When Life Gives You Parkinson's podcast

When Life Gives You Parkinson's

Curiouscast

When Life Gives You Parkinson’s is an honest, funny, and engaging podcast chronicling host Larry Gifford’s personal journey with Parkinson’s disease. Gifford, his wife Rebecca, and their son Henry live in Vancouver, British Columbia. Gifford has worked in radio for nearly 30 years. In August 2017 he was diagnosed with Parkinson’s at the age of 45. Now in its second season, When Life Gives You Parkinson’s is a first-hand account of what it is like to live with PD for Gifford, his family, and other members of the worldwide Parkinson’s community.

Answering probing questions from co-host Niki Reitmayer and letting listeners eavesdrop in on intimate chats with his wife, Gifford uses humour to diffuse heavy content and give the podcast a hopeful tone. He gives voice to Parkinson’s experts and advocates from around the world and together they openly tackle tough topics. The authentic, frank conversations along with compelling storytelling is what makes this podcast interesting, informative, and enlightening.

Special thank you to our partners. Presenting partner is Parkinson Canada, content and promotional partner Spotlight YOPD, and The Michael J. Fox Foundation for Parkinson’s Research Parkinson’s IQ + You.

94 avsnitt

  • When Life Gives You Parkinson's podcast

    DELAYED: This pod and the WPC

    5:06

    We missed a few weeks of the podcast and I wanted to explain why. Turns out I can’t still do it all. I’m having to prioritize more and  more on where I put my focus. This time, the podcast got short shrift. But, I figured if anyone would be understanding it’ll be my pod peeps. There are two more episodes of Season 3 of When Life Gives You Parkinson’s which will be released sometime this Summer. One on Paraquat and other toxic chemicals and one on DBS: Deep Brain Stimulation. After those episodes drop, Rebecca and I will be on a hiatus from the podcast until sometime in 2022. Breaking News. Big Announcement dropped on June 15 that the World Parkinson Congress 2022 in Barcelona is postponed one year to July 4-7. It will still be in Barcelona. See omnystudio.com/listener for privacy information.
  • When Life Gives You Parkinson's podcast

    NBA star Brian Grant on hard work, team work, and Parkinson’s

    52:20

    This episode of When Life Gives You Parkinson’s features former NBA star Brian Grant who was diagnosed with Parkinson’s disease (PD) in 2008. He spent 12 years battling for rebounds and putting points on the board playing professional basketball and the last 13 years battling Parkinson’s and putting points on the board as a PD advocate.   “You know, when I go onto court and go up against somebody who was a big name, I’d grit my teeth to try to be an animal out there,” Grant shared. But he admits, YOPD is a different beast than pro basketball, “You can do that at Parkinson's, but it's just going to sit there and say, keep gritting your teeth and when you get done gritting your teeth…  I'm going to have your cheekbone.” From denial and depression to acupuncture and advocacy, Brian Grant’s PD story is a unique but relatable journey for many suffering and living with the disease. His honesty and vulnerability are on display as he, like many of us, try to come to terms with a disease determined to do whatever it pleases, whenever it wants to.  You can find out more about the Brian Grant Foundation at BrianGrant.org. His book Rebound: Soaring in the NBA, Battling Parkinson’s, and Finding What Really Matters is available everywhere you buy books… Thank you for listening. Add your voice to the show and leave a message for us here; https://www.speakpipe.com/WhenLifeGivesYouParkinsons Follow us, Larry & Rebecca Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod Thank you to the following people featured in this episode:  Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada. Here is a link to Parkinson Canada’s “Together: No Matter What” campaign Thanks also to our content and promotional partners The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.   PD Avengers - United to end Parkinson’s. Join us. World Parkinson Congress 2022 –Make plans to join us for #WPC2022 in Barcelona, Spain. See omnystudio.com/listener for privacy information.
  • When Life Gives You Parkinson's podcast

    Missa inte ett avsnitt av When Life Gives You Parkinson's och prenumerera på det i GetPodcast-appen.

