214. MS Healthcare Barriers: What Your Neurologist & Insurance Won't Tell You About SPMS (Secondary Progressive Multiple Sclerosis) & Physical Therapy

In today's episode, I'm thrilled to dive into "Must-Have MS Mobility Tools: A Complete Guide for Better Walking and Independence." Whether you're living with multiple sclerosis (MS) or supporting someone who is, finding the right mobility tools can be pivotal for independence and improved quality of life. Discover how adaptive clothing like magnetic closure bras can save energy and time, allowing you to enjoy what matters most. You'll learn about key tools that improve balance, extend activity time in heat, and boost walking confidence. We'll bust myths about mobility aids and highlight how the right tool used the right way can help you stay strong and independent. Tune in for expert advice, exercises, and strategies designed to empower your MS journey. Don't miss out on transforming your daily routine with tools that make a difference! Resources mentioned in the episode: Link to free MS Mobility Tools PDF: https://www.doctorgretchenhawley.com/ms-mobility-equipment-guide-podcast  Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: [email protected] Website:www.MSingLink.com Social:  ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

In this episode of The MSing Link Podcast, I engage in a meaningful conversation with Cherie Binns, a knowledgeable MS nurse, about the intricate relationship between multiple sclerosis and menopause.  We explore how hormonal changes can exacerbate MS symptoms and discuss the potential benefits of hormone replacement therapy for individuals experiencing these changes. Cherie provides insights into recognizing whether symptom changes are due to MS progression or menopause and offers practical tips to manage these challenges.  With 30% of the MS population being perimenopausal or menopausal, this episode is essential for understanding how to navigate these dual challenges effectively.  Join us for an enlightening discussion filled with expert advice and actionable strategies to understand MS and hormone, menopause effects on MS symptoms, treatment options during menopause, and HRT considerations for patients with MS.  If you're someone with MS or know someone who is, this episode is a must-listen! Tune in to gain valuable insights and empower yourself on your MS journey. About our guest, Cherie:Cherie is not only a registered nurse who happens to have MS, she is also one of about 1300 nurses worldwide who is classified as a Multiple Sclerosis Certified Nurse by the Consortium of Multiple Sclerosis Centers (CMSC)  and the International Organization of Multiple Sclerosis Nurses (IOMSN).  She has been an RN for more than 50 years.  She is the Patient Healthcare Liaison for the Multiple Sclerosis Foundation and has been an Advisor to the National Aging Initiative for several years focusing on Aging with multiple chronic comorbidities. Cherie also is a research reviewer for several National entities and writes for the MSFOCUS magazine as well as being an author on a number of peer reviewed articles in the MS arena.   Connect with Cherie: Website: www.msfocus.org Resources mentioned in the episode: www.nationalmssociety.org will give you links to several clinical trials related to the impact of menopause on MS progression when you use the same search criteria. New Study Indicates MS May Worsen During Menopause: https://www.nationalmssociety.org/news-and-magazine/news/associations-with-menopause Research Study: Menopause and Cognition: https://www.nationalmssociety.org/how-you-can-help/get-involved/participate-in-research-studies/research-study-menopause-cognition www.msfocus.org If someone searches "Menopause and MS", More than 200 articles pop up in our online magazine.  We also have a "Women and MS" booklet which is downloadable or free through the mail that addresses menopause and its impact on MS symptoms. Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: [email protected]  Website: www.MSingLink.com Social:  ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1 → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

In this episode of The MSing Link Podcast, I delve into the vital topic of foot drop, a common issue faced by individuals with multiple sclerosis. As a seasoned physical therapist, I highlight the importance of recognizing the signs of foot drop, such as toe catching, shoe scuffing, and modified walking patterns that could impact mobility.  Tune in as I reveal the five signs you should never ignore and discuss practical exercises and strategies to address foot drop effectively.  Discover how muscle strengthening, balance practices, and the right ankle braces can enhance walking and independence. Whether you're newly diagnosed with MS or have been managing it for years, these insights are tailored to empower your journey towards improved mobility and quality of life.  Don't miss the opportunity to learn how addressing foot drop can make a significant difference in your daily activities and overall well-being!   Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: [email protected]  Website: www.MSingLink.com Social:  ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1 → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink  

In this episode, I sit down with my twin sister, Samantha Hawley, to delve into the concept of self-sabotage and its impact on our daily lives. We explore what self-sabotage is, how it manifests in our behaviors, especially in those of us living with multiple sclerosis, and practical strategies to overcome it. Samantha shares her expertise in helping women journal through tough transitions, and we discuss the importance of self-awareness and self-compassion in breaking free from self-sabotaging habits. Stick around until the end, as we also answer some fun questions about being twins! Samantha Hawley is a journaling coach who guides women through challenging transitions to help them feel hopeful and validated. She brings her personal experiences and professional insights to the conversation, providing valuable tips on how to recognize and disrupt self-sabotaging patterns. If you're looking for ways to enhance your quality of life with MS, this episode offers essential tools and strategies for emotional and mental well-being. Tune in to discover how to identify your self-sabotage triggers, implement effective journaling techniques, and cultivate a mindset that supports your MS journey. Connect with Samantha: Instagram: https://www.instagram.com/samantha.s.says/ Website: https://www.samanthapenkoff.com/ Samantha's Podcast - Journal Entries Podcast (Spotify): https://open.spotify.com/show/3mpi2ClLG6T7xtlUs274O0?si=4d353a9a4a1744e8Journal Samantha's Podcast - Journal Entries Podcast (Apple): https://podcasts.apple.com/us/podcast/journal-entries/id1651843607 Resources mentioned in the episode: Saboteur Assessment - https://www.positiveintelligence.com/saboteurs/ The MSing Link, Episode 107, Journaling to Uncover Your True Voice - Apple | Spotify Self-Sabotage Detox, Samantha's group program - https://www.samanthapenkoff.com/offers/pSLCo2Hb    Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: [email protected]  Website: www.MSingLink.com Social:  ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1 → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink  

