Raising Awareness for a Rare Cancer with Love4Lucas President Hide Harashima

In this episode of the Brain & Life Podcast, host Dr. Daniel Correa is joined by sisters Johanna and Antonia Bennett. They reminisce on time spent with their father, legendary musician Tony Bennett, and discuss the experiences they had as a family before and during his journey with Alzheimer’s disease. Dr. Correa is then joined by Dr. Joel Salinas, a neurologist, clinical assistant professor at NYU Grossman School of Medicine, and chief medical officer of Isaac Health in New York. Dr. Salinas discusses how family members can care for their loved ones with humanity and respect and models ways that tough conversations can be started throughout all stages of symptoms. Additional Resources Do You Still Think of Me by Antonia Bennett Tony Bennett Demonstrates the Power of Music Against Alzheimer’s Disease Lynda Carter Advocates for Those with Alzheimer’s Disease   Other Brain & Life Podcast Episodes on This Topic Journalist Greg O’Brien on Chronicling His Life with Alzheimer’s Actors Oscar Nuñez and Ursula Whittaker on Caring for Loved Ones with Dementia Lauren Miller Rogen on Facing a Parent’s Early-Onset Alzheimer’s Diagnosis   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at [email protected]   Social Media: Guests: Antonia Bennett @antoniabennett; Johanna Bennett @johannabennett; Dr. Joel Salinas @JoelSalinasMD Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

This week’s episode of Brain & Life Podcast was recorded live at the American Academy of Neurology’s annual meeting! Hosts Dr. Daniel Correa and Dr. Katy Peters were joined by Joel Salinas, MD, MBA, MSc, FAAN, Andrea Lendaris, MD, MS, Andrew M. Southerland, MD, FAAN, and Eric J. Seachrist, MD to share what it's like living and practicing neurology with their own neurological condition(s) and neurodiverse perspectives, and explore how their experiences serve as a window into the patient and community perspective.   Additional Resources Neurology®Podcast Switching Roles: A Neuro-oncologist Reflects on his Own Experience with a Brain Tumor   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at [email protected]   Social Media:   Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this week’s episode, Brain & Life Podcast hosts Dr. Daniel Correa and Dr. Katy Peters discuss some of their favorite articles in the most recent edition of Brain & Life Magazine. They discuss patients and caregivers becoming advocates, the importance of sleep for brain health, and a touching story about a wonderful sense of humor. If you would like to read these articles, be sure to subscribe to Brain & Life Magazine for free!   Brain & Life Articles Mentioned Patients and Their Loved Ones Find New Roles as Advocates After Diagnoses Does Poor Sleep in Middle Age Speed Up Brain Aging? Seven Tips for a Healthier Night’s Sleep Funny Lady- the author honors her mother, who died of dementia, by recalling her wonderful sense of humor.   Other Brain & Life Podcast Episodes on These Topics Finding Community in Caregiving with Kitty Norton Actor Cameron Boyce’s Legacy and Raising Awareness About SUDEP Recognizing Sleep Awareness Month with Dr. Joanna Fong-Isariyawongse Raising Awareness for a Rare Cancer with Love4Lucas President Hide Harashima Leaving a Legacy of Love and Care with Mary Lou Falcone Resiliency and Caregiving with Janet Fanaki   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at [email protected]   Social Media:   Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, host Dr. Daniel Correa is joined by Lilibet Snellings Kyte. Lilibet is an author, speaker, runner and advocate for people living with multiple sclerosis like herself. Lilibet shares her experiences with getting a diagnosis, reassessing her future plans, and living in the moment. Dr. Correa is then joined by Dr. Riley Bove, an Associate Professor of Neurology at the University of California, San Francisco, neurologist in the UCSF Multiple Sclerosis Center, and previous guest on the Brain & Life Podcast! Dr. Bove discusses advancements in MS research, and family planning considerations for people living with MS.   Additional Resources Lilibet Snellings Kyte Updated Resource: Expert Insights and Practical Tips for Managing Multiple Sclerosis How Couples Navigate Multiple Sclerosis How Exercise Helps Those with Multiple Sclerosis   Other Brain & Life Podcast Episodes Courtney Platt Dances Through Life with Multiple Sclerosis Voices from the Multiple Sclerosis Community Advocating for a Multiple Sclerosis Diagnosis with Comedian Kellye Howard Colors of Multiple Sclerosis with Artist Lindsey Holcomb We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at [email protected]   Social Media: Guests: Lilibet Snellings Kyte @leggingitwithlilibet; Dr. Riley Bove @ucfshealth Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Hide Harashima, dad, advocate, and founder and president of Love4Lucas Foundation. He discusses creating the Love4Lucas Foundation in honor of his son Lucas, who was diagnosed with diffuse intrinsic pontine glioma (DIPG). Dr. Peters is then joined by Dr. Paul Fisher, Professor of Neurology and Pediatrics, and by courtesy, Neurosurgery and Epidemiology and Population Health, Beirne Family Professor of Pediatric Neuro-Oncology, Dunlevie Family University Fellow in Undergraduate Education at Stanford University, and Editor-in-Chief of The Journal of Pediatrics. Dr. Fisher explains DIPG and other similar cancers, discusses treatment options, and what new research is being done today.   Additional Resources Love4Lucas Patients and Their Loved Ones Find New Roles as Advocates After Diagnoses Lawyer and Model Who Survived Brain Tumors Focuses on Giving Back   Other Brain & Life Podcast Episodes Actor Craig Russell on Staying Positive during his Brain Tumor Diagnosis Lawyer, Model Victoria Vesce Uses Her Platform for Brain Tumor Advocacy BMX Athlete Josh Perry's Perseverance Living with Brain Tumors We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at [email protected]   Social Media: Hide Harashima @love4lucasfoundation; Dr. Paul Fisher @stanfordchildrens Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, host Dr. Daniel Correa is joined by comedian and actress Kellye Howard, who shares about her Multiple Sclerosis (MS) diagnosis process and how she manages symptoms in her daily routine. Dr. Correa is then once again joined by Dr. Lilyana Amezcua, a neurologist and MS specialist based out of Los Angeles at USC and the Keck School of Medicine. Dr. Amezcua explains MS and discusses some of the disparities in care amongst different communities.   