    iOS buttonAndroid button
  • When Life Gives You Parkinson's podcast

    Care Partners Advocating for Themselves

    33:22

    This episode of When Life Gives You Parkinson’s is all about care partners and caregivers advocating for themselves. We take our jobs very seriously and often put caring for ourselves last on our lists. Our lives and well-beings are affected on nearly every level by our Person with Parkinson’s condition, and we have our own needs, yet we still are often considered predominantly in relationship to them. How do we as care partners, caregivers and Partners in Parkinson’s advocate for equal consideration in and out of our relationships? How do we make sure we have what we need to take care of ourselves, not to mention the time and space to do it? How do we learn to consistently consider our own well-being first? Rebecca takes the lead this episode and talks to three wise and wonderful care partners. First, she speaks frankly about the challenges and lessons that Cherryl Choi and Sheryl Hague have learned as they navigate their life as care partners, mothers and humans. Then she speaks to Leslie Davidson, an award-winning writer and Person with Parkinson’s who also was a care partner and caregiver to her late husband Lincoln, who had Lewy Body Dementia. She tells us what she’s learned by being on both sides of the experience and the role her writing plays in her own advocacy. And, of course, Rebecca and Larry talk about how they move through these waters in their relationship. U-Turn Parkinson’s is Sheryl and Tim Hague’s wellness center in Winnipeg. Find out more about all that Cherryl and Jimmy Choi do at a TheFoxNinja.com. Writer Leslie Davidson’s website. Thank you for listening. Add your voice to the show and leave a message for us here; https://www.speakpipe.com/WhenLifeGivesYouParkinsons   Follow us, Larry & Rebecca Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod Thank you to the following people featured in this episode:   Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada. Here is a link to Parkinson Canada’s “Together: No Matter What” campaign Thanks also to our content and promotional partners The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.   PD Avengers - United to end Parkinson’s. Join us. World Parkinson Congress 2022 –Make plans to join us for #WPC2022 in Barcelona, Spain. See omnystudio.com/listener for privacy information.
  • When Life Gives You Parkinson's podcast

    Parkinson’s is not witchcraft or a curse | Parkinson’s Si Buko Uganda

    49:06

    April is Parkinson’s Awareness Month! This episode of When Life Gives You Parkinson’s addresses stigma of Parkinson is in Uganda. You will meet Hannington Kabugo and learn how the passion and resourcefulness of a single advocate can help drive change in the world. Hannington and his two sisters moved with their father out of their home after the village determined his Mom was a witch. They were never to return. He tells us the stories of what happened when he sneaked back to see her. Years later, Hannington realized she was exhibiting all the signs of Parkinson’s. He has established Parkinson’s Si Buko, which means Parkinson’s is not witchcraft or a curse. DONATIONS for Hannington and Parkinson's Si Buko can be handled two ways.  1.Donations go directly into a PayPal account owned by Sherryl Klingelhofer, President of Parkinson's Si Buko 2  "Uganda: Pills for Patients with Parkinson's, which will go direct to Hannington   Thank you for listening. Add your voice to the show and leave a message for us here; https://www.speakpipe.com/WhenLifeGivesYouParkinsons Follow us, Larry & Rebecca Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod Thank you to the following people featured in this episode: Kabugo Hannington – is the Director of Operations of Parkinson’s Si Buko Uganda Gavin Mogan – is a PwP, living in Texas, and is Executive Director of Parkinson’s Si Buko Uganda  Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada. Here is a link to Parkinson Canada’s “Together: No Matter What” campaign Thanks also to our content and promotional partners The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.   PD Avengers - United to end Parkinson’s. Join us. World Parkinson Congress 2022 –Make plans to join us for #WPC2022 in Barcelona, Spain. See omnystudio.com/listener for privacy information.
  • When Life Gives You Parkinson's podcast

    Getting more wise about PD with Allan Cole

    49:16

    April is Parkinson’s Awareness Month! This episode of When Life Gives You Parkinson’s Larry interviews Allan Cole from the PD Wise blog and the author of a new book Counseling Persons with Parkinson’s Disease. Allan, 53, received his diagnosis nearly five years ago. In addition to his advocacy work, he is a father of two teenaged girls, he is coming up on his 30th wedding anniversary and he is a professor and academic dean in Steve Hicks School of Social Work at the University of Texas at Austin. Halfway through this episode, the host becomes the guest as Allan interviews Larry. The discussions wind their way through work life with PD, family, advocacy, leadership and what gives them hope. Thank you for listening. Add your voice to the show and leave a message for us here; https://www.speakpipe.com/WhenLifeGivesYouParkinsons Follow us, Larry & Rebecca Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod Thank you to the following people featured in this episode: Allan Hugh Cole Blog: PD Wise, Book: Counseling Persons with Parkinson’s Disease Follow Allan on Twitter: @PDWise Allan mentioned an episode of When Life Gives You Parkinson’s when I spoke with colleagues. Here’s a link to “Parkinson’s doesn’t have to be a career killer.” Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada. Here is a link to Parkinson Canada’s “Together: No Matter What” campaign Thanks also to our content and promotional partners The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.  PD Avengers - United to end Parkinson’s. Join us. World Parkinson Congress 2022 –Make plans to join us for #WPC2022 in Barcelona, Spain. See omnystudio.com/listener for privacy information.
  • When Life Gives You Parkinson's podcast

