Ep 84: Greg O'Brien – Advocating for Scientific Research for Alzheimer’s

BrainStorm wants to hear from you! Send us a text.in this episode of the "BrainStorm" by UsAgainstAlzheimer's, George Vradenburg, Co-founder and Chairman of UsAgainstAlzheimer's, and Russ Paulsen, the organization's Chief Operating Officer, discuss the impact of the Trump administration's policies on Alzheimer's research with host Meryl Comer. The conversation highlights the systematic dismantling of the National Institutes of Health (NIH) and other critical agencies, which threatens to undermine Alzheimer's research and public health. Vradenburg and Paulsen express concerns about the lack of transparency in the reorganization and the potential negative effects on drug reviews and approvals due to significant cuts at the FDA. They highlight the importance of protecting key programs that support seniors and the potential global impact of these policy changes. Despite the challenges, both Paulsen and Vradenburg are optimism about scientific advances in diagnosing and treating Alzheimer's, including the development of blood tests and new treatments. Hear the call to action for listeners to advocate for continued support for Alzheimer's research and to contact their members of Congress to ensure that funding remains a priority. This is a must listen episode!  This episode is sponsored by Genentech.Support the show

BrainStorm wants to hear from you! Send us a text.Journalist and author Greg O'Brien, diagnosed with early-onset Alzheimer's over a decade ago, shares with BrainStorm host Meryl his determination to be heard at the Washington D.C. rally at the Lincoln Memorial to protest proposed cuts to NIH biomedical research funding that would critically affect Alzheimer's disease research.  Greg also candidly shares what it takes for him to navigate at this late stage in the disease.This episode also features a TopLine commentary by George Vradenburg, founder and chair of UsAgainstAlzheimer's, on the mobilization of patient advocacy organizations across diseases fighting to maintain the integrity of America's biomedical and scientific research.This episode is sponsored by Genentech.Support the show

BrainStorm wants to hear from you! Send us a text.In this episode of BrainStorm, host Meryl Comer continues explore the challenges of false Alzheimer's diagnosis in her interview with Doreen Monks, a former neuroscience nurse practitioner. Upon re-examination, Monks' diagnosis was revised eight years later as mixed dementia, but the stigma of Alzheimer's has already taken its toll.Part 2 highlights issues in the dementia diagnosis process, the gap between scientific advances and clinical practice, and the emotional toll of misdiagnosis. Doreen Monks' personal journey offers both practical advice and emotional support for others facing similar challenges, emphasizing hope, proactive health management, and the need for scientific advances reaching clinical practice more efficiently. Take a listen!BrainStorm by UsAgainstAlzheimer's is sponsored by Genentech (gene.com)Produced by Susan Quirk and Amber RonigerSupport the show

BrainStorm wants to hear from you! Send us a text.What if your life and career were upended with a diagnosis of Alzheimer’s only to learn eight years later that the diagnosis was wrong?  In this BrainStorm episode, host Meryl Comer talks with Doreen Monks, a former neuroscience nurse practitioner, who was diagnosed with early-onset Alzheimer's at 63 years old. Doreen shares her emotional and professional experiences, the frustration of misdiagnoses, and the advice she has for others navigating similar challenges. They also discuss the crucial role physicians and caregivers have in empowering those with dementia.Tune in to hear real, raw conversations about ways the stigma of Alzheimer's trends younger and how to adjust to find purpose and support along the way.BrainStorm by UsAgainstAlzheimer's is sponsored by Genentech (gene.com)Produced by Susan Quirk and Amber RonigerSupport the show

BrainStorm wants to hear from you! Send us a text.Learning about an Alzheimer’s diagnosis in your family is never easy. When you are an iconic music legend like Tony Bennet with legions of adoring fans, it is front page news. Antonia and Johanna Bennett, daughters of the late Tony Bennett, candidly discuss their emotional reactions to learning about their father's diagnosis. They share their concern for their father and fears about their own cognitive futures with BrainStorm host Meryl Comer. Hear more about the challenges faced by the family and Tony’s final performances with Lady Gaga. You won’t want to miss this heartfelt episode. Support the show

