Speaking in Spoons: A Chronically ill Podcast

Host Christina Brookman interviews Charlie Tripplet (author, educator, speaker and Head of Accessibility Ops for Universal NBC.) on the topic, "Rethinking Accessibility for the Visually Impaired and Blind via Code." Charlie gives advice to coders, business about how thinking of accessibility at the beginning of design benefits everyone. Wonderful episode for those in the web design industry, businesses, Occupational Therapists, the visually impaired and the support systems.More information can be found at www.speakinginspoons.com#accesiblewebsite#code #AccessibilityMatters#assistivetechnology#disabilities #invisibledisabilities#visualimpairmentawareness #blindnessawareness

Host Christina Brookman discusses upcoming interview with Charlie Tripplet, author, educator, speaker and Head of Accessibility Ops for Universal NBC. She discusses her personal connection to the episode and excitement to share with audiences, "Rethinking Accessibility for the Visually Impaired and Blind via Code."More information can be found at www.speakinginspoons.com#accesiblewebsites#code #accessibility #assistivetechnology #disabilities #invisibledisability #visualimpairments #blindnessawareness

Host Christina Brookman brings back disability appeals lawyer Adriana M. de la Torre, Co- Founder of Tower Lawyer Group, to discuss the appeals process. Ms. de la Torre shares 3 different appeals cases of invisible disabilities: Ehlers Danlos, Migraines, Fibromyalgia. She shares what went wrong and right from a legal prospective, and advice for handling the appeals process.www.speakinginspoons.comwww.towerlawgroup.com#SSDI#SSI#Disability#InvisibleDisability#Chronicillness#Disability#Applyingfordisability#Disabilityappeals

Host Christina Brookman discusses current events, and inclusivity within the disability community.#Section504#ada #medicaidcuts #disability #disabilityawareness #invisibledisabilities #ssdi #ssi

Host Christina Brookman reads "First They Came," by Paster Martin Niemoller and discusses how the recent executive orders effect the disability community. She also shares information about the Protect Medicaid Movement. ......................................................................................... PLEASE ACT ON THURSDAY, FEBRUARY 6, 2025! A national call-in day for the Protect Medicaid movement is taking place this Thursday, February 6. This event is organized by a coalition with a broad focus. Call-in days aim to flood Capitol Hill switchboards with advocates calling at the same time to draw attention to the issue. Self-advocates and parent/family-advocates are encouraged to share their unique perspective and to reach out to our members of Congress in order to educate them on how potential Medicaid cuts would affect individuals with disabilities and state budgets.What: National Call-In Day to Protect Medicaid When: Thursday, February 6, at 1 PM (ideal) or anytime How: Call the “Hands Off Medicaid Hotline” at 866-426-2631. (Options are available in English and Spanish.) Follow the prompts when asked for your zip code. Your call will be automatically directed to your representative. You may either speak with a staff member or be directed to voicemail. If you reach voicemail, please leave a message with your name and zip code! To prepare your remarks, please use the NACDD fact sheet (linked below), which contains important information about the potential impact of these cuts, along with state specific data that congressional offices will find useful. Tailor your message to your representative’s district and incorporate relevant state data. If you find it useful, you can use the following sample script: “Good [morning/afternoon]. My name is [Your Full Name], and I’m a constituent from [City/Town, State]. I’m reaching out today because I’m deeply concerned about potential cuts to Medicaid, particularly the Home and Community-Based Services (HCBS) that support people [like me/my loved one] who live with disabilities. [I/my loved one] live with [briefly describe disability/condition] and rely on Medicaid to access critical services that allow [me/my loved one] to live independently in [my/their] community. For [me/my loved one], and for so many others, HCBS are not just a convenience—they are fundamental to the ability to live with dignity and be part of society. Without these services, [I/my loved one] would risk being forced into an institution, away from [my/their] family, [my/their] job, and the life [I’ve/they’ve] worked hard to build. I would like a response from Representative [Name of Representative]. Thank you.” Optional Follow-up for Social Media: Today, I told [hashtag for your representative] that disabled people will be harmed by potential cuts to Medicaid, especially the Home and Community-Based Services (HCBS) that support individuals [like me/my loved one] who live with disabilities. You can too! Just call 866-426-2631 and follow the prompts to contact your member of Congress’s office! #HandsOffMedicaid