    On the Edge of Disease-Altering Drugs and a Bio Marker

    40:05

    See omnystudio.com/listener for privacy information.
  • When Life Gives You Parkinson's podcast

    Women and Parkinson’s: Hormonal cycles and pregnancy for women with YOPD

    56:49

    April is Parkinson’s Awareness Month! This episode of When Life Gives You Parkinson’s is about women with Parkinson’s who are diagnosed less often, less accurately and offered treatments that are less effective often because hormonal cycles play a role and it’s a rather unexplored area of the disease. We will hear from three women with Parkinson’s who also experienced pregnancy, giving birth and parenting with PD. All of their experiences were different, but certainly complicated by their Parkinson’s disease. And all three are now advocates for women like them. Thank you for listening. Add your voice to the show and leave a message for us here; https://www.speakpipe.com/WhenLifeGivesYouParkinsons Follow us, Larry & Rebecca Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod Thank you to the following people featured in this episode: Soania Mathur, MD - Sonia was a family physician and pregnant with her first child when she was diagnosed at 27. She is co-founder of PD Avengers, co-chair of The Michael J Fox Patient Council,  on the Board of Directors for the Davis Phinney Foundation, and the medical boards of the Brian Grant Foundation and Parkinson Canada. She and her two daughters have also written two Children’s books on Parkinson’s; My Grandpa’s Shaky Hand and Shaky Hands – A Kids Guide to Parkinson’s Disease. Caitlin Nagy – After denying and hiding her diagnosis for seven years, Caitlin, a 38-year-old mother, is sharing her story of Parkinson’s in Parkinson Canada’s April Awareness Campaign “Together: No Matter What.” Paola Celli - Paola was born in Ecuador and diagnosed at the age of 12. She was married and then moved to Texas where she gave birth to two children.   Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada. Here is a link to Parkinson Canada’s “Together: No Matter What” campaign    Thanks also to our content and promotional partners The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.  PD Avengers - United to end Parkinson’s. Join us. World Parkinson Congress 2022 –Make plans to join us for #WPC2022 in Barcelona, Spain. Credits Dila Velazquez – Story Producer Rob Johnson  – Sound Design   See omnystudio.com/listener for privacy information.
  • When Life Gives You Parkinson's podcast

    Red Letter, Give a Dime

    53:39

    In this episode of When Life Gives You Parkinson’s, I am the host of a live event with four leading experts in the Parkinson’s world. Together they wrote a book called “Ending Parkinson’s Disease” and launched a red letter campaign to the White House. It’s been one year since the book was released and it has helped to inspired the movement PD Avengers, which I co-founded. What’s new in Parkinson’s? What have they learned? What’s standing in our way of success? Listen as Dr. Ray Dorsey, Dr. Bas Bloem, Dr. Michael Okun, and Dr. Todd Sherer sit down for one on one interviews with me and learn how, no matter where you are in the world, you can help make a difference.   Thank you for listening. Add your voice to the show and leave a message for us here; https://www.speakpipe.com/WhenLifeGivesYouParkinsons Follow us, Larry & Rebecca Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod Thank you to the following people featured in this episode: Dr. Todd Sherer, CEO Michael J Fox Foundation Dr. Michael Okun, Chair and professor of Neurology, University of Florida Dr. Bas Bloem, Prof. Bas Bloem is the medical director of the Department of Neurology at Radboud University Medical Center. Dr. Ray Dorsey, Prof. Department of Neurology , Director of Center for Health and Technology (SMD)     at the University of Rochester   Buy the Ending Parkinson’s Book or Join the Red Letter Campaign www.endingpd.org Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada. Here is a link to the Parkinson’s Canada Preventing Falls Guide.   Thanks also to our content and promotional partners The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.  PD Avengers - United to end Parkinson’s. Join us. World Parkinson Congress 2022 –Make plans to join us for #WPC2022 in Barcelona, Spain.   Credits Dila Velazquez – Story Producer Greg Schott – Sound Design   See omnystudio.com/listener for privacy information.
  • When Life Gives You Parkinson's podcast