Additional Resources Expert Insights and Practical Tips for Managing Multiple Sclerosis MS-ing Around with Kellye Howard How Multiple Sclerosis Affects Black People How Exercise Helps Those with Multiple Sclerosis   Other Brain & Life Podcast Episodes Voices from the Multiple Sclerosis Community   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at [email protected]   Social Media: Kellye Howard @kellyehoward; Dr. Lilyana Amezcua @keckschoolusc Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Dr. Joanna Fong-Isariyawongse for Sleep Awareness Month. Dr. Fong-Isariyawongse is a neurologist at the University of Pittsburgh with specialties in sleep medicine and epilepsy- but her passion extends far beyond the clinic. She is a tireless advocate for public health policies that prioritize sleep, recognizing its foundational role in brain function, mental health, and overall well-being. Dr. Fong-Isariyawongse shares tips for getting good sleep and explains why things like later school start times and changes in the way Daylight Saving Time is observed are important for brain health.   Additional Resources Five Ways to Sleep Well How Sleep Protects the Brain How Does Daylight Saving Time Affect Health?   Other Brain & Life Podcast Episodes Sleep Smart: How Sleep Impacts Your Health   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at [email protected]   Social Media: Dr. Joanna Fong-Isariyawongse @fongsleep Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by journalist Kat McGowan. In 2022, Kat was awarded a fellowship from the Alicia Patterson Foundation to cover caregiving and has been featured in Wired, Popular Science, Scientific American, Boston Globe, Audubon, and NPR. Kat discusses her experience with caregiving for her parents and how technology like robots helped in the caregiving relationship. Dr. Peters is then joined by Dr. Jeffrey Kaye, professor of neurology and biomedical engineering at Oregon Health and Science University, director of Layton Aging and Alzheimer's Disease Center, and director of the Oregon Center for Aging and Technology. Dr. Kaye explains what Alzheimer’s disease is and how different types of technology are used in treatment and caregiving scenarios.   Additional Resources My Parents’ Dementia Felt Like the End of Joy. Then Came the Robots A Robotic Pet Brings Joy to a Patient Who Has Dementia Promising Advances in Robotics-assisted Rehabilitation Therapies Lynda Carter Advocates for Those with Alzheimer’s Disease   Other Brain & Life Podcast Episodes Finding Community in Caregiving with Kitty Norton Navigating Complicated Caregiving Journeys with Jacquelyn Revere Journalist, Producer Kitty Eisele’s Honest Recount of Her Time as Caregiver We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at [email protected]   Social Media: Kat McGowan @mcgowankat; Dr. Jeffrey Kaye @oshunews Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Daniel Correa is joined by Tola Andu, an autism advocate and content creator who shares her journey raising her 19-year-old son Kevin on social media under the handle @RaisingKevin_. Her platform sheds light on autism and offers a joyful perspective on raising a neurodivergent child. Tola discusses her passion for changing the narrative surrounding autism and advocating for acceptance and understanding, especially within the Nigerian community. Dr. Correa is then joined by Dr. Dan Geschwind, a professor and academic and research leader at the UCLA, and one of the world’s leading experts on autism who guided development of the Autism Genetic Resources Exchange alongside Cure Autism Now, currently run by Autism Speaks. Dr. Geschwind explains risk factors, diagnostic processes, and what research is being done in the autism community.   Additional Resources Raising Kevin What is Autism Spectrum Disorder? What Does Neurodivergent Mean? A Theater Group That Features Neurodiversity on the Stage Other Brain & Life Podcast Episodes From Adolescence to Adulthood: Exploring Autism with Abbey and Christine Romeo ‘Bake Off’ Star Lizzie Acker on Showstopping Cakes through Neurodivergent Eyes   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at [email protected]   Social Media: Tola Andu @RaisingKevin_; Dr. Dan Geschwind @uclacart Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Shea Hammond, athlete and founder of CP Soccer. Shea shares about his personal experience growing up with Cerebral Palsy (CP) and how staying active and working with a physical therapist has helped him continue to reach his goals. He also discusses CP Soccer’s mission, to build a nationwide soccer league for kids who are affected by cerebral palsy, stroke or traumatic brain injury, and what’s next for the organization. Dr. Peters is then joined by Dr. Mauricio Delgado, professor of neurology at UT Southwestern Medical Center, former president of the American Academy for Cerebral Palsy and Developmental Medicine and co-founder member of the Mexican Academy for Cerebral Palsy and Neurodevelopmental Disabilities. Dr. Delgado explains how CP is diagnosed and treated, and what the future for those affected and their caregivers looks like.   Additional Resources CP Soccer Biking Gives Freedom to a Teen with Cerebral Palsy How Parents Advocate for Their Children with Rare Diseases   Other Brain & Life Podcast Episodes RJ Mitte on Living Confidently with Cerebral Palsy Gavin McHugh is Building an Acting Career and a Community with Cerebral Palsy Josh Blue Uses Humor to Ease the Stigma Around Cerebral Palsy We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at [email protected]   Social Media: Shea Hammond @shea_hammond; Dr. Mauricio Delgado @utswmedcenter Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD