BONUS: Understanding Clinical Trials for FTD with Dahlia Kamel, Penn FTD Center

Ready to dive into all the feels? This may be our favorite convo on grief to date. In today's episode Aisha tells us about her mother's journey with FTD - and because we know Aisha, we felt like we were able to dive deep into all the things we wish people knew about our grief journeys. Thank you Aisha for sharing your story with us! We hope this episode reaches someone who needs to hear it, so please share with a friend! Please check out the amazing sponsors mentioned in this episode: ⁠PROGRANULIN INFORMATION NAVIGATOR⁠ A resource for FTD clinical trial and genetic testing info. MAKE TIME WELLNESS (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ------ For all things RM, join us over on PATREON soon, visit our website www.remembermeftd.com or follow us on Instagram! --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Long-time listener and "Re-member" Liz, shares her father Eugene's journey with FTD. A year plus since his passing, Liz shares her experience with grief, how it manifests for her - and how she keeps herself tethered to the memory of who he was before FTD. We hope this episode helps you feel less alone. Spread the word + share this episode with someone you think needs to hear it today. --- All things Remember Me FTD Community + Advocacy: ⁠⁠⁠⁠www.remembermeftd.com⁠⁠⁠⁠ | ⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠ Ways to support our podcast: follow us on Instagram | leave an apple review | join our ⁠⁠Re-Members Only group⁠⁠ or contact us about ⁠⁠partnerships⁠⁠. --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

This week we have an amazing expert guest - Katie Duncan - a former Hospice Nurse turned End of Life Coach who answers all of our (mostly Rachael’s) burning questions about the dying process. We cover so much - from the death rattle to the death “rally” - thoughts on morphine and more. All in an effort to normalize the conversations on end of life and hopefully help people feel they are not alone on this journey. A very special thank you to Katie for lending her expertise for our community. You can find all of Katie’s amazing resources here: ⁠https://www.deathcarecoach.com⁠ Her Instagram: ⁠https://www.instagram.com/death.care.coach⁠⁠ Her TikTok: https://www.tiktok.com/@death.care.coach Her Book: https://www.amazon.com/dp/B09GTJRQPH Please share this episode with someone you think may need to hear it! And for all things remember me, check out ⁠www.remembermeftd.com⁠ or follow us on IG ⁠@remembermepodcast⁠ --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Today's story is about a woman who was very aware of her disease and the fact that she was changing. Told from her daughter Kyra's perspective, Debbie's episode dives into the many unique layers of grief that come with Frontotemporal Dementia. A special thank you to Kyra for so delicately expressing the end of life experience in an effort to help others. We hope this episode helps you feel less alone. Spread the word + share this episode with someone you think needs to hear it today. --- All things Remember Me FTD Community + Advocacy: ⁠⁠⁠www.remembermeftd.com⁠⁠⁠ | ⁠⁠⁠@remembermepodcast⁠⁠⁠ Ways to support our podcast: follow us on Instagram | leave an apple review | join our ⁠Re-Members Only group⁠ or contact us about ⁠partnerships⁠. --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Today's story is shared with the perspective of 20 years in the rear view mirror. Cindy joins us to tell the story of her father Jerry's journey with early onset Alzheimers, which he was diagnosed with in the late 80s. With many years of reflection, Cindy shares her perspectives on her grief journey and her relationship with her sweet Dad. Cindy recently authored a book with reknown FTD expert Dr. Bruce Miller called Finding the Right Words, which chronicals her father's disease but also focuses on remembering Jerry for who he was before the diesase (you know we love that!). We hope this episode helps you feel less alone. Spread the word + share this episode with someone you think needs to hear it today. --- All things Remember Me FTD Community + Advocacy: ⁠⁠www.remembermeftd.com⁠⁠ | ⁠⁠@remembermepodcast⁠⁠ Ways to support our podcast: follow us on Instagram | leave an apple review | join our Re-Members Only group or contact us about partnerships. Speaking of... Check out our friends at ⁠⁠Wake Up Maggie Film⁠⁠. --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Victoria openly shares the brutality of anticipatory grief, the unending love she has for her mama and the ways she got to know herself in the darkness. We were blown away. Please share this episode with someone you think needs to hear it. --- All things Remember Me Community + Advocacy: ⁠⁠www.remembermeftd.com⁠⁠ | ⁠⁠@remembermepodcast⁠⁠ Holding Space Course Begins 10/7: Register ⁠⁠here⁠⁠. Check out our friends at ⁠⁠Wake Up Maggie Film⁠⁠. --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Our first episode of the season belongs to our new pal Scott. Through an open letter to his grief and the most beautiful love for his Dad, Scott openly recounts the experience of his father Steve's FTD journey - and his magnificent ability to explain what grief feels like will leave you speechless. We hope that Season 9 helps you feel less alone. Spread the word + share this episode with a friend for World FTD Awareness Week. --- All things Remember Me Community + Advocacy: ⁠www.remembermeftd.com⁠ | ⁠@remembermepodcast⁠ Holding Space Course Begins 10/7: Register ⁠here⁠. Check out our friends at ⁠Wake Up Maggie Film⁠. --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

See what's in store for Remember Me Season 9... Follow us on Instagram for the latest RM news @remembermepodcast or visit us at www.remembermeftd.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

We wrap up our special summer series with a heartfelt conversation on both our time on the road and our time as caregivers. Thank you to HFC for this special opportunity + for supporting our work at Remember Me. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠. And don't forget to follow us ⁠⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠⁠@wearehfc⁠⁠⁠⁠⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more. For all things RM: ⁠⁠⁠www.remembermeftd.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

We stopped at the ICONIC Amoeba Music... and we had the most tender conversation on music and grief with Co-Owner Karen Pearson. We loved hearing about her beloved Ilene. We could have talked for hours. We hope this episode finds the people who need to hear it so please share! And don't forget to follow us ⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠ and ⁠⁠⁠⁠@wearehfc⁠⁠⁠⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠⁠⁠here⁠⁠⁠⁠. Thank you to HFC for supporting our work! For all things RM: ⁠⁠www.remembermeftd.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support