BrainStorm wants to hear from you! Send us a text.Alzheimer’s is not just an aging issue, but a lifelong brain health challenge that has major global, economic, and societal implications. George Vradenburg, Chairman and Founder of UsAgainstAlzheimer’s, who has incubated satellite organizations globally to address these issues, debriefs BrainStorm host Meryl Comer on the recent launch of “Brain House” at the Davos World Economic Forum. Together they explore the potential role of AI in enhancing brain capacity, the fragile state of Alzheimer's research funding, and the business case for diverse representation in clinical trials. You don’t want to miss this leadership episode.Produced by Susan Quirk and Amber Roniger.Support the show

BrainStorm wants to hear from you! Send us a text.In this episode of BrainStorm host Meryl Comer continues her compelling interview with "Rockstar of Science" Dr. Rudy Tanzi, the pioneering Director of the Genetics and Aging Research Unit and Director of the McCance Center for Brain Health at Mass General Hospital. Dr. Tanzi unveils the secrets of brain health and Alzheimer's research. Exploring his innovative SHIELD framework, Dr. Tanzi offers practical strategies for cognitive wellness, from sleep and stress management to diet and lifelong learning.The episode takes an innovative turn with AI-generated questions that probe the challenges of Alzheimer's research. Dr. Tanzi provides candid insights into prevention, early intervention, and the future of medical science, sharing an unexpectedly optimistic view of combating cognitive decline. Blending scientific expertise with actionable advice, this episode is a must-listen for anyone interested in brain health, aging, and medical innovation.Support the show

BrainStorm wants to hear from you! Send us a text.Join BrainStorm host Meryl Comer as she kicks off 2025 with "Rockstar of Science" Dr. Rudy Tanzi, the pioneering Director of Genetics and Aging Research and Director of the McCance Center for Brain Health at Mass General Hospital. Dr. Tanzi delves into the new FDA-approved drugs, early cognitive blood tests, and why treating Alzheimer's should mirror our approach to heart disease by focusing on prevention long before symptoms appear. Drawing from his decades of research, Dr. Tanzi shares his vision for the future: a simple daily pill that could prevent Alzheimer's just like statins prevent heart disease. Whether you are concerned about brain health or fascinated by cutting-edge medical science, this episode offers hope and practical wisdom from one of the field's most influential voices. You don’t want to miss it!Support the show

BrainStorm wants to hear from you! Send us a text.In part 2 of BrainStorm, host Meryl Comer and Dr. Rebecca Chopp, former Chancellor of the University of Denver and Dean of Yale Divinity School, delve into maintaining dignity while living with Alzheimer's and dealing with guilt when transitioning loved ones to memory care. Dr. Chopp shares how spirituality and religious practices can help those with dementia, including the role of music and ritual in connecting with memories. The episode also stresses the importance of early conversations about care preferences and advocacy as a way for caregivers to maintain their identity while fighting the disease. Dr. Chopp, author of Still Me: Accepting Alzheimer’s Without Losing Yourself, offers spiritual insights into interacting with loved ones who have Alzheimer's. You don’t want to miss this poignant and informative episode!Produced by Susan Quirk and Amber RonigerSupport the show

BrainStorm wants to hear from you! Send us a text.Spirituality can often be used to provide support to families and caregivers coping with Alzheimer’s disease or other dementias.  Dr. Rebecca Chopp, former Chancellor of the University of Denver and Dean of Yale Divinity School, diagnosed with early-onset Alzheimer’s in 2019,  talks about her spiritual journey with BrainStorm host Meryl Comer. Dr. Chopp shares her personal story of being raised in an agnostic family to becoming a theologian. She explores spirituality and faith while offering insights into acceptance, grief, and maintaining one's sense of self while living with Alzheimer’s disease. Chopp, author of Still Me: Accepting Alzheimer’s Without Losing Yourself, shares how she reshaped her life for a healthy and vibrant approach to finding meaning while living with Alzheimer’s. You don’t want to miss the heartfelt episode!Produced by Susan Quirk and Amber RonigerSupport the show