Sparkle goes out in India’s fireworks capital Shivakasi

This is the last episode in the series on Kala Azar reported by Suno India’s Menaka Rao.  The Indian government has said that it has hit the elimination target for Kala-azar, a parasitic disease that is life-threatening. But miltefosine, the drug used to treat the skin manifestation of Kala-azar, called Post-Kala-azar Dermal Leishmaniasis (PKDL), is being linked to eye problems, including blindness.  The government has taken steps to try to reduce the side effects in 2021, but not much has been done for those who have lost their eyesight either in one eye or both, possibly as a result of miltefosine. The World Health Organization has found 83 cases of people in India who have suffered a problem in the eye after intake of miltefosine.  In this episode, Menaka spoke to Iliyas Marandi, one of the patients who lost his eyesight completely after taking miltefosine treatment. She also spoke to ophthalmologists Dr Rakhi Kushumesh and Dr Asim Sil who treated such patients, and helped develop the guidelines to prevent such ocular side effects.    References  https://www.indiaspend.com/health/how-a-drug-to-treat-dermal-kala-azar-is-affecting-patients-eyesight-901497 Keratitis occurring in patients treated with miltefosine for post-kala-azar dermal leishmaniasis | British Journal of Ophthalmology https://ncvbdc.mohfw.gov.in/WriteReadData/l892s/PKDL-Guidelines-220512.pdf Using focused pharmacovigilance for ensuring patient safety against antileishmanial drugs in Bangladesh's National Kala-azar Elimination Programme Keratitis After Post-Kala-Azar Dermal Leishmaniasis Corneal complications following Post Kala-azar Dermal Leishmaniasis treatment | PLOS Neglected Tropical Diseases Adverse ocular events on miltefosine treatment for post-kala-azar dermal leishmaniasis in India - Suman Saurabh, Manish Mahabir, 2020 Advisory Committee on Safety of Medicinal Products (ACSoMP): Measures to minimize the risk of ocular adverse events with miltefosine Statement on miltefosine - Potential ocular disorders in patients treated with miltefosine for post-kala-azar dermal leishmaniasis (PKDL).See sunoindia.in/privacy-policy for privacy information.

On March 20, 2024, the Bombay High Court convicted former police officer Pradeep Sharma in a 18-year-old “fake” encounter killing of Ramnarayan Gupta, who was allegedly from Chhota Rajan gang. Gupta was sentenced to life imprisonment. This is not the norm, but more of an exception.  Encounters are normalised in India. Recently, the UP police encountered a murder accused in Badaun district. The father of two boys who were murdered appealed to the police not to encounter the co-accused because they wanted some answers as to why the children were killed. This is an episode from April last year when Sneha Richhariya spoke to Prakash Singh, ex-IPS Officer when the UP police killed alleged mafia don and politician Atiq Ahmed and his brother in the presence of media persons. Prakash Singh served as Director general of Police, Uttar Pradesh. He has also served in Assam and Border Security Force. Singh filed a public interest litigation in the Supreme Court seeking police reforms, in which a landmark verdict was delivered.He explained what does the systemic apathy about encounter killings mean for the society.See sunoindia.in/privacy-policy for privacy information.

In this episode, Suno India's Padma Priya talks to Dr. Abhishek Mangeshikar, a gynecologist specializing in endometriosis. He explains what endometriosis is and why it is difficult to diagnose. Dr. Mangeshikar also addresses common myths surrounding endometriosis, such as the belief that pregnancy or menopause can cure the disease. He emphasizes the importance of patient advocacy and provides advice on how to push back against dismissive attitudes from medical professionals. Additionally, he discusses risk factors for endometriosis and the presence of silent symptoms, such as kidney damage. In this conversation, Dr. Abhishek Mangeshikar discusses various aspects of endometriosis, including diagnosis, management, surgical considerations, psychological impact, and patient education. He emphasizes the importance of thorough imaging and the limitations of routine gynecological ultrasounds in diagnosing endometriosis. Dr. Mangeshikar explains that while hormonal treatments can provide relief from pain, they do not stop the growth of endometriosis. He also highlights the significance of choosing an experienced endometriosis surgeon and provides key questions to ask when considering surgery. The conversation touches on the recurrence of endometriosis, the psychological impact of the disease, and the resources provided by Endometriosis India. Dr. Mangeshikar shares his approach to patient education through social media and emphasizes the need for action in improving the understanding and treatment of endometriosis.See sunoindia.in/privacy-policy for privacy information.

