World FTD Awareness Week Special | FTD Research Updates with Dr. Darby of Vanderbilt

We talk about the type of grief we feel like people don't understand: Anticipatory Grief. Losing someone bit by bit, and always waiting for the next change, the next disappointment - and the 'end'...Let us know what you think when you listen. xx-r+mYou can now watch us on ⁠YOUTUBE⁠! Special thanks to Psilera for supporting our work at RM!Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

One of the hardest parts of the wreckage that FTD leaves in its wake is the effect it has on families. In today's episode, we open up about the dynamics that have shifted and changed in our families and friendships - and what we've learned through it all. Listen with an open heart + mind as we dive in. Let us know what you think when you listen, and if you'd like you can now WATCH US ON ⁠YOUTUBE⁠Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

We got robbed. And we want to talk about it. The ways we coped - the ways we didn't. Where we found joy, and where we didn't. The awkwardness of trying to relate to others. And in the end, Rach gives us the perfect Rachaelism related to sandwich caregiving. Let us know what you think when you listen, and if you'd like you can now WATCH US ON YOUTUBE! Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

Welcome to Season 11 - we're reflecting on 5 years of this crazy journey -- meeting by chance, losing our parents, building Remember Me, learning about FTD, healing, research, hope and resilience from amazing people in our community, experts + more. We'll share some of the key themes of the last 5 years, but in a deeper way...and with our own personal stories. We're calling it "Real talk"... Here we go!You can now watch us on YOUTUBE!Want to support the podcast + get more content? Join us on ⁠⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠! You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

....a quick look into our 11th Season of Remember Me. This season is all about our reflections on our personal journeys and how we've learned and (hopefully) grown over 5 years of producing Remember Me. It's called REAL TALK. It's different + a little risky... but here goes nothing. Clear eyes, full hearts, can't lose! See you on Oct 1! xx - R+M-------For all things remember me visit remembermeftd.com, follow us on insta @remembermepodcast + join us on Patreon!

Surprise! Coming to you a few weeks before our Season 11 launch with a BONUS episode to celebrate World FTD Awareness Week. We chatted with Dr. Ryan Darby, director of the Frontotemporal Dementia Clinic in the Department of Neurology at Vanderbilt University Medical Center. He gave us on updates in FTD research - how to get involved & how our advocacy moves research forward.A VERY special thank you to today's sponsor ⁠⁠⁠⁠AVIADOBIO⁠⁠⁠⁠ for making this episode possible! Want more Remember Me? Join us on Patreon⁠⁠⁠⁠⁠⁠You get exclusive content and it's a great way to support the show! ⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠----------If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

In our Season 10 finale, Alyssa describes the FTD journey with her father, Tommy - starting from her perspective at 11 years-old. She weaves us through her memories of her father's strange behavior - and the long road to finding answers. This story covers so much about family dynamics - but also what a healing journey can look like. And the unbelievable things that happen in life that we just can't explain. Thank you, Alyssa for sharing your story with us. You are an incredible woman. Keep fighting.----------A VERY SPECIAL THANK YOU TO TODAY'S SPONSORS:⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠ &⁠⁠AVIADOBIO⁠⁠⁠⁠⁠. Mentioned in this episode: Season 9, Episode 15: Grief & Genetic Testing which you can listen to ⁠⁠here⁠⁠.Gonna miss us on the break? Support our podcast and join us on ⁠⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ - You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

Dr. Adam a professor of Interpersonal & Family Communication (and host of one of Maria's favorite podcasts The Sister Wives Professor) is here for what may be our favorite expert chat of all time.An open + honest conversation about life, family + grief. We talk a lot about family estrangement, family roles, what it means for someone to "be the glue" and so much more. Thank you, Thank you, Thank you to Adam for all of his love and attention to our community + thank you for coming on to share your insight with us. You can learn more about Dr. Adam's Patreon he mentioned in today's episode here: https://www.patreon.com/thesisterwivesprofessor----------A VERY SPECIAL THANK YOU TO TODAY'S SPONSORS:⁠PROGRANULIN INFORMATION NAVIGATOR⁠ &⁠AVIADOBIO⁠⁠⁠⁠. Mentioned in this episode: Season 9, Episode 15: Grief & Genetic Testing which you can listen to ⁠here⁠.Support our podcast and join us on ⁠⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠⁠ - You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

Today's episode features Lauren - who tells the story of her mother Pat's journey with Alzheimer's - PPA and lung cancer. Lauren describes noticing her mother's speech becoming jumbled in August 2022, which led to a challenging path to diagnosis involving family dynamics between her, her two sisters, and their father. Lauren so astutely recounts how navigating the family dynamics helped her recognize their family patterns - and ultimately helped her realize her own strength in showing up for difficult situations.This is such an incredibly raw, deep and meaningful conversation and we are so thankful to Lauren for opening up to us. We just know this conversation will help so many. Share it with someone you think needs to hear it. ----------A VERY SPECIAL THANK YOU TO TODAY'S SPONSORS:PROGRANULIN INFORMATION NAVIGATOR &AVIADOBIO⁠⁠⁠. Mentioned in this episode: Season 9, Episode 15: Grief & Genetic Testing which you can listen to here.Support our podcast and join us on ⁠⁠⁠Patreon⁠⁠⁠⁠⁠⁠⁠⁠ - You get exclusive content + a space to share and connect with others. ⁠⁠⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠⁠⁠ If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

Jackie von Salm, a chemist and Chief Scientific Officer at Psilera, shares her father Terry's journey with FTD. We loved how Jackie was so raw + honest about family dynamics, becoming Terry's POA in her 20s, and how she learned how to be direct + honest in how she felt and what she needed while caregiving. You can learn more about what she's up to at Psilera here. You can also hear us chat all about their Research Summit this year on Patreon - along with an extended version of this episode.Patreon⁠⁠⁠⁠⁠ - join us ⁠⁠⁠⁠⁠www.patreon.com/remembermecommunity⁠⁠⁠⁠⁠ - you get exclusive content and it's a great way to support the show!----------Special thank you to today's sponsor ⁠⁠AVIADOBIO⁠⁠.If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠⁠⁠⁠⁠Instagram, and visit ⁠⁠⁠⁠⁠our website at⁠⁠⁠⁠⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.