61: Sister, Sister

Looking for an authentic gluten-free Italian meal? Teona Khaindrava will happily provide at Senza Gluten, located in the heart of Greenwich Village, New York City. Khaindrava, who opened the business in 2014, trains her hard working staff to prepare gluten-free pasta, cocktails, desserts and more while adhering to traditional Italian recipes and techniques. Learn how Senza Gluten has heightened the dining experience for people with celiac disease, as well as their mission to spread awareness.

Kayla King has been living with celiac disease for over 17 years, “centering her life” around food and maintaining a safe, healthy diet. After receiving a business degree and becoming a nutrition coach, King recently launched MyMeal, an app helping people with restricted diets find restaurants which cater to their needs. Learn about how King is using online advocacy to change the way people with celiac disease, chronic illnesses and allergies can safely go out to eat.

Our webinar from January 19, 2023 discusses some of the biggest celiac disease news and research from the past year. Learn about what is to come with these discoveries and how patients come upon a proper diagnosis, as well as celebrating the organization's 20 years of searching for life-changing services.

Join Podcast Coordinator Leah Popovic as she speaks to well renowned actress and producer Sam Doumit about her experience living with a wheat allergy. Doumit, who starred alongside Rob Schnieder in the film “The Hot Chick,” provides insight to working in Hollywood with dietary restrictions, as well as how her attitude and self-advocacy has played a role in her health today.

In this episode, we chat with two renowned gastroenterologists, Dr, Benjamin Lebwohl and Dr. Ritu Verma, about the role genetic tests and biopsies play in diagnosing celiac disease. What can these tests tell us about a patient's health? Are they necessary to diagnose celiac disease? The conversation is followed by a community Q&A.    Dr. Lebwohl and Dr. Verma are members of The Society for the Study of Celiac Disease (SSCD). The SSCD is a professional organization of physicians, nurses, dietitians, and allied health professionals in the United States, Canada, and Mexico who specialize in the treatment of celiac disease and other gluten-related disorders.

In this episode, we chatted with Colleen and Libby, two sisters who were diagnosed with celiac disease at the same time, shortly after their older brother was diagnosed. Their story emphasizes the importance of getting relatives tested, regardless of symptoms, and sheds light on what it's like to grow up with celiac disease today.    This episode is sponsored by imaware. Use our code to get a discount on at-home testing kits!

World-renowned celiac disease expert Dr. Stefano Guandalini, MD, sat down with us to answer your questions about celiac disease and the gluten-free diet. In this episode, the audience-submitted questions focused on conditions that are commonly seen alongside celiac disease. Dr. Guandalini is also the medical advisor for the sponsor of this Town Hall, imaware™.

We facilitated a community Q&A with Amelie Therrien, MD, gastroenterologist at Beth Israel Deaconess Medical Center, about potential non-dietary treatments for celiac disease. She answers your questions about how some of these potential treatments work, the role of the gluten challenge in clinical trials, and whether treatments may work for other autoimmune conditions, too. This event was sponsored by the Solutions for Celiac study on latiglutenase. 

Beyond Celiac ambassador Noah Lustbader is one of the youngest scientists working hands-on towards a cure for celiac disease. As a junior in college at Vanderbilt University, Noah is already pioneering a multi-centered project with Vanderbilt’s Clinic Director Dr. Dawn Adams, including centers such as Mayo Clinic and Harvard. In this episode, he talks about his experience as an undergraduate research assistant alongside Dr. Arnold Han at Columbia University's Irving Medical Center, studying t-cells and possible therapeutic strategies for celiac disease in a professional laboratory.

Healthcare systems across the globe often fall short when caring for celiac disease patients. Himanshi Pareek shares how misinformation from her doctors in India worsened her condition, leading to her own scientific discoveries which countered the medical advice she received.