Anticipatory Grief: Victoria's Story

Today's story is about a woman who was very aware of her disease and the fact that she was changing. Told from her daughter Kyra's perspective, Debbie's episode dives into the many unique layers of grief that come with Frontotemporal Dementia. A special thank you to Kyra for so delicately expressing the end of life experience in an effort to help others. We hope this episode helps you feel less alone. Spread the word + share this episode with someone you think needs to hear it today. --- All things Remember Me FTD Community + Advocacy: ⁠⁠⁠www.remembermeftd.com⁠⁠⁠ | ⁠⁠⁠@remembermepodcast⁠⁠⁠ Ways to support our podcast: follow us on Instagram | leave an apple review | join our ⁠Re-Members Only group⁠ or contact us about ⁠partnerships⁠. --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Today's story is shared with the perspective of 20 years in the rear view mirror. Cindy joins us to tell the story of her father Jerry's journey with early onset Alzheimers, which he was diagnosed with in the late 80s. With many years of reflection, Cindy shares her perspectives on her grief journey and her relationship with her sweet Dad. Cindy recently authored a book with reknown FTD expert Dr. Bruce Miller called Finding the Right Words, which chronicals her father's disease but also focuses on remembering Jerry for who he was before the diesase (you know we love that!). We hope this episode helps you feel less alone. Spread the word + share this episode with someone you think needs to hear it today. --- All things Remember Me FTD Community + Advocacy: ⁠⁠www.remembermeftd.com⁠⁠ | ⁠⁠@remembermepodcast⁠⁠ Ways to support our podcast: follow us on Instagram | leave an apple review | join our Re-Members Only group or contact us about partnerships. Speaking of... Check out our friends at ⁠⁠Wake Up Maggie Film⁠⁠. --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Victoria openly shares the brutality of anticipatory grief, the unending love she has for her mama and the ways she got to know herself in the darkness. We were blown away. Please share this episode with someone you think needs to hear it. --- All things Remember Me Community + Advocacy: ⁠⁠www.remembermeftd.com⁠⁠ | ⁠⁠@remembermepodcast⁠⁠ Holding Space Course Begins 10/7: Register ⁠⁠here⁠⁠. Check out our friends at ⁠⁠Wake Up Maggie Film⁠⁠. --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Our first episode of the season belongs to our new pal Scott. Through an open letter to his grief and the most beautiful love for his Dad, Scott openly recounts the experience of his father Steve's FTD journey - and his magnificent ability to explain what grief feels like will leave you speechless. We hope that Season 9 helps you feel less alone. Spread the word + share this episode with a friend for World FTD Awareness Week. --- All things Remember Me Community + Advocacy: ⁠www.remembermeftd.com⁠ | ⁠@remembermepodcast⁠ Holding Space Course Begins 10/7: Register ⁠here⁠. Check out our friends at ⁠Wake Up Maggie Film⁠. --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

See what's in store for Remember Me Season 9... Follow us on Instagram for the latest RM news @remembermepodcast or visit us at www.remembermeftd.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

We wrap up our special summer series with a heartfelt conversation on both our time on the road and our time as caregivers. Thank you to HFC for this special opportunity + for supporting our work at Remember Me. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠. And don't forget to follow us ⁠⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠⁠@wearehfc⁠⁠⁠⁠⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more. For all things RM: ⁠⁠⁠www.remembermeftd.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

We stopped at the ICONIC Amoeba Music... and we had the most tender conversation on music and grief with Co-Owner Karen Pearson. We loved hearing about her beloved Ilene. We could have talked for hours. We hope this episode finds the people who need to hear it so please share! And don't forget to follow us ⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠ and ⁠⁠⁠⁠@wearehfc⁠⁠⁠⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠⁠⁠here⁠⁠⁠⁠. Thank you to HFC for supporting our work! For all things RM: ⁠⁠www.remembermeftd.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

A very special sit-down interview with Lauren Miller Rogen, actress, screenwriter, director AND co-founder of ⁠⁠HFC⁠⁠ alongside her husband Seth. This is a raw + honest conversation between 3 daughters of dementia about the decision to donate their parents brain's to research. We hope this episode finds the people who need to hear it so please share + DON'T FORGET to follow us ⁠⁠@remembermepodcast⁠⁠ and ⁠⁠@wearehfc⁠⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠here⁠⁠. Thank you to HFC for supporting our work! For all things RM: www.remembermeftd.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Surprise! Here to share all about being on the road with ⁠HFC⁠ AKA Hilarity for Charity. Have no idea what we're talking about? Take a seat. From touching brains at UCI Mind to jamming out at Ameoba music to chatting up strangers on Hollywood Boulevard with Bruno the BRAIN PUPPET... we had ourselves an adventure. Buckle up for some fun + stay tuned for some more bonus episodes from our trip. BUT DON'T FORGET to follow us ⁠@remembermepodcast⁠ and ⁠@wearehfc⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more. Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠here⁠. Thank you to HFC for supporting our work! For all things RM: www.remembermeftd.com --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is #2 of the TWO bonus episodes we produced for Season 8! In this episode we tackle the different types of research with Dr. Irwin and Dr. Massimo, the Co-Directors of the Penn FTD Center. Some of the questions we ask: -What are the different types of research? Pharmacological vs. not? -How does brain donation support research? -How do we make research more accessible? Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info! Check out the companion blog post for this episode which can be read ⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠ full of more resources and info. Special thank you to The AFTD for their collaboration and support of these blogs! -- We want to send big love to the entire ⁠⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠⁠. To sign up for our e-mail visit our website ⁠⁠⁠⁠⁠remembermeftd.com⁠⁠⁠⁠⁠. Remember Me is proud to work with ⁠⁠⁠⁠⁠⁠⁠LearnFTD⁠⁠⁠⁠⁠⁠⁠, by Alector in working to raise awareness of FTD.. For additional information and resources, visit ⁠⁠⁠⁠⁠⁠⁠LearnFTD.com ⁠⁠⁠⁠⁠⁠⁠Thank you for supporting our work and for supporting the FTD community.  --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support