Ep. 219 From Chronic Pain to Patient Advocate with Michelle Marikos

Text Dr. Lenz any feedback or questions Navigating Chronic Pain: Insights and Support with Michelle Marikos: Part 1In this episode, we transition from clinical perspectives on fibromyalgia to the lived experiences of chronic pain sufferers. Special guest Michelle Marikos shares her profound journey through chronic pain, surgeries, and the challenging world of opioid treatment. Highlighting the importance of peer support and clear communication, Michelle discusses her work with the PEER method, which supports both patients and healthcare providers. Her story underlines the interconnectedness of chronic pain with family and community, advocating for empathy and effective communication in managing pain. This conversation offers vital insights for both patients and providers, emphasizing that while a cure may not be immediate, there are ways to live a meaningful life alongside chronic pain.00:00 Introduction to Michelle's Journey00:49 Meet Michelle Marikos02:42 Michelle's Early Life and Injury04:02 The Struggle with Chronic Pain10:05 Discovering ADHD and Its Impact15:03 The Role of Family in Chronic Pain17:28 The PEER Method and Provider Training19:35 Expectations and Misunderstandings in Chronic Pain28:14 Reflections on Medical Training and Communication31:31 Conclusion and Final Thoughts Click here for the YouTube channel Support the showWhen I started this podcast—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. You’re not alone. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 28+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace personal medical advice.* ...

Text Dr. Lenz any feedback or questions Practical Strategies for Managing Chronic Pain in Children: Insights with Dr. William FryeIn this episode, Dr. William Frye delves into practical strategies for families and clinicians to help children manage chronic pain. Building on the challenges discussed in part one, he emphasizes the importance of non-pharmacological and multidisciplinary approaches, including sleep, nutrition, and healthy routines, alongside mental health. Dr. Frye highlights the significance of tracking headaches, establishing functional goals, and reducing catastrophizing thoughts through psychoeducation. Additionally, he shares success stories and offers hopeful perspectives for families navigating chronic pain management.00:00 Introduction and Recap of Part One00:21 Practical Strategies for Managing Chronic Pain00:57 Non-Pharmacological Approaches04:52 Importance of Sleep and Healthy Routines07:02 Tracking and Understanding Headaches11:49 Focus on Functionality Over Pain Reduction17:03 Psychoeducation and Pain Catastrophizing19:51 Success Stories and Final Thoughts Click here for the YouTube channel Support the showWhen I started this podcast—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. You’re not alone. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 28+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace personal medical advice.* ...

Text Dr. Lenz any feedback or questions In this episode, we explore the complexities of pediatric chronic pain with Dr. William Frye, a pediatric psychologist at Johns Hopkins All Children's Hospital. Dr. Frye discusses the extended journeys families often undertake before reaching specialized care, the prevalence and challenges of polypharmacy, and the significant role non-pharmacological and multidisciplinary approaches play in managing pediatric chronic pain. The episode also delves into the importance of mental health, comprehensive patient assessment, and individualized treatment strategies. Dr. Frye emphasizes the need for holistic care, citing high rates of anxiety, depression, and even suicidal ideation among patients, and sheds light on the unique challenges neurodiverse individuals face. Stay tuned for part two, where practical strategies for managing chronic pain will be discussed.00:00 Introduction to Dr. William Frye01:27 Dr. Frye's Background and Journey into Pain Psychology02:24 Overview of the Headache Study03:33 Key Findings and Surprising Results05:41 Challenges in the Healthcare Journey08:05 Balancing Medication and Non-Medication Treatments14:47 Mental Health's Role in Chronic Headaches20:16 Unique Challenges for Neurodevelopmental Conditions24:11 Benefits of Multidisciplinary Care26:19 Conclusion and Preview of Part Two Click here for the YouTube channel Support the showWhen I started this podcast—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. You’re not alone. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 28+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace personal medical advice.* ...

