Ep. 164 - Our Life with Autism, Down Syndrome and Lennox-Gastaut Syndrome with Brandy
In this powerful and heartfelt episode of Autism for Badass Moms, host Rashidah welcomes Brandy Stegall, a specialeducator and mother from Atlanta, Georgia, whose 8-year-old son, Jacob, has Down Syndrome, Autism, and Lennox-Gastaut Syndrome (LGS), a rare and complex form of epilepsy.From navigating unpredictable seizures and fighting formedical answers to advocating for dignity, access, and inclusion, Brandy shares the challenges, victories, and emotional realities of raising a child with complex needs.With honesty, humor, and hard-earned wisdom, Brandyemphasizes building community, advocating for both child and self, and creating a personal support “team” while giving moms permission to rest, seek help, and show grace. In this episode, we discuss:00:00 Meet Brandy04:36 What Is LGS06:09 Early Seizures and Diagnosis09:34 Autism Signs and Evaluation12:08 Managing Care as a Team14:46 Ketogenic Diet 19:42 Home Safety21:28 Hypervigilance and Self Care28:23 Finding LGS Community31:57 Medication Risks 36:31 Medication Side Effects38:38 Constant Second Guessing40:21 Milestones and Worries41:37 Living with LGS44:00 Career Change 47:29 Building a Support Village51:58 Advice for Autism Moms ABOUT OUR GUESTBrandy Stegall is a 50-year-old special educator, wife, and fierce autism advocate from Atlanta, Georgia. She and her husband of 14 years are raising their 8-year-old son, Jacob, who has been diagnosed with Down Syndrome, Autism, and Lennox-Gastaut Syndrome (LGS), a rare and complex form of epilepsy.As both an educator and a mother navigating multiplediagnoses, Brandy is passionate about advocating for dignity, access, equity, and inclusion for children with disabilities. Her journey has been filled with challenges, victories, and lessons in resilience, all approached with grit, humor, and unwavering determination. CONNECT WITH BRANDYInstagram: www.instagram.com/lillithnotbs Listen, Share & ConnectWebsite: www.autismforbadassmoms.comInstagram: www.instagram.com/theabmpodcastFacebook: www.facebook.com/theabmpodcastYouTube: @theabmpodcast