Just Say HIE

Join Betsy Pilon, Executive Director at Hope for HIE and Dr. Kenji A. Cunnion, Chief Medical Officer at ReAlta Life Sciences, Inc. for an update on the state of HIE research, the evolution of ReAlta's commitment to therapeutic development for HIE, and the strategy and direction of their upcoming Phase 2 trials.This episode originally aired 4/28/2022.

Join AAC experts Dr. Carole Zangari and Tina Moreno, MA, CCC-SLP, to learn all about assistive and augmentative communication, including when to get started, who to engage on your team, community resources, and more.This episode originally aired on 4/28/2022.

Join Dr. Danielle Barber, member of Hope for HIE's Medical Advisory Board, HIE parent, pediatric neurologist, and lab researcher at Children's Hospital of Philadelphia, to learn how she has not only taken the perspective as a HIE parent and child neurologist to advise patients and families on how to navigate the therapy maze.This episode originally aired on 4/18/2022.

Join Dr. Brian Kalish, staff neonatologist and clinician-scientist at SickKids Foundation, and Hope for HIE Medical Advisory Board member, share about his exciting research, and the evolution of HIE research in the past, and into the future, as a part of Medical Advisory Board Educational Series, and HIE Awareness Month events.This originally aired on 4/12/2022.

Dr. Monica Arroyo, a member of Hope for HIE's Medical Advisory Board, is a pediatric neurologist with Joe DiMaggio Children's Hospital in Florida, passionate about caring for families, advocating for multidisciplinary care, and follow-up support.This originally aired on 4/10/2022.

Dr. LaTrice L. Dowtin joins us to discuss the pillars of trauma-informed care and how they can and should be implemented for families facing trauma due to a NICU or PICU experience with HIE, hypoxic ischemic encephalopathy.This originally aired on 6/3/2021.

Join us for this BONUS EPISODE, as we bring our Medical Advisory Board educational series to our Just Say HIE podcast. This conversation was previously recorded and aired in April 2021 during HIE Awareness Month. Topics covered include neonatal seizures, the connection of HIE to seizures and epilepsy, what types of epilepsy babies and children with HIE are at risk for, including the discussion on Infantile Spasms, Lennox-Gastaut Syndrome, and Electrical status epilepticus in sleep (ESES). Tips are discussed on how to build productive relationships with your child's neurologist, including developing a proactive plan of how to contact them in case you suspect a seizure or have a concern about a movement.We are so grateful to Dr. Hannah Glass and Dr. Renee Shellhaas for sharing their expertise, their dedication to the HIE community in research and in clinical practice, and their involvement in the Medical Advisory Board with Hope for HIE. To learn more about HIE and epilepsy, be sure to visit our blog.

Join us as David Ford, president of Hope for HIE's board of directors, shares his HIE story, his calling to give back to Hope for HIE, and encouragement for others to get involved in a myriad of ways as the giving season begins. Learn how to get started with Giving Tuesday, Hope for HIE's 100 for $100 campaign, and the exciting sixth annual Hope for the Holidays giving program benefiting HIE families to improve the quality of life for children and families - now totally over $70,000 of equipment, experiences and journey-lifters for the worldwide HIE community. 

Join us as we share the stories of Julie Makow and Margie Jones, two HIE moms, who connected through Hope for HIE on the road to kidney transplants for their children. With acute kidney injury and HIE, many children may have impacted kidney function. While Julie and Margie did not leave near each other, through Hope for HIE, they were able to complete the circle of support, for each other and new families. Learn more about some of the plot twists in life, and how tacos with a friend can transform pain into a kindred friendship. 

Join us as we turn the tables and interview the hosts of the widely popular INCUBATOR podcast, Dr. Ben Courchia and Dr. Daphna Yasova Barbeau. We were excited to come together to showcase the parent and clinician perspectives in this collaboration, learning how each physician approaches care, communication and connection in the NICU, how they prevent burnout, process difficult cases, and provide hope in the uncertainty of HIE. Episode links: Incubator Podcast: Interview with Betsy Pilon Dr. Ben Courchia on Twitter Dr. Daphna Yasova Barbeau Contact us for questions, ideas or to be a guest - [email protected]