Text Dr. Lenz any feedback or questions Celebrating Four Years: Reflections, Fibromyalgia Insights, and Practical TipsIn this special fourth anniversary episode of the podcast, we reflect on four years of sharing expert interviews, insights, and listener stories. Join us as we celebrate this milestone with a scenic walk around Fowler Lake in Oconomowoc, Wisconsin, discussing the importance of movement and environment for those living with chronic pain. The episode delves into the science and personal stories behind fibromyalgia, chronic fatigue, and other invisible illnesses, exploring common misconceptions and frequently asked questions. We also provide practical tips for managing fibromyalgia and chronic pain, discuss the overlaps with ADHD and autism, and highlight the journey of understanding these complex conditions. Whether you're listening or watching on YouTube, this episode offers a blend of personal reflection, medical education, and encouragement from our growing community.00:00 Welcome to Our Fourth Anniversary Celebration!00:22 Reflecting on Our Journey and Future Plans00:34 Practical Tips for Managing Chronic Pain01:00 The Importance of Movement and Environment01:11 Understanding Fibromyalgia and Invisible Illnesses01:20 Personal Stories and Medical Insights09:42 Exploring Nociplastic Pain Syndromes25:04 The Role of Environment in Managing Fibromyalgia27:58 Conclusion and Gratitude Click here for the YouTube channel Support the showWhen I started this podcast—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. You’re not alone. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 28+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace personal medical advice.* ...

Text Dr. Lenz any feedback or questions Navigating ADHD in a Complex World: A Deep Dive with Dr. Emily WoodIn the final episode of a three-part series, Dr. Emily Wood, a pediatric and adult psychiatrist with a focus on neurodivergent individuals, discusses pressing issues in ADHD care. Topics include the potential over-diagnosis and over-prescription of ADHD, the impact of stimulant shortages, and the repercussions of outdated policies and stigma. Dr. Wood highlights how modern societal pressures may amplify ADHD symptoms and advocates for medications as vital support rather than a last resort. The conversation spans the implications of legislation, stimulant classification, and the broader societal impact of untreated ADHD. The episode provides crucial insights for individuals with ADHD, their families, and healthcare professionals. Dr. Wood also shares her experiences and the importance of adapting treatment to meet current needs, emphasizing the significance of recognizing neurodiversity and providing comprehensive care.00:00 Introduction and Episode Overview01:10 Are We Overdiagnosing ADHD?01:27 The Impact of Modern Life on ADHD02:36 Medication and Safety Concerns04:15 Stimulant Shortages and Policy Issues09:25 Reclassifying Stimulants: Pros and Cons15:16 Personal Stories and Broader Implications17:56 Final Thoughts and Future Directions23:57 Connecting with Dr. Emily Wood26:19 Conclusion  Click here for the YouTube channel Support the showWhen I started this podcast—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. You’re not alone. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 28+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace personal medical advice.* ...

Text Dr. Lenz any feedback or questions In part two of a three-part series, Dr. Emily Wood, a certified psychiatrist at SpectrumPsych, delves into the complexities of ADHD, autism, and their intersections with chronic pain syndromes. The episode covers the science behind stimulant medications, how they impact the brain, and their efficacy in treating core ADHD symptoms, improving emotional regulation, relationships, and long-term health outcomes. Dr. Wood also shares a compelling case study of a late-diagnosed autistic adult with ADHD. The conversation addresses public misconceptions about addiction, over-prescribing, and the erroneous links between vaccines and autism, while discussing the challenges posed by medication shortages.00:00 Introduction and Episode Overview01:33 Understanding Stimulant Medications for ADHD06:14 Real-Life Impact of Proper Diagnosis and Treatment11:16 Addressing Myths and Misconceptions15:09 Genetics and Multifactorial Nature of Autism19:25 Concerns About Stimulant Addiction27:07 Comprehensive Treatment and Patient Stories33:11 Conclusion  Click here for the YouTube channel Support the showWhen I started this podcast—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. You’re not alone. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 28+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace personal medical advice.* ...

Text Dr. Lenz any feedback or questions In the first of a three-part interview, Dr. Emily Wood, a board-certified psychiatrist and PhD neuroscientist, discusses the complex links between neurodevelopmental conditions such as ADHD and autism, and chronic pain syndromes like fibromyalgia and chronic fatigue syndrome. Dr. Wood, who heads Spectrum Psych LA, sheds light on why these conditions are often overlooked in high-masking individuals and women and explains the sensory processing differences that contribute to chronic pain. The conversation touches on the shortcomings in traditional psychiatric training and the importance of reevaluating medical education to better serve neurodivergent individuals. Dr. Wood also shares insights from her unique training path and discusses the broader implications of misdiagnosis and lack of understanding in the medical community.00:00 Introduction to Dr. Emily Wood and Her Unique Expertise01:11 Exploring Overlooked Neurodevelopmental Conditions in Women01:55 The Intersection of Neurodevelopmental Disorders and Chronic Pain02:52 Dr. Wood's Journey and Insights into Psychiatry06:27 Challenges in Medical Training and Diagnosis15:54 Implications of Misdiagnosis and the Importance of Listening26:11 Concluding Thoughts  Click here for the YouTube channel Support the showWhen I started this podcast—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. You’re not alone. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 28+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace personal medical advice.* ...

