Episode 14: Living with POI: Naomi’s Story, Cultural Barriers & Why Awareness Matters
Guest: Naomi (POI Advocate, Founder of Speak Up for POI)In this powerful and deeply honest episode, we’re joined by Naomi, a passionate advocate raising awareness about premature ovarian insufficiency (POI), particularly within South Asian and marginalised communities.Diagnosed at 36, Naomi shares her personal journey—from years of missed symptoms and misdiagnosis to navigating hormone replacement therapy (HRT) and ultimately finding her voice through advocacy.Together, we explore the often-overlooked realities of hormone health, the global gaps in awareness and treatment access, and the cultural and societal pressures that can shape a woman’s experience of POI.This is a conversation about resilience, identity, and the urgent need for change in women’s healthcare worldwide.Naomi’s personal journey to a POI diagnosis and the missed opportunities along the wayThe profound impact of hormones on brain, bone, heart health—and overall wellbeingWhy POI is so often misunderstood or misdiagnosedThe realities of navigating HRT: when it works, when it doesn’t, and why persistence mattersCultural and societal pressures around fertility, marriage, and identityBarriers to healthcare access in South Asia and beyondThe global gap in menopause and POI education—for both patients and cliniciansThe role of misinformation and the risks of unregulated “menopause” productsHow low hormone levels can affect motivation, mental health, and the ability to seek helpThe importance of awareness, advocacy, and finding community1. Hormones Are Not OptionalHormones influence far more than reproductive health—they affect mood, cognition, energy, and identity. Yet they remain under-recognised in both clinical care and public awareness.2. Diagnosis Delays Are CommonNaomi’s experience highlights a familiar story: repeated GP visits, symptoms dismissed, and key hormone tests overlooked for years.3. Cultural Context MattersIn some communities, fertility is closely tied to a woman’s identity and social value. This can lead to silence, stigma, and delayed help-seeking.4. Access to Treatment Is UnequalGlobally, access to HRT—particularly transdermal options—varies significantly, leaving many women without appropriate care.5. The Power of AwarenessEducation is the starting point for change—empowering women to advocate for themselves and improving outcomes across healthcare systems.“You are not alone. There are other women out there going through this. Reach out, find support, and don’t give up on finding the right treatment—you can feel better.”Keep a symptom diary to support conversations with your doctorDon’t be afraid to ask: “Why?” if something is dismissedSeek second opinions if neededBe aware that finding the right HRT can take timeLook for trusted, evidence-based sourcesPrioritise connection—support groups can be life-changingInstagram: speakup_for_poiFacebook Groups:POI Pakistan Support GroupDaisy Network South Asia CommunityOrganisation: Daisy NetworkThis episode shines a light on the intersection of medicine, culture, and lived experience. It challenges us to rethink how we approach women’s health—and reminds us that behind every diagnosis is a story that deserves to be heard.Note correction - NIH study is not what we were meant to say in the podcast, it's actually WHI (we knew what was intended, just got the acronym wrong).Dr Nikki: @femalehealthdocKate: @fertility_menopause_supportDr Siobhan: @mylifeonpausepoiNina: @soullaunndry_womenshealthDon't forget to follow us! @theprematuremenocast