Livingwithxxy

#103 - Mother of Boy with XXY - Tara Whitfield

Toby Voige, age 15, shares his experience from his recent trip to Denver, Colorado, while participating in research. The Lipids to Fat study aims to see how boys with XXY bodies use fat as an energy source. Dr Shanlee Davis is the lead on this research. If you would like to learn more, please click the link provided and watch the video. Details about the study are in the video description https://www.youtube.com/watch?v=Mub4Mx6TkOk

#101 - Parents of Boy with XXY - Amanda and Jonathan Korb

#100 - Adult with XXY - Daniel Sharp

#99 - Adult with XXY - Nick Rodriguez

#98 - Parents of Boy with XXY - Mariah and Romone

Deepak's family is originally from India. He was born in Brooklyn and raised in West Texas. At age 28, he and his wife started trying to have kids. After visiting over 14 doctors, many told him he didn't fit the stereotype of having Klinefelter syndrome. At 43, he's decided to share his story to make a difference. He says, "It's been a journey."

Grace Hatton is the mother to four beautiful children. She received Non-invasive prenatal testing (NIPT) with her youngest son. After a personal phone call revealing the diagnosis from her doctor, they both were excited. She felt a sense of calm and comfort in her son's XXY diagnosis and knew she could handle it.

Welcome to our first-ever father-and-son podcast! Michael Bouley is a fantastic dad to Hunter Bouley, age 21. Hunter was born with club foot affecting one leg, which led the doctors to think something else was happening. Around puberty, Hunter was diagnosed with XXY, and things started to make sense as to why he struggled in school with comprehension, math, and physical development. In the 7th grade, he went from homeschooling to public school for the first time. Despite being bullied for looking different over time, it taught Hunter to focus on his goals regardless of the setbacks he faced. Hunter has worked hard his entire life to overcome his challenges. His Instagram shows a well-defined muscular man who has devoted his life to nutrition and working out. He drives a forklift at a lumber yard using his visual memory while working with his hands. He loves hanging out with his family and large-mouth bass fishing. Despite having trouble with expressive language, Hunter knew sharing his story would help others know they are not alone. Hunters Instagram: @hunters.fp

Toby joined track and field at his local high school. Nervous for his first race, Gareth found out and sent his mother this incredible pick me up voice message. This is what supporting eachother is all about and why being open about having XXY is so important. Positive support from our peers is another thing that makes this community incredible.