Included: The Disability Equity Podcast

This episode features Dr. Autumn Asher BlackDeer, a queer decolonial scholar from the Southern Cheyenne Nation and an assistant professor in the Graduate School of Social Work at the University of Denver. She discusses how social science methods can be reshaped to learn from communities and implement this knowledge into practice. Our conversation centers on how evidence mapping and practice-based evidence can address and challenge Western research structures. Dr. BlackDeer discusses these methods and her recent publication, "Evidence Mapping: Interventions for American Indian and Alaska Native Youth Mental Health." Her conclusions reveal that reconnecting Indigenous youth to their culture is a crucial and underutilized intervention to improve mental health.   Episode Transcript: Episode transcript available here     Additional episode transcripts can be found at https://disabilityhealth.jhu.edu/included/episode-transcripts/      Related Links:       Asher BlackDeer, A., & Patterson Silver Wolf, D. A. (2020). Evidence mapping: Interventions for American Indian and Alaska Native youth mental health. Journal of Evidence-Based Social Work, 17(1), 49-62.   https://www.tandfonline.com/doi/full/10.1080/26408066.2019.1624237     Dr. BlackDeer's website: www.AutumnAsherBlackdeer.com 

Dr. Willi Horner-Johnson takes a cross-disability approach to pregnancy and health in her work as Associate Professor at Oregon Health and Science University's School of Public Health, director of the Oregon Office on Disability in Health, and co-PI of the National Center for Disability and Pregnancy. Her work studies both pregnancy of people with disabilities and the birth of people with disabilities from preconception to post-partum health. She calls for a culture shift in reproductive care to respect people with disabilities, and for more accessible healthcare settings.  Episode Transcript: here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Other links: "Perinatal Health Risks And Outcomes Among US Women With Self-Reported Disability, 2011–19," Health Affairs: https://www.healthaffairs.org/doi/10.1377/hlthaff.2022.00497 "'It Would Have Been Nice to Have a Choice': Barriers to Contraceptive Decision-making among Women with Disabilities," Women's Health Issues: https://www.whijournal.com/article/S1049-3867(22)00001-9/fulltext OHSU University Center for Excellence in Developmental Disabilities - Reproductive Health Research: https://www.ohsu.edu/university-center-excellence-development-disability/reproductive-health-research National Center for Disability and Pregnancy Research homepage: https://heller.brandeis.edu/disability-and-pregnancy/

Jared Smith, associate director of WebAIM, shares his expertise from over 20 years of working in web accessibility. In this episode, Smith highlights how online access means equity to information and ecommerce for all. He describes his team's systems to search websites for a wide variety of barriers, even with few federal guidelines in place. Tune in to hear how he views the future of technology, and how you can do your part to ensure an equitable online environment. Episode Transcript: here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Learn more at: https://webaim.org/ Other links: The WebAIM Million – 2022 Update: https://webaim.org/blog/webaim-million-2022/ COVID-19 Vaccine Website Accessibility Dashboard: https://disabilityhealth.jhu.edu/vaccinedashboard/webaccess/

In this episode, we welcome back Dr. Lisa Iezzoni, a professor of medicine at Harvard Medical school and an internationally recognized health services researcher, to discuss her new book, Making Their Days Happen: Personal Assistant Services Supporting People with Disability Living in Their Homes and Communities. Learn about the research findings and personal anecdotes that motivated Dr. Iezzoni's book about policy, interactions with the disability community, and more. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ The book is available at any bookseller https://www.amazon.com/Making-Their-Days-Happen-Communities/dp/1439920761    

Dr. Megan Morris is a University of Colorado-Anschutz Associate professor, certified speech-language pathologist, and founding director of the Disability Equity Collaborative, a community aimed at advancing equitable care for patients with disabilities through practice, policy and research. Dr. Morris focuses on understanding, identifying and addressing disparities in care delivered to patients with disabilities and uses patient-informed data to address disparities via pragmatic and sustainable changes such as documenting disability in the electronic health record to inform accommodations. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Link: https://www.disabilityequitycollaborative.org/