In this episode of The MSing Link Podcast, I share 7 essential physical therapy modifications to enhance your exercise routine if you have multiple sclerosis. We discuss practical strategies including changing exercise positions, adjusting repetitions, incorporating longer rest breaks, and decreasing resistance or weight. These modifications are designed to make exercises more doable, increase neuroplasticity, and improve daily functions like walking and climbing stairs. Whether you're newly diagnosed or have been living with MS for years, tuning into this episode will equip you with effective and actionable tips for better exercise results. For a visual guide, check out the recorded video on YouTube, and if you're interested in more MS-specific exercises and tips, explore The MSing Link online wellness program! Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: [email protected] Website: www.MSingLink.com Social:  ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1   → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

In this episode, I delve into essential strategies that make exercises more challenging for those with MS. Discover how to enhance your MS-specific exercises with simple yet effective modifications like adding weight, slowing down movements, and increasing repetitions. Whether you’re newly diagnosed or have been living with MS for years, these tips will help you safely advance your workout routine. Tune in to learn how to adjust your exercises to meet your current abilities and maximize functional improvements. I provide research-driven insights and actionable advice for progressing your exercise routine to boost strength, energy, and independence. Don’t forget to share this episode with friends or family members who could benefit. Ready to optimize your MS exercise routine? Listen now and feel empowered in your journey with MS.   Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: [email protected]  Website: www.MSingLink.com Social:  ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1   → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

In today's episode, I dive deep into the critical differences between stretching and exercising for people with MS. Learn how stretching focuses on lengthening muscles, while exercises aim at building strength, stamina, balance, and endurance. Understanding these distinctions can significantly impact your daily routine and help you achieve your mobility goals more effectively.  Tune in for insights on creating an optimal exercise regimen tailored to your specific MS symptoms. If you're looking to enhance your quality of life with MS through targeted exercise and stretching, this episode is a must-listen.    Resources Mentioned In This Episode: Total Strength Program: https://www.doctorgretchenhawley.com/offers/kt2X9MgT/checkout   The MSing Link Episode 133, 10 Types of Exercise (And Which is Best for MS) - Apple / Spotify Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: [email protected]  Website: www.MSingLink.com Social:  ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1   → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink  

In this episode of our podcast, I'm chatting with Emma Butler, CEO of Liberare, who shares her journey in developing innovative and accessible bras and underwear that address challenges faced by individuals with MS, arthritis, and other chronic conditions. We'll explore how these adaptive undergarments, featuring front-facing magnetic closures and grip loops, can ease the daily struggle of getting dressed, especially for those with impaired mobility, hand dexterity issues, or experiencing the MS hug. Emma Butler graduated from Brown University in 2020 and founded an adaptive intimates brand, Liberare, at 22 years old to help her mom with chronic pain get dressed easier. Liberare sells bras and underwear for women who are disabled, have arthritis or have recently had surgery, offering easy-on features like front-facing magnet closures on their bras. Butler was named Forbes 30 Under 30 in 2024. Liberare has been featured in Vogue, Good Housekeeping, Oprah Daily and People Magazine.Resources Mentioned In This Episode:Liberare - https://liberare.co/ Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: [email protected]  Website: www.MSingLink.com Social:  ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1   → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink  

In this episode of The MSing Link Podcast, I delve into the critical healthcare barriers faced by those with multiple sclerosis, focusing on the nuances of SPMS (Secondary Progressive Multiple Sclerosis) diagnosis, MS medications, and access to physical therapy.  As a physical therapist specializing in MS, I share insight into new MS drugs, the complexities of navigating insurance, and the importance of ongoing physical therapy. Tune in to uncover strategies to navigate these challenges and improve your quality of life. Don’t miss our deep dive into MS healthcare obstacles and innovative therapy solutions.   Resources mentioned in this episode: The MSing Link Podcast, Episode 178, Smoldering MS & Disease Progression with Dr. Gabriel Pardo, M.D. - Apple || Spotify The MSing Link Podcast, Episode 196, Reversing MS Damage: The Promising Potential of PIPE-307 to Regrow Myelin - Apple || Spotify Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: [email protected]  Website: www.MSingLink.com Social:  ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1   → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink  

Join me on The MSing Link Podcast as I recount a recent trip to Boston, where I worked in-person patients with multiple sclerosis to enhance their mobility and quality of life. In this episode, I focus on functional exercises and neuroplasticity techniques tailored for MS, highlighting unique patient goals such as improving posture, breathing, and core strength.  Whether you're working on walking better or tackling specific MS challenges, tune in for expert tips and strategies. Don't miss out on valuable insights from a specialized physical therapist dedicated to helping you live your best life with multiple sclerosis. Resources mentioned in this episode: The MSing Link Podcast, Episode 203, MS Pre-hab 101: How Pre-habilitation Can Transform Your Multiple Sclerosis Journey - Apple || Spotify Application for Gretchen’s group coaching: https://www.doctorgretchenhawley.com/group-coaching-application Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: [email protected]  Website: www.MSingLink.com Social:  ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1   → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink