SARC Talk Episode 37 - Dr. Robin Jones

In this episode of SARC Talk, we welcome Colleen McCabe, PharmD, BCOP, Oncology Pharmacy Clinical Specialist in Sarcoma at Emory Healthcare’s Winship Cancer Institute.Dr. McCabe discusses the vital role oncology pharmacists play in cancer care, from medication management and treatment support to collaborating with multidisciplinary teams to improve care for patients with sarcoma. She shares her career journey, the specialized training required for oncology pharmacy, and how pharmacists contribute beyond direct clinical care.The conversation also explores opportunities to develop successful oncology pharmacy programs and the evolving role of oncology pharmacists in academic and community practice.Join us to learn more about the important contributions of oncology pharmacists and how they help support patients throughout their cancer journey.

In this episode of SARC Talk, we meet with Dr. Peter Crane, a family physician practicing in rural Idaho, podcaster, and patient living with a rare sarcoma called solitary fibrous tumor (SFT).Dr. Crane shares his personal experience navigating a rare cancer diagnosis while working within a rural healthcare system, including connecting with a sarcoma center, coordinating care between specialists and his local oncology team, and using telemedicine to help bring specialized care closer to home.The conversation also explores Dr. Crane’s experience as the host of Doctors Making a Difference and how podcasting has helped him connect with physicians and patients. He also discusses the challenges of finding community when living with a rare tumor, the importance of patient registries and research, and how he became connected with the sarcoma community and SARC.Dr. Crane also highlights the recently established Solitary Fibrous Tumor Foundation, an organization focused on building awareness, community, education, and support for people affected by SFT.Throughout the conversation, Dr. Crane shares perspectives for patients, families, healthcare providers, and organizations working to improve awareness, research, and connection for people living with rare cancers and sarcoma.Learn more about Doctors Making a Difference at doctorsmakingadifference.com.Learn more about the Solitary Fibrous Tumor Foundation at curesft.org.

In this episode of SARC Talk, we welcome Dr. Patrick Grohar, a recognized expert in Ewing sarcoma and the Russell G. Adderley Professor of Pediatric Oncology at the University of Michigan.Dr. Grohar discusses the development and conduct of SARC037, a phase 1/2 clinical trial evaluating trabectedin and low-dose irinotecan to target the EWS::FLI1 transcriptional program in Ewing sarcoma. Following the publication of the SARC037 results in Nature Medicine, we explore what the findings mean and what's next—including the potential development of a follow-up study through the Children's Oncology Group.We also discuss Dr. Grohar's career journey, research funding, collaboration, mentorship, and his vision for the future of Ewing sarcoma research.Dr. Grohar's Laboratory Website: https://www.groharlab.org/Read the SARC037 Nature Medicine publication here: https://www.nature.com/articles/s41591-026-04340-7

In this episode of SARC Talk, our guest is Kathrin Schuster, Executive Director of the Sarcoma Patient Advocacy Global Network (SPAGN), to discuss the 2026 Sarcoma Awareness Month theme: "The Challenges of Sarcoma."Together, they explore why sarcoma awareness remains critical, the obstacles patients face on the path to diagnosis, and how advocacy organizations around the world are working to improve outcomes through collaboration, education, and research.Kathrin also shares insights from a groundbreaking global survey of more than 1,800 respondents across 49 countries, revealing common barriers to diagnosis, differences between healthcare systems, and the changes needed to help patients receive faster, more accurate diagnoses.Most importantly, she shares a simple but powerful call to action for the sarcoma community: Be Loud!Speak up. Share your story. Raise awareness. Advocate for earlier diagnosis and better care for everyone affected by sarcoma.

In this episode of SARC Talk, we are joined by Dr. Catherine Wilbur. Her and Dr. Okuno introduce the new SARC Talk Journal Club series. Dr. Wilbur, a sarcoma medical oncologist at Johns Hopkins University, shares her journey into sarcoma care, the mentors who shaped her career, and her vision for creating a forum for deeper discussion of emerging sarcoma research. Together, they discuss how articles are selected, opportunities for listener participation, the possibility of featuring study authors, and what listeners can expect from future Journal Club episodes.

In this episode, we’re joined by Daphne Edgren, Senior Medical Writer at Northwestern University and creator of the new podcast Rise to Face the Sun: The Patient Experience in partnership with SARC — premiering May 29th, 2026.Daphne shares her journey into oncology research and medical writing, what inspired her to launch a podcast focused on patient experiences, and the powerful stories that have emerged through these conversations. We also explore how storytelling can shape patient care, influence research, and bring greater humanity to medicine.This episode is a thoughtful conversation about empathy, resilience, and the importance of listening to the voices behind the diagnosis.

In this episode of SARC Talk, we are joined by Dr. Gina D’Amato, MD, Dr. Andrew Rosenberg, MD, and Dr. Andre Pinto, MD from the University of Miami for an in-depth discussion on uterine sarcoma — a rare, complex, and often misunderstood group of gynecologic cancers. Together, they explore topicsranging from diagnosis and staging to treatment controversies and rare tumor subtypes. The conversation also highlights practical insights into pathology, surgical decision-making, adjuvant therapy, and the challenges clinicians face in distinguishing benign uterine masses from aggressive disease. This episode offers valuable perspectives for patients, caregivers, advocates, and healthcare professionals alike.

Dr. Robin Jones, MD joins SARC Talk. He shares his journey in sarcoma care, from UK training to US practice and back, along with lessons from working across healthcare systems. He highlights his team’s role in major sarcoma and GIST trials, the importance of collaboration, and mentoring future leaders. The conversation also explores the future of sarcoma research, including emerging therapies and growing clinical trial opportunities in chondrosarcoma, and how global partnerships can advance care and research.

In this episode, we welcome Dr. Michael Wagner, MD, SeniorPhysician and Clinical Research Director at Dana-Farber Cancer Institute. Dr. Wagner shares his journey into the field of sarcoma and his leadership as Principal Investigator of SARC046, a pivotal study of nab-sirolimus in epithelioid hemangioendothelioma (EHE). We explore how multi-institutional collaboration throughSARC and federal partnerships helped bring this study from concept to activation, the critical role of patient advocacy—particularly the EHE Foundation—and what it takes to build successful sarcoma programs across institutions.

In this episode of SARC Talk, we welcome Dr. Sandra D’Angelo, MD and Dr. Andrea Napolitano, MD, to discuss Clear Cell Sarcoma (CCS) and the international collaboration behind SARC045, a Phase II study of tebentafusp in HLA-A2 patients with advanced CCS. The conversation explores their career paths into sarcoma, what makes Clear Cell Sarcoma biologically unique, how patient advocacy helped shape the trial, and why partnering with SARC was key to launching this study across the US and UK.