Host Christina Brookman interviews Dr. Jeffery Boris about his work as a pediatric cardiologist specializing in diagnosis and management of Dysautonomia and his latest research paper : Long‐Term POTS Outcomes Survey: Diagnosis, Therapy, and Clinical Outcomes. Dr Boris discusses what drew him to specialize in POTS, his teleclinic, and what advice he has for patients and doctors. More information can be found at www.speakinginspoons.com and www.jeffreyborismd.com His research paper is available at https://www.ahajournals.org/doi/10.1161/JAHA.123.033485 #dysautonomia #pots #posturalorthostatictachycardiasyndrome #bloodpressure #tachycardia #patienthistory #estrogen #mastcellactivationsyndrome #ehlersdanlossyndrome #hypermobility

Host Christina Brookman and the Panel of Spoonies (Joe Albert and Rachel Latremore) discuss writer Mary Ladd's interview about her experience with Long Covid and her latest publication, "The Long Covid Reader," a compilation of writings and poetry from 45 Long Haulers. More information is available at our website www.speakinginspoons.com as well as www.maryladd.com #dysautonomia #covid19 #longcovid #pots #posturalorthostatictachycardiasyndrome #breastcancer #chronicillness #chronicallyill #invisibledisability #disability

Host Christina Brookman interviews writer Mary Ladd (Long Haulers Publishing) about her journey with breast cancer and long covid along with her recent publication, "The Long Covid Reader," Writings and Poetry from 45 Long Haulers. More information is available at www.speakinginspoons.com and www.maryladd.com #longcovid #dysautonomia #pots #invisibleillness #invisibledisability #chronicillness #butyoudontlooksick #breastcancer

Speaking in Spoons: A Chronically ill Podcast's new Panel of Spoonies (Joe Albert, Josh Lamm, and Rachel Latremore) along with Host Christina Brookman discuss Ripple Effects Hardcover Edition and Invisible Disabilities. More information is available on www.speakinginspoons.com

Speaking in Spoons: A Chronically ill Podcast has brought back Jordan Hart (Creator, Writer & Colorist of Ripple Effects), along with Barbra Dillon (Publisher, Editor in Chief of Fanbase Press) to discuss Ripple Effects reception over the past year since its publication and our last interview in Season 2. Ripple Effects is a comic book series about a superhero living with chronic illness/invisible disability. Find out their exciting news about their current Kickstarter that includes a special hardback edition of Ripple Effects. #chronicillness #invisibledisability #diabetes Kickstarter Link:  https://www.kickstarter.com/projects/fanbasepress/jordan-harts-ripple-effects-the-deluxe-edition?ref=cgeekh   Whatnot Auction Link (Taking place on 9/11/24):  https://www.whatnot.com/live/4c0c12bc-36eb-46ec-98c2-f0f733ab27f4   Ripple Effects Trade Paperback Purchase Link: https://fanbasepress.myecrater.com/p/39178444/ripple-effects-printed-trade-paperback     Social Media   Facebook Fanbase Press:          https://www.facebook.com/FanbasePress1 Ripple Effects:            https://www.facebook.com/RippleEffectsComic   Instagram Fanbase Press:          @fanbasepress Jordan Hart:  @JordyJordit   Twitter Fanbase Press:          @Fanbase_Press       https://twitter.com/Fanbase_Press Ripple Effects:            @RippleFXComic       https://x.com/ripplefxcomic   BlueSky Fanbase Press:          https://bsky.app/profile/fanbasepress.bsky.social