    Expanding Your Healing Tools: Integrative Medicine Part 2

    43:54

    This episode of When Life Gives You Parkinson’s is about exploring Eastern holistic healing modalities as a complement to the pharmaceuticals relied upon by Western Medicine. Parkinson’s touches a global community, so we might as well use all the global tools to address our health and wellness. Sometimes it is a matter of having the courage to try something new. For me, last year, that was acupuncture. I am afraid of needles, but quite enjoyed the pain relief it provide and calming, centering sensation it provided. Practitioners of traditional Eastern medicine stress the importance of finding an energetic balance and energetic awareness. I have never had Reiki. Rebecca experienced it at World Parkinson Congress in Kyoto. We talk to the two Reiki masters who were in the “renewal room” and the impact that they observed Reiki had on people with Parkinson’s and care partners. We also chat with Karl and Angela Robb. Karl has had PD for thirty years. After discovering the benefits of Reiki, they both became Reiki masters and use it to manage life’s challenges. Thank you for listening. Add your voice to the show and leave a message for us here; https://www.speakpipe.com/WhenLifeGivesYouParkinsons Follow us, Larry & Rebecca Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod Thank you to the following people featured in this episode: Muniqui Muhammad and Lena Takahashi www.healinglandreiki.com Karl and Angela Robb www.KarlRobb.com and check out their book A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson’s Disease Book Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada. Here is a link to the Parkinson’s Canada Preventing Falls Guide.  Thanks also to our content and promotional partners The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.  PD Avengers - United to end Parkinson’s. Join us. World Parkinson Congress 2022 –Make plans to join us for #WPC2022 in Barcelona, Spain. See omnystudio.com/listener for privacy information.
  • When Life Gives You Parkinson's podcast

    All about falling: the down side of PD

    50:26

    Hi, it’s Larry. I’m 49 and I have Parkinson’s disease. This episode of When Life Gives You Parkinson’s is about managing falls. It is winter and where we live snow and ice and black ice and freezing rain are all hazards, which increase everyone’s chances of falling. People with Parkinson’s are more prone to slipping and stumbling, skidding and tumbling to the ground. So, we should talk about it. I didn’t consider it a topic I’d need to know much about until I get much older. I was wrong. One reason we're doing this episode is because over the holidays I had four falls.   I am on the mend with help from NeuroFit BC’s Naomi Casiro. Rebecca and I talk with Physiotherapist Nicole Ascera, PhD. She’s a clinical specialist in neurosciences and wrote the Parkinson Canada Guide on Preventing Falls. I also meet the creator of the ACTIVATOR Poles by Urban Poling, Mandy Shintani. These are great tools especially for gait, balance and confidence issues. Through the episode, Rebecca and I realize we have a lot to do to prepare mentally, physically, emotionally and spiritually for the next fall. And the fall after that one. And the one after that one. Thank you for listening. Add your voice to the show and leave a message for us here; https://www.speakpipe.com/WhenLifeGivesYouParkinsons Follow us, Larry & Rebecca Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod Thank you to the following people featured in this episode: Naomi Casiro (Founder/ Registered Physiotherapist) BSc. (Kin), MPT, Certified PWR! https://www.neurofitbc.com/ Nicole Acerra, PhD Nicole Acerra, PhD, is a physiotherapist with a passion for neurological and vestibular rehabilitation. She is one of the authors of the Parkinson Canada’s Preventing Falls Guide Mandy Shintani OT & Gerontologist, Developer ACTIVATOR Poles & Founder Urban Poling Inc. Learn more about how Activator poles work with PwP at an upcoming free webinar. Register today! The webinar is on Wed April 28 at 7 pm EST/4 pm PST https://us02web.zoom.us/webinar/register/WN_QDm5AfunTZyUmW2yCccU5A Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada. Here is a link to the Parkinson’s Canada Preventing Falls Guide. Thanks also to our content and promotional partners The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.  PD Avengers - United to end Parkinson’s. Join us.World Parkinson Congress 2022 –Make plans to join us for #WPC2022 in Barcelona, Spain See omnystudio.com/listener for privacy information.

Kom åt alla poddsändningar i gratisappen GetPodcast.

Prenumerera på dina favoritpoddar, lyssna på avsnitt offline och få spännande rekommendationer.

iOS buttonAndroid button