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Rare diseases don’t just impact individuals; they also shape the lives of families and loved ones. In this episode of our bonus podcast series marking Rare Disease Day, we share Emma’s story about raising Nellie, her daughter who remains undiagnosed. From emotional challenges to everyday realities, it’s a moving story of resilience, love, and acceptance.
Visit rarediseaseday.org to share your story or get involved. Rare Disease Day is on 28 February 2025.
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