The inauguration of the Ram Mandir marks a significant chapter in India’s  history. The temple's construction replaced the 16th-Century Babri masjid, which was demolished by Hindu mobs in 1992, leading to nationwide riots and the tragic loss of nearly 2,000 lives, after the Supreme court allowed it.  In December 2023, reporter Shweta Desai travelled to Ayodhya before the temple’s inauguration on January 22, 2023. In this episode of the Suno India Show, Shweta talks to a community living just behind the newly constructed Ram Mandir and listens to the local communities, Hindus, Muslims, and the Bahujans who have lived around the disputed site for years as friends and experienced the communal fallout of one of the most polarising political campaigns of modern India. See sunoindia.in/privacy-policy for privacy information.

The Bharatiya Janata Party government has been pitching for One Nation One Election for years. The High Level Committee on One Nation, One Election submitted a report to President Droupadi Murmu on March 14, 2024. The 21-volume, 18,626-page report has suggestions from representatives of various political parties, economists, officials from the election commissions, businessmen, and other experts.  The report unanimously supports one election for Centre, state and local bodies such as panchayats and municipalities. We are republishing an older episode hosted by Suno India’s Rakesh Kamal where he interviewed Chakshu Roy to understand the complexities and challenges of holding simultaneous elections. Chakshu Roy heads the outreach team and leads the legislator and citizen engagement initiatives at PRS legislative research. He has been involved in setting up the state laws project, training civil society and journalist groups about tracking Parliament. For additional reading: PRS Summary of the Report  ANALYSIS OF SIMULTANEOUS ELECTIONS : THE “WHAT”, “WHY” AND “HOW” Standing Committee Report on the feasibility of holding simultaneous elections.pdf (Dec 2015) Law commission report (1999) on electoral reforms.pdf https://onoe.gov.in/HLC-Report The Suno India Show | Can ‘one nation, one election’ work for IndiaSee sunoindia.in/privacy-policy for privacy information.

On March 11, 2024 a few months before the Lok Sabha Elections the central government notified the Citizenship (Amendment) Rules. This has come approximately four years after the Parliament passed the Citizenship (Amendment) Act in 2019. As per the amendment, the government can grant citizenship to Hindus, Sikhs, Buddhists, Parsis, Jains, or Christians from Bangladesh, Pakistan and Afghanistan on or before December 31,2014.. conspicuously leaving out Muslims. It was passed amid nation-wide protests as linking citizenship to religion goes against the secular nature of the constitution.  The bigger fear is about a nationwide National Register of Citizens or NRC. Assam is the only place with NRC.  At the time of passing the Act, the Home Minister, Amit Shah told Parliament that a nationwide NRC is on the cards. However, in a blogpost, press information bureau at the time clarified repeatedly that no announcement has been made to begin NRC exercise.  Now with the rules being released, nationwide implementation of the Act will begin. In 2019, the United Nations Human Rights Office issued a statement condemning the “fundamentally discriminatory” Citizenship Amendment Act. At the time in 2019, Suno India’s Padmapriya had spoken to Pia Oberoi, senior advisor on migration, UN Human Rights Office to understand their concerns around the Citizenship Amendment Act. We are republishing it as it continues to be relevant today.See sunoindia.in/privacy-policy for privacy information.