Linda Mastandrea, Director of the Office of Disability Integration and Coordination at the Federal Emergency Management Agency (FEMA), shares her work as a disability law and civil rights attorney. She discusses her role in the COVID-19 response, the lack of data on how emergencies impact people with disabilities, and the barriers for people with disabilities to access emergency assistance. This episode highlights the importance of including people with disabilities in the decision-making process.  Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Resource Links  Learn more about the FEMA Office of Disability Integration and Coordination (ODIC) and its mission, and subscribe to receive news and updates about our work: Office of Disability Integration and Coordination | FEMA.gov Learn more about the ODIC Director, Linda Mastandrea: Linda Mastandrea | FEMA.gov Learn and share disaster preparedness resources for People with Disabilities: Individuals with Disabilities | Ready.gov  I   Personas con discapacidades | Ready.gov

Dr. Kimberly Phillips, Research Assistant Professor at the Institute on Disability at the University of New Hampshire, provides an overview of her broad range of projects on increasing equity for people with disabilities through employment and community participation. She differentiates the medical and social models of Disability and provides insight and evidence from her research aiming to improve disability awareness and inclusion via new training programs with an aim to ultimately reduce barriers and improve healthcare for people with disabilities.  Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Article link https://pubmed.ncbi.nlm.nih.gov/34103262/  

Dr. Kathleen Bogart, Director of the Disability and Social Interaction Lab at Oregon State University, discusses her research on congenital and acquired disabilities, ableism, and stigma-related stress management. She describes the disability self-concept as an individual's disability identity and how someone navigates the world in relation to that identity. Dr. Bogart additionally outlines the importance of allyship for people with disabilities, the role of education to combat ableism, and a need to create better metrics for disability research.  Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Useful Links:  Disability Advocacy and Research Network (DARN): https://darndisability.org/ Psychology Today blog: https://www.psychologytoday.com/us/blog/disability-is-diversity.

Dr. Sophia Mitra, Professor of economics, co-director of the disability studies program, and founding director of the research consortium on disability at Fordham University, discusses the association between disability and economic outcomes. She describes how the current economic system contributes to economic deprivation for people with disabilities, including unemployment, lack of health insurance, low educational attainment, and more. Dr. Mitra explains that people with disabilities have higher costs of living, and describes policies that could help reduce economic inequities for Americans with disabilities. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Useful Links:  Extra Costs of Living with a Disability: https://papers.ssrn.com/sol3/papers.cfm?abstract_id=2967775 Disability Data Initiative: https://disabilitydata.ace.fordham.edu/ Disability Studies Program: Disability Studies | Fordham  

MaryBeth Musumeci, associate director of the Program on Medicaid and the Uninsured at the Kaiser Family Foundation, discusses how states are expanding access to behavioral healthcare, including the role of telehealth. She also describes the ethical issues behind COVID-19 mandates, the rights of nursing home residents during the pandemic, and new opportunities in the American Rescue Plan. In this compelling episode, Musumeci highlights the importance of making these improvements to healthcare access permanent.  Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Useful Links: https://www.kff.org/medicaid/issue-brief/voices-of-paid-and-family-caregivers-for-medicaid-enrollees-receiving-hcbs/  https://www.kff.org/medicaid/issue-brief/state-variation-in-medicaid-ltss-policy-choices-and-implications-for-upcoming-policy-debates/ https://www.kff.org/coronavirus-covid-19/issue-brief/state-medicaid-home-community-based-services-hcbs-programs-respond-to-covid-19-early-findings-from-a-50-state-survey/ https://www.kff.org/medicaid/issue-brief/potential-impact-of-additional-federal-funds-for-medicaid-hcbs-for-seniors-and-people-with-disabilities/