RM: www.remembermeftd.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Surprise! Here to share all about being on the road with ⁠HFC⁠ AKA Hilarity for Charity. Have no idea what we're talking about? Take a seat. From touching brains at UCI Mind to jamming out at Ameoba music to chatting up strangers on Hollywood Boulevard with Bruno the BRAIN PUPPET... we had ourselves an adventure. Buckle up for some fun + stay tuned for some more bonus episodes from our trip. BUT DON'T FORGET to follow us ⁠@remembermepodcast⁠ and ⁠@wearehfc⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠here⁠. Thank you to HFC for supporting our work! For all things RM: www.remembermeftd.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is #2 of the TWO bonus episodes we produced for Season 8! In this episode we tackle the different types of research with Dr. Irwin and Dr. Massimo, the Co-Directors of the Penn FTD Center. Some of the questions we ask: -What are the different types of research? Pharmacological vs. not? -How does brain donation support research? -How do we make research more accessible? Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info! Check out the companion blog post for this episode which can be read ⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠ full of more resources and info. Special thank you to The AFTD for their collaboration and support of these blogs! -- We want to send big love to the entire ⁠⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠⁠. To sign up for our e-mail visit our website ⁠⁠⁠⁠⁠remembermeftd.com⁠⁠⁠⁠⁠. Remember Me is proud to work with ⁠⁠⁠⁠⁠⁠⁠LearnFTD⁠⁠⁠⁠⁠⁠⁠, by Alector in working to raise awareness of FTD.. For additional information and resources, visit ⁠⁠⁠⁠⁠⁠⁠LearnFTD.com ⁠⁠⁠⁠⁠⁠⁠Thank you for supporting our work and for supporting the FTD community.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is one of TWO bonus episodes we produced for Season 8! In this episode we tackle Clinical Trials with our friend Dahlia Kamel, MS - Clinical Trials Lead at the Penn FTD Center. Some of the questions we ask: -What is a clinical trial? -What do the different phases mean? -What are the considerations for families? Benefit vs. Burden Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info! Check out the companion blog post for this episode which can be read ⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠ full of more resources and info. Special thank you to The AFTD for their collaboration and support of these blogs! -- We want to send big love to the entire ⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠. To sign up for our e-mail visit our website ⁠⁠⁠⁠remembermeftd.com⁠⁠⁠⁠. Remember Me is proud to work with ⁠⁠⁠⁠⁠⁠LearnFTD⁠⁠⁠⁠⁠⁠, by Alector in working to raise awareness of FTD.. For additional information and resources, visit ⁠⁠⁠⁠⁠⁠LearnFTD.com ⁠⁠⁠⁠⁠⁠Thank you for supporting our work and for supporting the FTD community.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

In conclusion...it's our season finale... and we're wrapping up this series with our own little bow. Make sure to listen til the very end. And stay in touch, follow us on IG, and keep up to date on all things RM. You never know when you may get an encore *cough* bonus *cough* episode or two... Thank you all for your support and love. Sincerely, R+M -- We want to thank the entire ⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠ for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.  For more support, resources, events, and all things RM, check out our website www.remembermeftd.com Special thank you to The Association for Frontotemporal Degeneration for their collaboration and support of our blogs this season! You can read up on all the important information + resources we curated together here. Remember Me is proud to work with ⁠⁠⁠⁠⁠⁠LearnFTD⁠⁠⁠⁠⁠⁠, by Alector in working to raise awareness of FTD.. For additional information and resources, visit ⁠⁠⁠⁠⁠⁠LearnFTD.com⁠⁠⁠⁠⁠ Thank you for supporting our work and for supporting the FTD community.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

This week we talk all about Guardianship, Power of Attorney, Long Term Care... and other "scary" and confusing terms that can come up when planning care for your loved one. All with the help of Kate, a social worker at the Penn FTD Center. But before that, we dive into our friend Keri's personal experience getting Guardianship for her father, Mark. We recorded this interview last fall, and in February, Mark passed away after a very long journey with FTD. We want to take a minute to acknowledge Keri for the amazing job she did caring for her dad...all while being a wife, raising her little kids and being a fierce FTD advocate. You're a superhero, Keri. -- We want to send big love to the entire ⁠⁠⁠Penn FTD Center Team⁠⁠⁠ for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.  Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website ⁠⁠⁠remembermeftd.com⁠⁠⁠. The companion blog to this episode can be read ⁠⁠⁠here⁠⁠⁠. Special thank you to The AFTD for their collaboration and support of these blogs! Remember Me is proud to work with ⁠⁠⁠⁠⁠LearnFTD⁠⁠⁠⁠⁠, by Alector in working to raise awareness of FTD.. For additional information and resources, visit ⁠⁠⁠⁠⁠LearnFTD.com ⁠⁠⁠⁠⁠ Thank you for supporting our work and for supporting the FTD community.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Are there stages of FTD? What can you "expect"? This week we walk through disease trajectory with Dr. Lauren Massimo (also featured on Episode 2 - Understanding Apathy). Dr. Massimo breaks down what we know, and how she likes to guide families through these discussions. And this week's personal stories come from our friends Lauren and Michelle from the Sister Project. Hear their stories told on Season 1 episodes "June" and "June Pt. 2. This episode is dedicated to June. xx -- We want to send big love to the entire ⁠⁠Penn FTD Center Team⁠⁠ for jumping in feet first, to our sponsors for their support and to our guests for openly sharing their stories.  Please see below for links mentioned in the show and a direct link to our informative companion blog for this episode. Each week a new episode will launch Tuesday followed by a blog that will be sent out via email to our subscribers. To sign up for our e-mail visit our website ⁠⁠remembermeftd.com⁠⁠. The companion blog to this episode can be read ⁠⁠here⁠⁠. Special thank you to The AFTD for their collaboration and support of these blogs! Remember Me is proud to work with ⁠⁠⁠⁠LearnFTD⁠⁠⁠⁠, by Alector in working to raise awareness of FTD.. For additional information and resources, visit ⁠⁠⁠⁠LearnFTD.com ⁠⁠⁠⁠ Thank you for supporting our work and for supporting the FTD community.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support