Albinism Talks

Luna is 18 years old, she was born with albinism and lives in the Netherlands. She is a fanatic goalball player. This is a paralympic sport and a perfect sport for people who are blind or visually impaired. Luna is also a musician, she plays the piano in a band. She attended regular education and found her way to deal with being visually impaired although she did experience problems at school and with finding an internship. Listen to her story and how she had to learn to deal with setbacks.#albinism #bullying #visuallyimpaired #nystagmus #goalball #young #paralympics #sport

Xueli speaks with Nan (they/them), 24 years old and originally from South Africa but lives in the UK since Nan was 7 years old. They are born with albinism and works as a model, loves yoga, visual arts. Their albinism affects daily live, Nan uses a cane occasionally and enjoys free public transport in the UK. Nan has a sibling with albinism which made it easier to accept this condition and Nan actually enjoys being different in various ways.

Nikwi and Xueli talk about racism and more in particular about Asian hate. Nikwi gives an insight into her experiences with being discriminated against. It is important to share her story because it shows how painful racism is. You can also see the video (in English) via the YouTube channel of the Open Eyes Foundation : https://www.youtube.com/watch?v=IIRJv-KD2Ek

Xueli speaks with Jia Lun about his work in Taiwan, he has a fulltime job in the factory of his family and works as international model. His images were published in the Taiwanese Vogue. He also speaks about prejudices he faces and how he copes with discrimination. The podcast is in Chinese/English. If you wish to watch the podcast as a video with English subtitles please refer to the YouTube channel of the Open Eyes Foundation under Albinism Talks: https://www.youtube.com/channel/UCqHsjO76cKCOGDPzrzHuwNA/videos

Jia Li is 19 years old and lives in the USA. She is born with albinism and adopted from China. Jia Li is a student in nursing and a great dancer. Xueli and Jia Li talk about school, bullying, Chinese roots and food,  and about living with albinism.  She wants to end the terrible myths about albinism and dreams about a better world without discrimination. 

Latifa was born with albinism in the Democratic Republic of Congo (DRC). When she was very young she moved to the Netherlands. Latifa is now 21 years old and plays the main character in the movie 'White Berry' about Grace, a Dutch-African girl with albinism from Burundi who fled her country with her mother and brother because of her albinism. Grace feels different and left out due to her whiter skin and bad sight. She meets Kia and her African identity becomes more important and she wants to become part of the group. Xueli and Latifa speak about the movie and Latifa's life with albinism in the Netherlands. 

Lina (Florida, US) describes how she feels about having albinism and her Chinese background. She explains how she learns and about her future plans.

Xueli speaks with Blair in the USA about her life with albinism. Blair speaks about what helps her at school, work and  sports. She also addresses issues that people with albinism face in daily life and how her family and community support her.