Text Dr. Lenz any feedback or questions In this episode, Dr. Tamara Rosier, author of 'You, Me, and Our ADHD Family,' shares valuable insights on managing life with ADHD. She discusses emotional regulation, self-awareness, and strategic support, highlighting the pitfalls of following every emotion. She also explores the complexities of romantic relationships involving ADHD, focusing on the importance of personal growth and setting boundaries. The episode concludes with a discussion on the benefits of ADHD coaching, emphasizing its forward-focused and practical problem-solving approach. Listeners are left with a message of hope and the importance of becoming a safe person for others.00:00 Introduction 00:29 The Scorpion and the Skunk Analogy01:21 Emotional Errors and Big Emotions06:02 Navigating Romantic Relationships with ADHD07:52 Misguided Empathy in Relationships09:15 Advice for Those in Challenging Relationships19:04 ADHD Coaching and Therapy25:43 Conclusion and Key Takeaways Click here for the YouTube channel Support the showWhen I started this podcast—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. You’re not alone. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 28+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace personal medical advice.* ...

Text Dr. Lenz any feedback or questions In this podcast episode, Dr. Tamara Rosier, a renowned ADHD coach and author, discusses her experiences and insights on managing ADHD within families.  She highlights the importance of understanding ADHD symptoms as neurological challenges rather than character flaws. Dr. Rosier shares personal anecdotes illustrating the impact of ADHD on her upbringing and family dynamics, emphasizing the need for compassion and understanding. She introduces the 'window of tolerance' concept to help manage emotional regulation, discusses the significance of building healthy familial relationships despite executive function challenges, and underscores the transformative role of medication in widening the window of tolerance. This episode provides valuable strategies for fostering better relationships in ADHD-affected families.Checkout the first of a 3 part interview I did with her 2 years ago.00:00 Introduction to Dr. Tamara Rosier01:31 Personal Stories and Family Dynamics03:44 Challenges and Compassion in ADHD Families06:16 Parenting with ADHD: Real-Life Examples10:48 The Window of Tolerance Explained25:21 Medication and Managing ADHD25:53 Conclusion and Key Takeaways Click here for the YouTube channel Support the showWhen I started this podcast—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. You’re not alone. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 28+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace personal medical advice.* ...

Text Dr. Lenz any feedback or questions This episode delves into the intersections of ADHD, Chronic Fatigue Syndrome (CFS), and Fibromyalgia (FM), drawing on clinical observations and research findings. It explores how ADHD traits can overlap with symptoms of CFS and FM, particularly focusing on non-restorative sleep and exertional fatigue. The discussion highlights the struggles patients face, the importance of a systematic diagnostic approach, and the need for better education and understanding among healthcare providers. The episode also touches on co-occurring conditions like restless leg syndrome and the treatment. Practical advice is shared for both patients and clinicians on recognizing and managing these interconnected disorders.00:00 Introduction and Initial Observations00:37 The Impact of ADHD on Chronic Pain01:23 Public Health Implications of Chronic Fatigue Syndrome02:46 Challenges in Diagnosing Chronic Fatigue Syndrome04:06 Understanding Fatigue and Its Different Forms06:54 Restless Leg Syndrome and ADHD09:10 The Role of Exercise in Managing ADHD and Fatigue18:49 The Overlap Between ADHD and Autism25:14 Conclusion and Final Thoughts Click here for the YouTube channel Support the showWhen I started this podcast—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That’s why I created this space: to offer education, validation, and hope. If you’ve been told fibromyalgia “isn’t real” or that it’s “all in your head,” know this—I see you. I believe you. You’re not alone. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you’ll find trusted, evidence-based insights here, drawn from my 28+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn’t replace personal medical advice.* ...