Interview with Rachel Filmer (on the topics of SEND reform, EHCPs, children's rights, parent advocacy & more)
Join hosts Simeon Thompson and Dr Sophia Christophi as they welcome Rachel Filmer, a parent of autistic twins, SEND rights campaigner, contributor to Special Needs Jungle and founder of SEND Rights Alliance.
In this episode, Rachel shares how her family’s experience of navigating the special educational needs and disabilities (SEND) system led her into advocacy. She describes learning SEND law and representing her children at tribunal to secure a suitable school placement, and the difference that the right education and access to skilled staff and therapists have made to their communication, learning and independence. The conversation challenges the assumption that children who do not speak cannot understand or learn, and asks why families so often have to fight for support.
The discussion centres on the Government’s proposed SEND reforms in England and Rachel’s concerns about what they could mean for children and young people. She explains why individually assessed needs, Education, Health and Care Plans (EHCPs), enforceable provision and meaningful routes of appeal matter to families. Simeon, Sophia and Rachel explore the distinction between promises of support and the ability to challenge decisions when that support is unsuitable or unavailable.
The trio also consider what meaningful inclusion should look like, from everyday reasonable adjustments in mainstream schools to specialist settings that meet a child’s individual needs. Rachel discusses the pressures on teachers, the importance of early support and long-term investment, and why a single model cannot work for every autistic learner. Alongside this, she reflects on the barriers facing families who are already marginalised, the impact of misleading narratives about SEND, and the emotional demands of trying to change a system while caring for children.
Through her work with the Save Our Children’s Rights campaign, Rachel makes the case for families, professionals and the wider community to speak up together. She shares practical ways to engage with MPs, explains why personal stories matter, and reflects on finding supportive communities while dealing with online hostility. Whether you are a parent or carer, an educator, an autistic advocate or someone wanting to understand the SEND debate, this conversation offers a personal perspective on why children’s needs and rights must remain at the heart of reform.
Recorded on 12th September 2026. The discussion reflects the proposals and campaign activity at the time of recording. For the latest developments and ways to get involved, visit the campaign websites below.
Recommended Resources & Mentions:
Save Our Children’s Rights: Campaign updates, information about proposed reforms and ways to get involved.
Write to your MP: The campaign’s guidance, IPSEA template and online letter-writing tool discussed in the episode.
Protect legal right to support for children with SEND: The petition discussed in the recording. It closed on 14th October 2026; the petition and Government response remain available to read.
Rachel Filmer on LinkedIn
SEND Rights Alliance: The alliance founded by Rachel, bringing together parents, educators and other supporters of SEND rights.
Special Needs Jungle: SEND news, resources and informed commentary, including Rachel’s contributions.
The Unacceptable Truth: 20 SEND legal rights at risk from the Government’s SEND reforms: Special Needs Jungle’s explainer on the concerns discussed in the episode.
Voices of Neurodiversity: An Inclusive Encyclopaedia by Chris Papadopoulos: The book mentioned in the introduction, exploring neurodivergent terminology and lived experience.
Our links:
The Autism Podcast Instagram: https://www.instagram.com/the_autism_podcast/
Simeon Thompson’s Instagram: https://www.instagram.com/Siimthompson
Dr Sophia Christophi’s Instagram: https://www.instagram.com/autistically.sophia
Guided Neurons, Simeon’s personal YouTube channel dedicated to self-understanding and autistic insights: https://www.youtube.com/@GuidedNeurons
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Editorial leads - Dr Chris Papadopoulos, Mr James Gordon, Simeon Thompson and Dr Sophia Christophi