Self-Care Essentials for Lipedema

Today, I’m sharing an excerpt from an interview with Dr. Joanna Dudek, a psychologist and researcher in Poland, recorded at the 2016 Lipedema Worldwide Summit. Dr. Dudek, known for her groundbreaking research on lipedema, discusses the challenges of loving one’s body and the practice of acceptance. She explains how this acceptance can enhance quality of life and shares methods to achieve it.

The International Lymphatic Disease and Lymphedema Patient Registry & Biorepository plays a crucial role in advancing lipedema research and raising awareness about the condition. Overseen by the LE&RN Board of Directors and the Institutional Review Board of Stanford University, led by Dr. Stanley Rockson, the registry aims to expand our understanding of lipedema. Participation, particularly from women with lipedema, is essential to enhance the knowledge base surrounding this disease.

Discover the importance of self-care for individuals with lipedema in our latest episode. Learn what self-care entails and why it's crucial for maintaining a high quality of life while managing lipedema. Tune in for valuable insights and practical tips to enhance your well-being.

Today, Dr. Carol Rowsemitt discusses Famine Response Hypothyroidism, its impact on women with lipedema, and its effects even when following a keto diet.Carol “Rosey” Rowsemitt, PhD, RN, FNP, was a practicing scientist studying ecological physiology (BA in chemistry, PhD in biology) before becoming a family nurse practitioner.Specializing in weight management since 2003, Rosey understands that the body often protects against weight loss by decreasing metabolism.Her passion is helping patients and providers think about thyroid function more broadly and recognizing that typical thyroid testing may not provide the full picture.

- Today I’d like to tell you about a study by Dr. Ahmet Karacalar, a plastic surgeon in Turkey who performs liposuction on patients with lipedema.- He wrote this book during the lockdowns in 2020 and was published in May 2023.- The title of his book is Lipoedema: An Evolutionary Mismatch.- He presents archaeological evidence that lipedema is an “evolutionary mismatch” that dates back to the agricultural revolution.- He then goes on to share with readers how a modern adaptation of the hunter-gatherer lifestyle may be the best treatment option for lipoedema.Helpful links:Lipedema Simplified Calendar: https://lipedema-simplified.org/Blog:https://lipedema-simplified.org/blog/

In January 2017, Dr. Melissa Garcia Caballero joined Prof. Peter Carmeliet's prestigious laboratory in Leuven, Belgium, to investigate the therapeutic role of ketone body supplementation in lymphedema.The exciting findings from this study garnered interest among clinicians and led to the initiation of a collaborative translational clinical Phase II trial (KetoLymph) to test the ketogenic diet's therapeutic potential in cancer patients who develop lymphedema.Dr. García Caballero, co-author of over 35 scientific publications, is also a professor at the University of Málaga in Spain.

Today, Dr. Siren Nymo discusses the LIPODIET study conducted in Norway and its remarkable results.Dr. Nymo is an authorized clinical nutritionist with a PhD in obesity and metabolism from the Norwegian University of Technology and Science (NTNU).She is currently an associate professor at the university and is pursuing a post-doctorate at Nord-Trøndelag Hospital Trust.Her current research focuses on the long-term follow-up after bariatric surgery.

Today, I’m sharing an excerpt from an interview with Dr. Stanley Rockson from our Lipedema Worldwide Summit in 2016.Dr. Rockson is the Director of the Stanford Center for Lymphatic and Venous Disorders, Chief of Consultative Cardiology, and Professor of Lymphatic Research and Medicine at Stanford School of Medicine.In this excerpt, Dr. Rockson describes the lymphatic system in the brain.

Today, we explore research conducted by Joanna Dudek and colleagues from Poland, published in 2018.The authors suggest that because lipedema is a chronic condition, it can lead to feelings of helplessness and depression.Their findings indicate that both appearance-related distress and depression significantly impact the quality of life.This important research highlights the need to understand how lipedema affects all aspects of women's lives and emphasizes the necessity of combating weight bias in healthcare and society.

- Today’s episode features an excerpt from an interview with Kim Duren, recorded during our Lipedema & Keto Worldwide Summit in 2017.- In this segment, Kim recounts her lifelong struggle with weight since high school and how traditional methods failed her.- She explains how her life transformed after discovering her lipedema diagnosis and adopting a ketogenic diet.