मुस्कान भोपाल की रहने वाली एक दलित ट्रांसजेंडर महिला हैं जो सामाजिक हाशिये पर रहने के बीच स्वीकार्यता और अपनेपन की खोज का सफर साझा करती है। खून के रिश्तो से परे जाकर मुस्कान अपने चुनिंदा परिवार की कहानी बताती हैं जिसके साथ वह दुःख, प्यार और ट्रांसजेंडर होने की चुनौतियों व पहचान की जटिलता के बारे में जानती हैं.  अपने जन्म वाले परिवार के द्वारा अस्वीकारे जाने से लेकर LGBTQ+ समुदाय और सहयोगियों जैसे सुरय्या दादी में सांत्वना और सहारा पाने तक- मुस्कान की कहानी स्वीकार्यता और समझ की ओर अपना खुद का रास्ता बनाने के लिए आवश्यक सहनशीलता और साहस को उजागर करती है। यह चुने हुए परिवारों की शक्ति और हर किसी को उसके सच्चे रूप में महसूस करने वाले और प्यार करने वाले स्थानों की रचना की महत्वकांक्षा का एक साक्षी है। मुस्कान एकतारा कलेक्टिव द्वारा निर्मित फिल्म “एक जगह अपनी” में काम कर चुकी हैं.  सेजल पटेल इस स्टोरी के लिए मुस्कान से मिलने भोपाल गए। यह एपिसोड Queerbeat के साथ कोलैबोरेशन में निर्मित किया गया है।See sunoindia.in/privacy-policy for privacy information.

In 2013, Indian law codified workplace protection for working women, both in the formal and informal sectors under the Sexual Harassment of Women at Workplace (Prevention, Prohibition and Redressal) (POSH) Act.  A report of Human Rights Watch says that India has failed 94 % of its women who work in the informal sector - this includes women who work as domestic help, sweepers, construction workers and so on. Suno India’s Sneha Richhariya spoke to domestic workers, Local committee members, lawyers and civil society organisations to understand how the law has played out for working women in the informal sector.See sunoindia.in/privacy-policy for privacy information.

On 28th February 2024, Wakeel Hassan, Uttarakhand Tunnel rescue hero once again made headlines when his house was razed by the Delhi Development Authority (DDA).  The demolition of Hassan’s house was the most recent in the spate of evictions across the country. There have been questions over why the government disproportionately targets working-class and minority community people such as Wakeel Hassan. Here is an extended cut of an interview with Dr. Ghazala Jamil from an episode of the Suno India Show where Suno India’s Menaka Rao reported on the aftermath of the April 2022 Jahangirpuri riot followed by a demolition drive. Ghazala is an Assistant Professor at the Centre for the Study of Law and Governance,  Jawaharlal Nehru University, New Delhi. In this episode, hosted by Suno India’s Sneha Richhariya, Ghazala explains what makes an illegal structure in a city and what makes some illegal structures more illegal than others. References: Uttarakhand tunnel rescue hero's home demolished in Delhi; Declines DDA's temporary accommodation offer MP demolition drive: Authorities face charges of doing away with due processMCD to beautify city, remove encroachment from February 6 ahead of G20 summit Mehrauli demolition: Survey DDA relied on was found incomplete by HC panel last year Olga Tellis & Ors vs Bombay Municipal Corporation & Ors. Etc on 10 July, 1985 THE PUBLIC PREMISES (EVICTION OF UNAUTHORISED OCCUPANTS) ACT, 1971 Thousands Traumatised In New Delhi: As Law Is Ignored, Homes & Lives Are Torn Apart For G20 SummitSee sunoindia.in/privacy-policy for privacy information.

Even as the MPs were suspended, in December 2023, the Parliament passed laws completely upending the major criminal laws of our country. What does this mean in a democracy?  On 30th January 2024, Maansi Verma, a lawyer and public policy researcher, posted a thread on the platform ‘X’ (formerly Twitter) about the ‘wrongs’ committed by the government during its term. The list of ‘wrongs’ mentioned in this thread is glaring enough to make any concerned citizen worry.  Suno India’s Sneha Richhariya spoke to Maansi Verma, who is also the founder of “Maadhyam”- which is a civic engagement initiative working to bring Parliament and policy-making closer to people.See sunoindia.in/privacy-policy for privacy information.