Advancing Lipedema Research: The Role of the International Patient Registry & Biorepository

- The title of this article is Effect of a low-carbohydrate diet on pain and quality of life in female patients with lipedema: a randomized controlled trial.- It was published in the peer-reviewed journal Obesity in April 2024.- This paper describes the completed RCT, focusing on evaluating the effects of a low-carb diet (LCD) compared to a standard diet on lipedema-associated pain.- Secondary objectives included comparing the impact of the two diets on quality of life and exploring associations between ketosis levels and pain, weight, and body composition.

Carrie holds a bachelor's degree in Nutritional Medicine from Paramount College in Western Australia, where she graduated at the top of her class. She is also qualified in Functional Nutrition and Lifestyle Medicine through the Functional Nutrition Alliance in the United States and is a certified Keto Coach. Residing in sunny Western Australia, Carrie enjoys spending her weekends outdoors, fishing, swimming, or camping with her husband and six children.

Today, I’m sharing an excerpt from an interview with Dr. Paula Stewart from our 2017 Lipedema & Keto Worldwide Summit. Dr. Stewart, board-certified in Physical Medicine & Rehabilitation, specializes in general physical rehabilitation, neurologic rehabilitation, and comprehensive care for patients with cancer and lymphedema. In this excerpt, Dr. Stewart discusses how she utilizes the unique properties of water and aquatic exercise to benefit her patients with lymphedema and lipedema.

Today, I’m sharing an excerpt from an interview with Dr. Joanna Dudek, a psychologist and researcher in Poland, recorded at the 2016 Lipedema Worldwide Summit. Dr. Dudek, known for her groundbreaking research on lipedema, discusses the challenges of loving one’s body and the practice of acceptance. She explains how this acceptance can enhance quality of life and shares methods to achieve it.

The International Lymphatic Disease and Lymphedema Patient Registry & Biorepository plays a crucial role in advancing lipedema research and raising awareness about the condition. Overseen by the LE&RN Board of Directors and the Institutional Review Board of Stanford University, led by Dr. Stanley Rockson, the registry aims to expand our understanding of lipedema. Participation, particularly from women with lipedema, is essential to enhance the knowledge base surrounding this disease.

Discover the importance of self-care for individuals with lipedema in our latest episode. Learn what self-care entails and why it's crucial for maintaining a high quality of life while managing lipedema. Tune in for valuable insights and practical tips to enhance your well-being.

Today, Dr. Carol Rowsemitt discusses Famine Response Hypothyroidism, its impact on women with lipedema, and its effects even when following a keto diet.Carol “Rosey” Rowsemitt, PhD, RN, FNP, was a practicing scientist studying ecological physiology (BA in chemistry, PhD in biology) before becoming a family nurse practitioner.Specializing in weight management since 2003, Rosey understands that the body often protects against weight loss by decreasing metabolism.Her passion is helping patients and providers think about thyroid function more broadly and recognizing that typical thyroid testing may not provide the full picture.

- Today I’d like to tell you about a study by Dr. Ahmet Karacalar, a plastic surgeon in Turkey who performs liposuction on patients with lipedema.- He wrote this book during the lockdowns in 2020 and was published in May 2023.- The title of his book is Lipoedema: An Evolutionary Mismatch.- He presents archaeological evidence that lipedema is an “evolutionary mismatch” that dates back to the agricultural revolution.- He then goes on to share with readers how a modern adaptation of the hunter-gatherer lifestyle may be the best treatment option for lipoedema.Helpful links:Lipedema Simplified Calendar: https://lipedema-simplified.org/Blog:https://lipedema-simplified.org/blog/

In January 2017, Dr. Melissa Garcia Caballero joined Prof. Peter Carmeliet's prestigious laboratory in Leuven, Belgium, to investigate the therapeutic role of ketone body supplementation in lymphedema.The exciting findings from this study garnered interest among clinicians and led to the initiation of a collaborative translational clinical Phase II trial (KetoLymph) to test the ketogenic diet's therapeutic potential in cancer patients who develop lymphedema.Dr. García Caballero, co-author of over 35 scientific publications, is also a professor at the University of Málaga in Spain.

Today, Dr. Siren Nymo discusses the LIPODIET study conducted in Norway and its remarkable results.Dr. Nymo is an authorized clinical nutritionist with a PhD in obesity and metabolism from the Norwegian University of Technology and Science (NTNU).She is currently an associate professor at the university and is pursuing a post-doctorate at Nord-Trøndelag Hospital Trust.Her current research focuses on the long-term follow-up after bariatric surgery.