Fibromyalgia Is Not an Acceptable Diagnosis? Dr. Lenz Reacts

Text Dr. Lenz any feedback or questions Trigeminal Neuralgia Beyond Nerve Pain: Marsha’s Racing, Menopause, and Advocacy StoryThe episode explores trigeminal neuralgia as more complex than a simple nerve injury, often overlapping with nociplastic chronic pain features like widespread pain, fatigue, insomnia, and brain fog. Marsha, a longtime off-road racer, recounts an eight-year path to diagnosis after severe electric-shock facial and scalp pain, repeated ER visits, normal imaging, and feeling dismissed as drug-seeking. She describes TN as “torture,” worse than childbirth, and details treatments including carbamazepine, gabapentin, nerve blocks, and gamma knife, which provided about a year of relief but left facial numbness and corneal damage with vision loss. She also has Sjögren’s syndrome, concussion history, anxiety/depression, and discusses perimenopause/menopause timing, hormone therapy trials, and possible ADHD. Racing helps her cope mentally, though symptoms worsen after removing her helmet, and she emphasizes support groups, self-advocacy, and not giving up.00:00 Trigeminal Neuralgia Beyond Nerves05:05 Marsha’s First Symptoms07:26 ER Visits and Misdiagnosis08:35 Finally Getting a Diagnosis09:38 Becoming an Advocate13:49 What TN Feels Like15:58 Neuropathic vs Nociplastic Pain17:14 Treatments and Gamma Knife23:13 Concussions and Early Clues28:14 Hormones Menopause Connection36:38 Racing as Therapy39:23 Daily Management and Race Day Routine41:42 Racing as Flow State44:29 Adrenaline and Desert Races46:46 TN Community and Daily Struggles48:37 Fatigue Meds and Survival52:13 Living Without a Cure55:02 Faith and Being There56:38 High School Trauma a Click here for the YouTube channel International Conference on ADHD in November 2025 where Dr. Lenz will be one of the speakers. Joy LenzFibromyalgia 101. A list of fibromyalgia podcast episodes that are great if you are new and don't know where to start.  Support the showWhen I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope.  If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD.Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...

Text Dr. Lenz any feedback or questions Should You Accept a Fibromyalgia Diagnosis? Evidence-Based Response to “Don’t Accept Fibro” ClaimsDr. Michael Lenz reacts to a naturopath’s claim that fibromyalgia is “not an acceptable diagnosis,” acknowledging that patients often feel invisible and that fibromyalgia is diagnosed by symptoms after ruling out other conditions, but arguing this does not make it illegitimate. He explains fibromyalgia as a nociplastic/central sensitization pain syndrome supported by evidence such as amplified pain signaling on functional neuroimaging, disrupted deep sleep, neurotransmitter differences, and overlap with conditions like IBS, chronic fatigue, migraines, and TMJ. He critiques functional-medicine claims that fibro is primarily due to mold toxicity, food sensitivities, adrenal fatigue, leaky gut, or mitochondrial dysfunction, noting limited or debunked evidence and potential harm from chasing costly “root causes.” He outlines evidence-based, multimodal management: restorative sleep, gentle aerobic exercise and pacing, CBT/pain reprocessing and neuroscience education, addressing ADHD/autism/anxiety, and medications such as SNRIs and gabapentinoids.00:00 Why This Reaction01:04 Naturopath Claim Setup02:07 Invisible Illness Explained03:12 What She Gets Right07:31 Why Rejecting Is Harmful07:49 Real Science Of Fibro08:39 Functional Triggers List09:04 Gut Microbiome Claims13:39 Debunking Pseudodiagnoses15:05 Evidence Based Treatment Plan17:46 Should You Accept Diagnosis18:50 Closing Takeaways Support the showWhen I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...

Text Dr. Lenz any feedback or questions Dr. Iris Manor on ADHD, Trauma, PTSD, and Resilience: Risks, Mechanisms, and TreatmentThe host interviews Dr. Iris Manor, a child and adolescent psychiatrist and ADHD researcher, about links between ADHD and traumatic stress disorders, including a Denmark study finding children with ADHD are about 11 times more likely to develop PTSD. Manor distinguishes trauma exposure from traumatic stress disorders and describes behavioral risk (novelty-seeking, impulsivity) and shared neurobiology (hippocampus/ventromedial prefrontal networks, inflammatory cytokines), including possible transgenerational effects of maternal trauma. She argues ADHD and traumatic stress are usually separate but interacting diagnoses, and emphasizes resilience through structure, goals, and avoiding helplessness, noting ADHD makes these harder. She warns clinicians often stop stimulants after trauma despite potential benefit, recommends treating ADHD (and parents’ ADHD), and highlights emotional dysregulation requiring treatment (often guanfacine) to enable ADHD and trauma care. The discussion also covers overlap with chronic pain/fibromyalgia and long COVID, autism-related vulnerability, and disagreement with claims that ADHD is primarily caused by trauma.00:00 Trauma and ADHD Link03:11 Why Risk Is Higher04:02 Biology and Inflammation08:04 Which Comes First09:49 Types of Trauma Examples11:52 National Trauma Risk Groups15:14 Covid and Chronic Pain20:42 Resilience Rules and Structure22:20 Treat ADHD During Trauma26:39 Family Screening and Care31:12 ADHD Impact on PTSD Treatment33:33 Emotional Dysregulation Hierarchy35:51 Guanfacine for Dysregulation38:36 Autism Risk and Click here for the YouTube channel International Conference on ADHD in November 2025 where Dr. Lenz will be one of the speakers. Joy LenzFibromyalgia 101. A list of fibromyalgia podcast episodes that are great if you are new and don't know where to start.  Support the showWhen I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...

