Help for Hip Dysplasia

We chat about the story behind Little Hippy Co, Leah's personal journey with Hip Dysplasia, advocating, raising awareness and the beauty of connecting with this Hip Dysplasia community.Important Note * Shipping details have changed since filming this episode and there is now greater availability!Find their page @Littlehippco on InstagramWebsite: www.littlehippyco.ca

This week on the help for hip dysplasia podcast, we chat to Caroline Coco, aka @Cazzacoco. Caroline tell us about her journey through moving home, changing jobs, and having to strongly advocate for herself to fight for a diagnosis, all at the same time. Caroline shares the details of this journey with us, the surgeries she’s had, the people she’s met, what helped, what hindered, and tells us where she’s at now… … Caroline is running a HALF MARATHON!!! Caroline is raising money to support @StepsCharityWorldwide by doing this challenge. If you’d like to follow, donate or support, please follow her on socials @cazzacoco.

This week on the Help for Hip Dysplasia Podcast, we speak to Joy Taylor. Her story is about 6 years, 3 surgeries and everything she learnt on the way. Thank you for sharing your story Joy - it was raw and emotional and i'm grateful that you chose to share it.

In this episode we do a deep dive into the details of being awake during total hip replacement surgery. We learn about Emma's story in the lead up to the surgery, what it was like during, and the recovery after. Local anaesthetics rather than general, are becoming more common place for a multitude of reasons, so the hope is that this deep dive will answer many of the questions you might have, and feel better about understanding the process. I can tell you from a personal perspective, that with this most likely in my future, that I felt significantly calmer about the thought of this for myself. Thank you Emma so much, for your time, and being so open to discuss the details with us! If you liked this episode, please consider sharing this with someone that may also find it useful :-) More information and episodes available on: - This podcast - www.helpforhipdysplasia.com - Instagram @helpforhipdysplasia If you are looking for help and support with your own hip dysplasia journey, please contact me at [email protected]

Join me, as I get to chat with Georgina, Clara, Maja, Emma, Laura, Billie, Betsy, Meg, and Claire, about hip dysplasia and mobility aids. This episode is pieced together from a few conversations to accommodate different time zones and allow as many people to join as possible. We spend time talking about the emotions that come up for us about using these aids, the influence of media, of social influence, actual and/or perceived judgement from the people we encounter day to day, experiences, and stories.  We talk about how we can empower ourselves and others to prevent and relieve symptoms, and how we hope that conversations like these can inspire and spread positive change. I’m so grateful for everyone’s time in putting this together. It was such a pleasure to have these discussions and meet more of you in this incredible community. Thank you. I welcome and encourage further discussion around this topic, so please comment, or contact me with any thoughts and feelings that come up. One of our group, Betsy Miller is the author of “The Parents’ Guide to Hip Dysplasia. If you would like more information on her book, you can find the links to it here: US link: https://www.amazon.com/Parents-Guide-Hip-Dysplasia/dp/0897936469 Uk link: https://www.amazon.co.uk/Parents-Guide-Hip-Dysplasia/dp/1630267120

On this episode, we chat with Rob Handshy about his bilateral hip replacements and returning to Brazilian jiu-jitsu to receive his Black Belt. We talk about being inspired by other people’s journey’s, getting multiple opinions and finding the best surgeon for you, different surgical approaches, principles of recovery, conversations with various members of the health care team, and having a choice when it comes to pain relief. Thank you Rob for sharing your story, for your time and being involved with supporting others on their journey’s. If you’d like to follow Rob on IG, search: @Bionic_BJJ

We chat with Shahrzad Shariatpanahi, a Bio-medical engineer about different designs for hip replacements and re-surfacing. We discuss the processes of deciding which materials, shapes and sizes are right for you, and why. We also touch on some of the research into failed replacements. Thank you Shahrzad - already looking forward to part two! For more information and to follow Shahrzad: YouTube channel:    / @shahrzadshariatpanahi5091   Instagram: @shahrzad_biomed_eng To find Shahrzad's book, "Wee tips, on knees and hips": https://amzn.eu/d/eKLFcJh Genetic testing for metal allergies, as discussed in the podcast: https://www.explantlab.com/product/my... NHS Implant Analysis Service (IAS): https://www.implantanalysis.nth.nhs.uk/

We chat to Trevor about his experience of hip replacement surgery following an avascular necrosis diagnosis, which lead to both hips and a shoulder being replaced. Trevor is wonderfully open about his journey, and I'm grateful to have been able to speak with him today. We cover Trevor's story, opioid medications, depression and getting back to a life that he recognises a his own. Trevor has been a wonderful advocate and has been inspired by so many other's stories - he wanted to share his story in the hope that he might be that inspiration to others. He welcomes people contacting him as he tells us that the online community was a tremendous help to him. You can find Trevor at @b10n1c_hippi3 on Instagram.

It is an absolute privilege to be able to talk with Mr John Clegg in this episode. Mr Clegg is an Orthopaedic Surgeon with a special interest in hips, and in particular hip dysplasia. He has produced research with Mr Nicholas Clarke and an incredible team, that has changed the screening programmes for babies in many countries,  resulting in implementing the Graf Method, by Mr Reinhard Graf.  The statistics for "missed" cases in this research, and the countries that have this universal method of screening, is almost zero. This research produced results that are incredibly hard to find fault with. In this conversation we discuss some of the reasons that it has unfortunately not been implemented in the UK as a universal screening tool, and why it is SO important to continue to raise awareness. My hope is that the contents of this conversation will spark emotion, promote discussion, and add to the work of other advocates around the globe.  Please continue to ask questions, share your experiences, challenge the systems we live in, and speak up for the children that do not yet have their voice. The more awareness is raised, the more information we have to hand, the harder it is to deny these scans for the next generations.

On this episode we get to chat to Kate about her hip dysplasia diagnosis, body building, weight lifting and information on BFR (Blood flow restriction) training.  Thank you Kate for this brilliant conversation! If you would like to follow Kate’s journey, you can find her @spindleblood on Instagram. Disclaimer - BFRT is not something I’m trained in or have researched, so whilst I can’t professionally recommend it at the moment, it was a really interesting conversation that makes me want to understand more, and seems to have provided a huge benefit to Kate. If this is of interest to you, please consult a health professional, and do not attempt yourself.