Text Dr. Lenz any feedback or questions Abdominal Migraines, Weather, and Early Fibromyalgia Clues: Pediatric Case and Listener FeedbackThe episode shares insights on fibromyalgia-related problems with a focus on the role of weather and activity in flareups and how symptoms can begin years before an adult fibromyalgia diagnosis. A pediatric case is presented of a 10-year-old boy with intermittent severe upper abdominal pain lasting hours to a day, nausea without vomiting, reduced appetite, and mild to moderate headaches, with no red-flag symptoms (no fever, diarrhea, bloody stools, weight loss, rash, bruising/petechiae, or joint swelling) and a normal physical exam. Family history includes migraines (maternal aunt), fibromyalgia (maternal grandmother), and restless leg/growing pains (father). The diagnosis is abdominal migraines, and the discussion emphasizes treatment approaches including restoring consistent exercise (noting a drop in activity during winter after basketball season), improving sleep regularity, considering coexisting restless leg syndrome and iron deficiency, maintaining a healthy diet, and screening for stressors and untreated ADHD. The episode also discusses how colder weather and shorter days can reduce activity and contribute to symptom worsening, and recommends tracking steps and adapting with indoor activity or appropriate clothing; it notes that extreme cold or heat can trigger fibromyalgia pain flares. Listener feedback includes praise for a five-part ADHD series with Dr. Dodson and a question about finding fibromyalgia care in Tampa, Florida, with guidance to start with primary care and noting rheumatologists often diagnose fibromyalgia after ruling out inflammatory disease.00:00 Episode Overview00:37 Pediatric Case Setup01:54 Key History Questions04:43 What Changed This Winter06:42 Exam Findings07:45 Diagnosis Abdominal Migraine08:31 Treatment Basics10:19 Weather Exercise Connection14:56 Fibromyalgia Early Clues15:49 Listener Feedback Q&A16:42 Finding Fibro Care17:53 Wrap Up and Goodbye Support the showWhen I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...

Text Dr. Lenz any feedback or questions The Hidden Fibromyalgia Epidemic: How Bias Leaves Millions Undiagnosed—and How AI Can HelpThe script explains fibromyalgia as a chronic, long-term condition marked by widespread pain, profound fatigue, cognitive difficulties (“fibro fog”), and related mood issues, affecting an estimated 2–4% of the U.S. population (7–14 million) but potentially far more due to underdiagnosis. It describes how the condition is often missed because it is “invisible,” lacks definitive objective tests, and commonly leaves patients in diagnostic limbo for about five years while being dismissed as stressed, depressed, or imagining symptoms. Although the 2016 American College of Rheumatology criteria rely on the Widespread Pain Index and Symptom Severity Score, the script argues diagnosis often fails at the moment clinicians don’t suspect fibromyalgia—driven by longstanding gender and age stereotypes that frame it as a middle-aged women’s disease. It highlights research showing that unbiased application of criteria yields a much closer gender split (about 59% female, 41% male), and that many more men report symptoms than receive diagnoses. The script centers on a study of over 21,000 pain-clinic patients who completed tablet questionnaires with a digital body map; an AI clustered pain patterns into nine groups and identified a “widespread heavy” cluster strongly associated with fibromyalgia, where patients were nearly 30 times more likely to have a fibromyalgia diagnosis than those with low back pain. Yet more than two thirds of patients flagged by the AI lacked a clinical fibromyalgia diagnosis; an objective “informatics proxy” applying the formal criteria found 66.3% of the widespread-heavy cluster met diagnostic criteria, while only 22.4% were diagnosed. The missed patients were more likely to be male and older, demonstrating diagnostic bias. Extrapolating from these findings, the script suggests the true U.S. population meeting criteria could be 21–42 million. It proposes integrating digital body maps and machine-learning alerts into clinic workflows to prompt unbiased evaluation, while emphasizing existing tools already work if applied. The script also frames fibromyalgia as nociplastic pain (central nervous system hypersensitivity), w Support the showWhen I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...

Text Dr. Lenz any feedback or questions 5 Lesser-Known Symptoms of Fibromyalgia: Understanding the Hidden CluesThis episode addresses the frustration of constantly feeling pain and fatigue despite normal medical tests and discusses fibromyalgia as a possible cause. It highlights five often-missed symptoms of fibromyalgia: extreme skin sensitivity (allodynia), non-cardiac chest pain (costochondritis), vision problems and sensory overload, pelvic and bladder issues (similar to interstitial cystitis), and widespread burning, tingling, or numbness (paresthesia). The goal is to provide viewers with information and validation to facilitate better conversations with their doctors, helping them feel more in control of their health. The episode emphasizes that fibromyalgia symptoms are real and offers hope for a path forward.00:00 Introduction: The Frustration of Unexplained Pain00:24 The Mystery of Fibromyalgia01:11 Symptom 1: Extreme Skin Sensitivity (Allodynia)02:49 Symptom 2: Non-Cardiac Chest Pain (Costochondritis)05:17 Symptom 3: Vision Problems and Sensory Overload07:11 Symptom 4: Pelvic and Bladder Issues09:10 Symptom 5: Widespread Burning, Numbness, and Tingling11:05 Conclusion: Empowering Your Health Journey Support the showWhen I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...

Text Dr. Lenz any feedback or questions Debunking Myths About Fibromyalgia Diagnosis: A Doctor's Reaction to Naturopathic ClaimsDr. Michael Lenz reacts to a naturopath's controversial statements about fibromyalgia diagnosis, emphasizing the importance of evidence-based medicine. He discusses the legitimacy of fibromyalgia as a real condition characterized by altered pain processing in the central nervous system. Dr. Lenz debunks myths about root causes like mold toxicity, food sensitivities, adrenal fatigue, and mitochondrial dysfunction, advocating for a holistic, science-based approach to managing these chronic invisible illnesses, also known as nociplastic pain syndromes, which fibromyalgia epitomizes.00:00 Introduction and Personal Story01:04 Controversy Around Fibromyalgia Diagnosis01:56 Understanding Fibromyalgia: Symptoms and Diagnosis03:12 Challenges with Fibromyalgia Diagnosis04:58 Functional Medicine Perspective13:39 Debunking Functional Medicine Claims15:07 Evidence-Based Solutions for Fibromyalgia18:50 Conclusion and Call to Action Support the showWhen I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...

Text Dr. Lenz any feedback or questions Understanding Fibromyalgia Flares Through Motion Sickness in Autism and ADHDJoin Dr. Michael Lenz as he explores the connection between motion sickness and fibromyalgia flares, particularly in individuals with autism and ADHD. Discover how sensory processing differences and predictive coding play a role in chronic pain and stress responses. Learn practical strategies for reducing unpredictability and supporting neurodivergent individuals living with fibromyalgia and other pain syndromes. Like, subscribe, and share for more science-based insights into chronic pain and neurodiversity.00:00 Introduction: Motion Sickness and Fibromyalgia00:37 Understanding Motion Sickness01:32 Neurodivergence and Sensory Processing02:09 Fibromyalgia and Sensory Mismatch03:25 Managing Life with Neurodivergence03:52 Compassionate Interventions04:14 Conclusion: Insights and Support Support the showWhen I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...

Text Dr. Lenz any feedback or questions Exploring ADHD and Perimenopausal Symptoms: Insights from a Recent StudyIn this episode, we examine the intersection of ADHD and perimenopausal symptoms using a recent cohort study from Iceland, Sweden, and the Netherlands. The study aimed to fill a knowledge gap about the impact of perimenopause on women with ADHD. Findings indicated that women with ADHD experience more severe and earlier onset perimenopausal symptoms compared to women without ADHD. The discussion highlights major findings, methodology, potential confounding factors, and the implications for healthcare professionals and women with ADHD. Tune in for a comprehensive look at this significant research!Watch on YouTube Here00:00 Introduction to the Study00:23 Research Goals and Hypotheses01:16 Study Methodology03:17 Key Findings on Symptom Burden05:26 Age and Timing of Symptoms06:23 Contributing Factors and Comorbidities07:38 Implications for Healthcare08:39 Study Limitations and Future Research10:00 Conclusion and Call to Action Support the showWhen I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...

Text Dr. Lenz any feedback or questions Unveiling the Truth: CBD, Marijuana and Fibromyalgia and Chronic Pain - Groundbreaking Research FindingsJoin us in this episode as we welcome Marianne Rasmussen, a health scientist with extensive experience in fibromyalgia research, to discuss a pivotal study on the efficacy of CBD in treating fibromyalgia. Marianne shares her journey from a registered nurse to a PhD researcher, her passion for fibromyalgia patients, and the surprising results of her rigorous trial. Despite high hopes, the study revealed no significant benefits of CBD over placebo for pain, quality of life, or functional ability. We delve into the recruitment process, the importance of patient care, and the broader implications of these findings. This enlightening conversation sheds light on the complex world of fibromyalgia treatment and the power of compassionate healthcare. Don't miss this deep dive into cutting-edge research and its impact on patient care.00:00 Introduction and Guest Welcome00:36 Guest Background and Experience02:27 Motivation Behind the Study03:59 Study Design and Methodology06:21 Key Findings and Surprising Results08:14 Patient Recruitment and Randomization11:24 Treatment Details and Side Effects16:36 Placebo Effect and Patient Care24:27 Broader Implications and Recommendations31:20 Conclusion and Final Thoughts Click here for the YouTube channel Support the showWhen I started this podcast and YouTube Channel—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 29+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace per...